CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3129-C60114	C60114	Trabecular Bone Score	Score that evaluates pixel gray-level variations in the lumbar spine dual x-ray absorptiometry (DXA) image, providing an indirect measure of bone microarchitecture	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60262	C60262	Genetic study data sample category type other text	The free-text field related to 'Genetic study data sample category type', specifying other text. Type of tissue studied	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20162	C20162	Mitochondrial disease current abdominal pain duration detail text	The free-text field specifying additional details about participant's current abdominal pain duration	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60227	C60227	Clinic assessment type	Type of clinical assessment performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60315	C60315	Mitochondrial disease swallow center feed therapist recommendation type	Type of recommendation the participant received from the feeding and swallowing center or feeding therapist evaluation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20117	C20117	Mitochondrial disease prior oral regurgitation stop age category	Category of the participant's age at the end of prior oral regurgitation episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C17769	C17769	Rater name	Name of rater	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C56407	C56407	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary raw score	The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60122	C60122	Dual X-ray absorptiometry femoral neck areal bone mineral density z score	Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the femoral neck	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19571	C19571	Body mass index category	Categorization of the participant's body mass index	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20170	C20170	Mitochondrial disease prior abdominal pain onset age category	Category of the participant's age at the onset of prior abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60235	C60235	Hepatic panel type	Type of hepatic panel test performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60323	C60323	Mitochondrial disease pancreatitis episodes occur text	The free-text field to specify the amount of time that has elapsed since the participant's episodes have occurred	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20125	C20125	Mitochondrial disease current burp onset age category	Category of the participant's age at the onset of current burping episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54623	C54623	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index 90 percent confidence interval up bound value	Value of the upper bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C56415	C56415	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning T score sum value	The sum of the T scores the subject received on the Perceptual reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60130	C60130	Dual X-ray absorptiometry ultradistal radius areal bone mineral density z score	Z-score of the amount of areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the ultradistal radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C11109	C11109	Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator	Indicator of whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60243	C60243	Biomarker leukocyte assessment type other text	The free-text field related to 'Biomarker leukocyte assessment type', specifying other text. Type of biomarker(s) assessed from leukocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60331	C60331	Mitochondrial disease pancreas insufficiency indicator	Indicator of whether the participant had pancreatic insufficiency	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20133	C20133	Mitochondrial disease prior burp stop text	The free-text field to specify what stopped the participant's past burping	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C18778	C18778	ECG ventricular arrhythmia type other text	The free-text field related to 'ECG ventricular arrhythmia type', specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60291	C60291	Mitochondrial disease swallow difficult frequency type	Type of frequency with which the participant has difficulty swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.