CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 601 - 625 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01522 Height measurement

Measurement of participant's height

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C12173 Dual X-ray absorptiometry scan anatomical site

Site on the body that was scanned for dual X-ray absorptiometry (DXA)

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C20162 Mitochondrial disease current abdominal pain duration detail text

The free-text field specifying additional details about participant's current abdominal pain duration

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60227 Clinic assessment type

Type of clinical assessment performed

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60315 Mitochondrial disease swallow center feed therapist recommendation type

Type of recommendation the participant received from the feeding and swallowing center or feeding therapist evaluation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60344 Wearable exercise technology indicator

Indicator of whether the participant uses wearable exercise technology

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C20117 Mitochondrial disease prior oral regurgitation stop age category

Category of the participant's age at the end of prior oral regurgitation episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60142 Dual X-ray absorptiometry R3 lateral distal femur areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C19571 Body mass index category

Categorization of the participant's body mass index

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C60102 Dual X-ray absorptiometry analysis perform date

Date the dual X-ray absorptiometry (DXA) analysis was performed

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C20170 Mitochondrial disease prior abdominal pain onset age category

Category of the participant's age at the onset of prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60235 Hepatic panel type

Type of hepatic panel test performed

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60323 Mitochondrial disease pancreatitis episodes occur text

The free-text field to specify the amount of time that has elapsed since the participant's episodes have occurred

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20125 Mitochondrial disease current burp onset age category

Category of the participant's age at the onset of current burping episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60110 Dual X-ray absorptiometry lumbar spine areal bone mineral density z score

Z-score of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60258 Organ donation register indicator

Indicator of whether the participant has registered for organ donation

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C17957 Cardiovascular Holter exam premature ventricular contraction count

Count of premature ventricular contractions per 24 hours

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C60243 Biomarker leukocyte assessment type other text

The free-text field related to 'Biomarker leukocyte assessment type', specifying other text. Type of biomarker(s) assessed from leukocytes samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60331 Mitochondrial disease pancreas insufficiency indicator

Indicator of whether the participant had pancreatic insufficiency

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18793 Medical history condition other text

The free-text field related to 'Medical history condition type', specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record

Supplemental Medical History Mitochondrial Disease Mitochondrial Disease
C20133 Mitochondrial disease prior burp stop text

The free-text field to specify what stopped the participant's past burping

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60291 Mitochondrial disease swallow difficult frequency type

Type of frequency with which the participant has difficulty swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20092 Mitochondrial disease migraine family history indicator

Indicator of whether the participant has a family history of migraines

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59742 Bone fracture confirmed medical record indicator

Indicator of whether the participant had their fracture confirmed in medical record

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C09595 Brief Psychiatric Rating Scale (BPRS) - tension score

The score of the participant's/subject's tension, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
Displaying 601 - 625 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.