CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 903

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20201	C20201	Mitochondrial disease bowel movement other frequency text	The free text field to specify the participant's/subject's other stool frequency	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17958	C17958	Cardiovascular Holter exam fastest run tachycardia episode value	Fastest run of tachycardia episodes during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F1871-C19599	C19599	Gene text	The free-text field to specify gene screened in the participant/subject for the disease or disorder	Supplemental	Genetics Testing Clinical Diagnostics	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C10567	C10567	Imaging radio frequency coil type	Type of radio frequency (RF) coil(s) used for the body part scanned	Supplemental	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20161	C20161	Mitochondrial disease abdominal pain interval type	Select the length of time participant/subject has abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C12502	C12502	Imaging anterior commissure type indicator	The condition of the anterior commissure	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19572	C19572	Height pediatric measurement	Measurement of pediatric participant's/subject's height	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C10570	C10570	Imaging contrast agent used indicator	Indicator as to whether or not an imaging contrast agent was used for the scan	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12895	C12895	Echocardiogram right ventricle systolic internal dimension (RVIDs) measurement	Right ventricular end - systolic internal dimension (RVIDs) measured with echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21862	C21862	Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task other trial score	Total number of other experimental trials correct, as part of Brief Test of Adult Cognition by Telephone(BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20091	C20091	Mitochondrial disease migraine history indicator	Indicator of whether participant/subject has a history of migraines	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C10725	C10725	Echocardiogram left ventricle PWTd measurement	Left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1872-C19720	C19720	Dietary supplement administered count	Numerical number of how many times the supplement was taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20051	C20051	Mitochondrial disease present vomit trigger other text	The free text field to specify the other trigger the participant/subject may have had when symptoms began	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20169	C20169	Mitochondrial disease current abdominal pain detail text	The free text field to specify additional details about the participant's/subject's present abdominal pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1870-C12690	C12690	Gene name	Name of the gene analyzed	Supplemental	Genetics Testing Short Form	False	Mitochondrial Disease	Mitochondrial Disease
F1934-C11107	C11107	Pulmonary function peak expiratory flow result value	Value representing the Peak Expiratory Flow (PEF) as a person's maximum speed of expiration	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20129	C20129	Mitchondrial disease burp specific food drink cause text	The free text field to specify which specific foods or drinks cause participant's/subject's burping	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1817-C19608	C19608	Length percentile value	The participant/subject's length percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Mitochondrial Disease	Mitochondrial Disease
F1057-C10933	C10933	Imaging lesion found type	Type of lesions found within the imaging study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F1607-C21894	C21894	Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) last number reached text	Text for last number reached in the Thirty Seconds and Counting Task (30-SACT), as part of Brief Test of Adult Cognition by Telephone (BTACT)	Supplemental	Brief Test of Adult Cognition by Telephone (BTACT)	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20099	C20099	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn wake indicator	Indicator of whether GERD, heartburn, mid-line chest pain, esophageal burning wakes participant/subject from sleep	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C10735	C10735	Echocardiogram left ventricular hypertrophy status	Status of whether the echocardiogram shows that the participant/subject has left ventricular hypertrophy	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F1060-C12901	C12901	Echocardiogram right ventricle end systolic volume measurement	Imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.