CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 826 - 850 of 1834

« first
‹ previous
…
30
31
32
33
34
35
36
37
38
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20216	C20216	Mitochondrial disease current medication type other text	The free-text field related to 'Mitochondrial disease current medication type', specifying other text. Type of other medications that the participant is currently taking	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20043	C20043	Mitochondrial disease current special diet type	Type of specialized diet of the participant currently	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19580	C19580	Weight/Length percentile value	Value of the participant's weight/length percentile for age calculated using a standardized growth chart	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16170	C16170	Menstrual period occurrence indicator	Indicates whether participant has ever had a menstrual period	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60242	C60242	Biomarker fibroblast assessment type other text	The free-text field related to 'Biomarker fibroblast assessment type', specifying other text. Type of biomarker(s) assessed from fibroblasts samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60330	C60330	Mitochondrial disease chronic pancreatitis indicator	Indicator of whether the participant had chronic pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20132	C20132	Mitochondrial disease prior burp stop age category	Category of the participant's age at the end of prior burping episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C18777	C18777	ECG heart rhythm result type other text	The free-text field related to 'ECG heart rhythm result type', specifying other text. Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60290	C60290	Mitochondrial disease swallow difficult occur liquid solid type	Type of bolus consistency (solid and/or liquid) with which the participant has difficulty swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20091	C20091	Mitochondrial disease migraine history indicator	Indicator of whether the participant has a history of migraines	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12922	C12922	Cardiovascular Holter exam atrial dysrhythmia episode total count	Count of the total number of episodes of a specific atrial dysrhythmia event recorded during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56422	C56422	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid assist listen device used indicator	The indicator relating to whether the examinee used his/her assisted listening device during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F0806-C09355	C09355	Hamilton Anxiety Rating Scale (HAM-A) - genitourinary symptom score	The score of the participant's/subject's genitourinary symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12228	C12228	Tissue specimen name	Tissue specimen name collected from the participant	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60137	C60137	Dual X-ray absorptiometry R2 lateral distal femur areal bone mineral density value	Absolute value of the amount of areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the metadiaphysis (R2) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C18825	C18825	Dual X-ray absorptiometry scanner use other text	The free-text field related to 'Dual X-ray absorptiometry scanner use type', specifying other text. The type of scanner used for dual X-ray absorptiometry (DXA)	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60338	C60338	Mitochondrial disease fecal elastase test indicator	Indicator of whether the participant had fecal elastase testing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20144	C20144	Mitochondrial disease swallow problem detail text	The free-text field to specify additional details about participant's swallowing problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19549	C19549	Biomarker source assessment type	Type of source obtained to assess the biomarker	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60298	C60298	Mitochondrial disease swallow pain change status	Status related to the change in the participant's current pain with swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20099	C20099	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn wake indicator	Indicator of whether current GERD, heartburn, mid-line chest pain, esophageal burning wakes the participant from sleep	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12937	C12937	Cardiovascular Holter exam arrhythmia symptom description text	Free-text field describing symptoms documented during arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56430	C56430	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning percentile rank value	The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F1056-C12841	C12841	Cardiac MRI ventricle end diastolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 826 - 850 of 1834

« first
‹ previous
…
30
31
32
33
34
35
36
37
38
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.