CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3129-C10570	C10570	Imaging contrast agent used indicator	Indicator of whether an imaging contrast agent was used for the scan	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60333	C60333	Mitochondrial disease pancreatitis hospitalize indicator	Indicator of whether the participant was hospitalized for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F0803-C09600	C09600	Brief Psychiatric Rating Scale (BPRS) - suspiciousness score	The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20135	C20135	Mitochondrial disease prior burp reflux abdominal distention accompany type	Type of reflux or abdominal distention that accompanied prior burping episodes for the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C20001	C20001	ECG left bundle branch block status	Status of patterns of left bundle branch block on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60293	C60293	Mitochondrial disease swallow pain indicator	Indicator of whether the participant has pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20094	C20094	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn current prior status	Status of whether the participant's GERD, heartburn, mid-line chest pain, esophageal burning symptoms are current or prior	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54618	C54618	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index raw score	Raw score of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60140	C60140	Dual X-ray absorptiometry R3 lateral distal femur bone mineral content z score	Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C17929	C17929	Cardiac MRI overall impression text	Free-text field describing the overall impression of the cardiac magnetic resonance imaging (MRI) being reported	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56411	C56411	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary T score	The T score converted from the raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60100	C60100	Imaging pre-existing hardware anatomic site	Anatomic site of the hardware implanted or attached prior to an imaging scan	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60341	C60341	Mitochondrial disease chronic pain medication pancreatitis indicator	Indicator of whether the participant is taking chronic pain medication for pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F0806-C09344	C09344	Hamilton Anxiety Rating Scale (HAM-A) - anxious mood score	The score of the participant's/subject's anxious mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20147	C20147	Mitochondrial disease swallow pain text	The free-text field to specify comments about participant's pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60350	C60350	Sleep total average duration	Duration of total average sleep during the recording period	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09375	C09375	Hamilton Depression Rating Scale (HDRS) - agitation indicator	Score for the extent of agitated behaviors the participant/subject displays, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C52564	C52564	Data source family relation specify text	Free-text field specifying the relationship of the family member from which data on the participant was obtained	Supplemental	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21891	C21891	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental task type	Type of test, as part of Brief Test of Adult Cognition by Telephone(BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20236	C20236	Mitochondrial disease Munchausen by proxy syndrome health care professional setting indicator	Indicator of whether a health care professional has had a concern about Munchausen by proxy	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20064	C20064	Mitochondrial disease current vomit blood clot indicator	Indicator of whether the participant's vomit has blood clots in current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59703	C59703	Sex steroid deficiency cause type	Type of cause of the participant's sex steroid deficiency	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20195	C20195	Mitochondrial disease prior bloat abdominal distension stop age category	Category of the participant's age at the end of prior abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19715	C19715	Dietary supplement generic name	Generic name for the supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.