CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 726 - 750 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12911 Echocardiogram systolic pressure estimation type

Technique used to estimate the right ventricular systolic pressure

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C08241 Imaging field of view axis 1 measurement

Axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20013 Short stature diagnosis indicator

The indicator related to being diagnosed for short stature or height

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20111 Mitochondrial disease oral regurgitation symptom consistent day to day indicator

Indicator of whether symptoms of oral regurgitation are consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C16160 Tobacco smoked 100 cigarettes indicator

Indicator for whether participant/subject has smoked at least 100 cigarettes in entire life

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20236 Mitochondrial disease Munchausen by proxy syndrome health care professional setting indicator

Indicator of whether participant/subject has been confronted by a health care professional about Munchausen by proxy syndrome

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01522 Height measurement

Measurement of participant's/subject's height

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20071 Mitochondrial disease prior vomit stop reason

The reason why the participant's/subject's prior vomiting stopped

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19587 Genetic test single gene deletion analysis tissue type

Type of tissue tested in the single gene(s) deletion analysis

Supplemental Genetics Testing Clinical Diagnostics Mitochondrial Disease Mitochondrial Disease
C12502 Imaging anterior commissure type indicator

The condition of the anterior commissure

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C17965 Echocardiogram abnormal result comment text

Free text about echocardiogram results that are not normal

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C10570 Imaging contrast agent used indicator

Indicator as to whether or not an imaging contrast agent was used for the scan

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10172 Forced vital capacity result value

Value representing the Forced Vital Capacity (FVC), in Liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C20119 Mitochondrial disease prior oral regurgitation consistent day to day indicator

Indicator of whether past symptoms of oral regurgitation were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20245 Full term birth indicator

Indicator of whether the participant/subject was born at full term

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C10980 Childbearing potential indicator

Indicator of whether the participant/subject is of childbearing potential

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C07109 Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator

Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C20206 Mitochondrial disease stool blood indicator

Indicator of whether the participant/subject has blood in their stools

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20040 Mitochondrial disease eat reason text

The free text field to specify why participant/subject eats that way

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C10577 Imaging signal averages number

Number of signal acquisitions averaged in imaging acquisition

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C19695 Imaging development malformation cerebellum type

The type of malformations in development in the cerebellum (structure that is located at the back of the brain, underlying the occipital and temporal lobes of the cerebral cortex).

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20166 Mitochondrial disease abdominal pain wake indicator

Indicator of whether participant's/subject's abdominal pain wakes participant/subject from sleep

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12889 Echocardiogram right ventricle fraction shorten measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20295 Hospital admission past year indicator

The indicator of whether the participant/subject was admitted to hospital in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 726 - 750 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.