CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20060	C20060	Mitochondrial disease current vomit green yellow indicator	Indicator of whether the participant's vomit is green or yellow in current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19631	C19631	Weight pediatric measurement	Measurement of weight for a pediatric participant	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C20018	C20018	Hormone-related syndrome diagnosis age value	The age value of participant related to known hormone-related/endocrine syndromes or disorders	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20191	C20191	Mitochondrial disease current abdominal distension cause reason type	Type of reason for current abdominal distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19725	C19725	Laboratory procedure two hour glucose measurement	Measurement of the amount of glucose in the participant's blood 2 hours after a 75-gram glucose drink has been ingested	Supplemental	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60254	C60254	Diagnosis primary mitochondrial disease support sign type other text	The free-text field related to 'Diagnosis mitochondrial disease PMD support sign type', specifying other text. Type of sign supportive of primary mitochondrial disease diagnosis	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17957	C17957	Cardiovascular Holter exam premature ventricular contraction count	Count of premature ventricular contractions per 24 hours	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3122-C01711	C01711	Lab test result unit of measure	Unit of measure for the laboratory test result	Supplemental	Labs of Bone Mineral Metabolism	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20328	C20328	Mitochondrial disease bowel movements current medication type	Type of medications that the participant is currently taking for help with bowel movements	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20068	C20068	Mitochondrial disease current vomit detail text	The free-text field to specify additional details about participant's current vomiting symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59716	C59716	Medication steroid mouth current indicator	Indicator of whether the participant is taking any oral steroids by mouth	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59715	C59715	Sex steroid receive indicator	Indicator of whether the participant received sex steroids	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20199	C20199	Mitochondrial disease prior bloat abdominal distension detail text	The free-text field to specify additional details about the participant's past abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19719	C19719	Dietary supplement dose	Dose of the dietary supplement the participant is taking	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09361	C09361	Hamilton Depression Rating Scale (HDRS) - somatic symptoms indicator	Score for the intensity of the participant/subject's somatic gastrointestinal symptoms, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21840	C21840	Brief Test of Adult Cognition by Telephone (BTACT) - Category fluency test category	Category of responses in the Category Fluency Test, as part of Brief Test of Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C56033	C56033	Genetic test result source type	Type of source of the participant's genetic test results	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04502	C04502	ECG global result type	Type of result in qualitative terms of the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60275	C60275	Mitochondrial disease infant formula recommendation type other text	The free-text field related to 'Mitochondrial disease infant formula recommendation type', specifying other text. Type of recommendation the participant received regarding the infant formula	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20076	C20076	Mitochondrial disease prior vomit time of day category	Category for the time-of-day of the participant's prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59724	C59724	Medication testosterone HCG current indicator	Indicator of whether the participant is currently taking any testosterone (injection, patch, gel, other) or HCG (injection)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20207	C20207	Mitochondrial disease stool blood color category	Category of color of blood in the participant's stool	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20034	C20034	Mitochondrial disease person relationship category	Type of relationship of participant to family member with mitochondrial disease	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C10980	C10980	Childbearing potential indicator	Indicator of whether the participant is of childbearing potential	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F2943-C09369	C09369	Hamilton Depression Rating Scale (HDRS) - suicide indicator	Score for the presence, qualities, and strength of the participant/subject's suicide-relevant thoughts and actions , if any, as part of the Hamilton Depression Rating Scale (HDRS)	Supplemental	Hamilton Depression Rating Scale (HDRS)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.