CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0803-C09593	C09593	Brief Psychiatric Rating Scale (BPRS) - conceptual disorganization score	The score of the participant's/subject's conceptual disorganization, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1860-C04500	C04500	ECG atrial arrhythmia type	Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19616	C19616	Length standard infant use type	Indicate whether WHO or CDC growth charts were used in length Z-score calculation	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12868	C12868	Echocardiogram left ventricular trabeculation ratio indicator	Whether any of the trabeculations are more than 2:1 ratio, trabecular layer to compact layer as assessed by echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20176	C20176	Mitochondrial disease prior abdominal pain frequency	The frequency with which the participant/subject had prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12936	C12936	Cardiovascular Holter exam symptomatic during arrhythmias indicator	Whether the participant/subject was symptomatic during the arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20305	C20305	Hospital admission not diabetes related past year total day count	The total duration, in days, of all of the participant's/subject's admissions to hospital for reasons not related to diabetes in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C17832	C17832	Pulmonary function maximum inspiratory pressure (MIP) type	Type of Maximum Inspiratory Pressure (MIP)	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20136	C20136	Mitochondrial disease prior burp specific drink food indicator	Indicator of whether participant's/subject's past burping occurred with specific drinks or food	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20264	C20264	Diabetic ketoacidosis emergency past year count	The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the past 12 months	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12857	C12857	Cardiac MRI myocardial scar segment anatomic site	Anatomic site or segment of the heart where myocardial scarring was observed on the cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F0803-C09601	C09601	Brief Psychiatric Rating Scale (BPRS) - halluncinatory behavior score	The score of the participant's/subject's hallucinatory, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1860-C04509	C04509	ECG PR interval	Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19624	C19624	Head circumference Z score	The number of standard deviations the measured head circimference of the subject/participant is above the mean	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12887	C12887	Echocardiogram left ventricular concentric remodel status	Status of concentric remodeling in the left ventricle	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C17797	C17797	Imaging contrast agent injection rate	Rate of injection, in milliliters per minute (mL/min), of imaging contrast agent used, if any, for the perfusion magnetic resonance imaging (PMRI) scan	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20184	C20184	Mitochondrial disease prior abdominal pain improve text	The free text field to specify about what specifically made the participant's/subject's prior abdominal pain better	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17958	C17958	Cardiovascular Holter exam fastest run tachycardia episode value	Fastest run of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20144	C20144	Mitochondrial disease details swallow problem text	The free text field to specify additional details about participant's/subject's swallowing problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1916-C20273	C20273	Insulin premix current use indicator	The indicator of whether the participant/subject currently uses premix insulin	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C00008	C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1860-C18776	C18776	ECG atrial arrhythmia other text	The free-text field related to 'ECG atrial arrhythmia type' specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F0372-C07091	C07091	Center for Epidemiologic Studies-Depression Scale (CES-D) - bother indicator	Indicates how often the subject felt bothered by things that don't usually bother in in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F1818-C19551	C19551	Biomarker blood plasma specimen assessment type	Type of biomarker(s) assessed from blood serum/plasma samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12895	C12895	Echocardiogram right ventricle systolic internal dimension (RVIDs) measurement	Right ventricular end - systolic internal dimension (RVIDs) measured with echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.