CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2235-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60118	C60118	Dual X-ray absorptiometry total hip areal bone mineral density z score	Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the total hip	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20166	C20166	Mitochondrial disease current abdominal pain wake indicator	Indicator of whether current abdominal pain wakes the participant from sleep	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60231	C60231	EKG type	Type of EKG (electrocardiogram) performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60319	C60319	Mitochondrial disease prior abdominal pain trigger type other text	The free-text field related to 'Mitochondrial disease prior abdominal pain trigger type', specifying other text. Type of trigger of the participant's prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20121	C20121	Mitochondrial disease prior oral regurgitation frequency type other text	The free-text field related to 'Mitochondrial disease prior oral regurgitation frequency type', specifying other text. Type of frequency with which the participant had prior oral regurgitation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54618	C54618	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index raw score	Raw score of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C56411	C56411	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary T score	The T score converted from the raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60126	C60126	Dual X-ray absorptiometry distal one-third radius areal bone mineral density z score	Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20174	C20174	Mitochondrial disease prior abdominal pain reason detail text	The free-text field to specify additional details about reasons indicating the participant's past abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60239	C60239	Vitamin level test type other text	The free-text field related to 'Vitamin level test type', specifying other text. Type of vitamin levels tested	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60327	C60327	Mitochondrial disease total pancreatitis episodes number	Total number of pancreatitis episodes the participant experienced	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20129	C20129	Mitochondrial disease current burp specific food drink cause text	The free-text field to specify which specific foods or drinks cause participant's current burping	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04515	C04515	ECG ventricular arrhythmia type	Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54630	C54630	Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F3093-C60287	C60287	Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn frequency type other text	The free text field related to 'Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn frequency type', specifying other text. Type of frequency of with which the participant had prior GERD, heartburn, mid-line chest pain, esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1968-C56419	C56419	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other text	Text describing another visual or hearing aid the subject needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3133-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's family member has donated biological sample(s) to a repository	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C60134	C60134	Dual X-ray absorptiometry R1 lateral distal femur areal bone mineral density z score	Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the anterior distal metaphysis (R1) of the lateral distal femur	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C12173	C12173	Dual X-ray absorptiometry scan anatomical site	Site on the body that was scanned for dual X-ray absorptiometry (DXA)	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60335	C60335	Mitochondrial disease pancreas imaging study type	Type of imaging study of the pancreas the participant had	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20137	C20137	Mitochondrial disease prior burp specific food drink cause text	This free-text field to specify which specific foods or drinks caused participant's past burping	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60344	C60344	Wearable exercise technology indicator	Indicator of whether the participant uses wearable exercise technology	Supplemental	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.