CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1607-C21845	C21845	Brief Test of Adult Cognition by Telephone (BTACT) - Category fluency test correct response count	Number of correct responses in the Category Fluency Test, as part of Brief Test of Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C56035	C56035	Genetic test result source type other text	The free-text field related to 'Genetic test result source type', specifying other text. Type of source of the participant's genetic test results	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04503	C04503	ECG heart rate	Rate in beats per minute of ventricular contractions recorded in the electrocardiogram (ECG/EKG) being recorded. Also called Heart Rate (HR)	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60276	C60276	Mitochondrial disease prior special diet type	Type of specialized diet the participant has been on in the past	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20077	C20077	Mitochondrial disease prior vomit episode trigger indicator	Indicator of whether there were particular triggers that induced prior vomiting episodes in participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59725	C59725	Medication stop puberty current indicator	Indicator of whether the participant is currently taking any medications to stop puberty	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20208	C20208	Mitochondrial disease stool blood amount type	Type of amount of blood in the stool	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20035	C20035	Height maternal measurement	Measurement of participant's mother's height	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C10981	C10981	Birth control method type	The participant's method of birth control	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09370	C09370	Hamilton Depression Rating Scale (HDRS) - early night insomnia indicator	Score for the participant/subject's difficulty, if any, with early-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21863	C21863	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task question type	Type of questions asked in the Stop And Go Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59091	C59091	Genetic study type other text	The free-text field related to 'Genetic study type ', specifying other text. Type of genetics study conducted	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C16196	C16196	Biological sample in repository study initially requested name	The name of the study for which the biological sample or specimen was initially taken	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60284	C60284	Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burn trigger text	The free-text field to specify additional details about participant's current GERD, heartburn, mid-line chest pain, esophageal burning symptom triggers	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20085	C20085	Mitochondrial disease prior stool black indicator	Indicator of whether the participant's prior stools were black	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59733	C59733	Consume dairy or substitute indicator	Indicator of whether the participant consumes dairy or dairy substitute products	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20217	C20217	Mitochondrial disease medication gastrointestinal problem prior help text	The free-text field to specify about which medications helped with the participant's past GI problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20044	C20044	Mitochondrial disease current special diet type other text	The free-text field related to 'Mitochondrial disease special diet type', specifying other text. Type of specialized diet of the participant currently	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19581	C19581	BMI Percentile Value	Value of the participant's BMI percentile for children over 2 years	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C16171	C16171	Menstrual period first occurrence age value	Youngest age the participant had a menstrual period, otherwise known as the age of menarche	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21895	C21895	Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) total score	Total number of digits produced score, as a part of the Brief Test Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59157	C59157	Genetic study data analysis category type	Type of analysis category data expected for the genetics study	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59741	C59741	Bone fracture age value	Value for participant's age at the time of fracture	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20225	C20225	Mitochondrial disease surgery type	Select the type of surgery participant had	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59839	C59839	Left eye vision status	Status of the participant's vision using the left eye	Supplemental	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.