CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 903
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20178 Mitochondrial disease prior abdominal pain duration type

Select the length of time participant/subject had past abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20307 Medical office visit not diabetes related past year count

The count of times that the participant/subject was seen by a health care provider at a medical office for reasons not related to diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20138 Mitochondrial disease prior burp detail text

The free text field to specify additional details about participant's/subject's past burping symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20256 Physical activity 20 minute day during week count

The count of days in a typical week on which the participant/subject spends at least 20 minutes doing physical activities or exercise

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20266 Hypoglycemia severe loss consciousness seizure post diabetes diagnosis count

The count of episodes of severe hypoglycemia resulting in loss of consciousness or seizure experienced by the participant/subject in the time since they were diagnosed with diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19579 Weight length infant measurement

Weight/Length measurement for infants less than 24 months

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C19717 Dietary supplement brand formulation name

Name of the brand or formulation subject took

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C18718 Imaging scanner strength value other text

The free-text field related to 'Imaging scanner strength value', specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21867 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task reverse baseline score

Total number correct in reverse baseline condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C12479 Imaging cortex-pachygyria site type

The anatomical site(s) of the cortex-pachygyria

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20186 Mitochondrial disease prior abdominal pain other text

The free text field to specify additional details about the participant's/subject's past abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20146 Mitochondrial disease swallow pain disrupt activity wake type

The type of activity or sleep disrupted by the participant/subject's swallowing pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20275 Insulin injection daily count

The daily count (averaged if not constant) of insulin injections used by the participant/subject

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C18169 Triglycerides value

Triglycerides measured

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C18858 Imaging pons abnormality other text

The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21897 Brief Test of Adult Cognition by Telephone (BTACT) - Total intrusion count

Total Number of intrusions, as a part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C19602 Genetic test mutation clinical category

The category for the type of mutation in clinical setting

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12487 Imaging other cortical abnormality site type

The anatomical site(s) of the other cortical abnormality

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12904 Echocardiogram left ventricular mass measurement

The left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20194 Mitochondrial disease prior bloat abdominal distension onset age category

The category of the participant/subject's age at onset of prior abdominal bloating/distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20154 Mitochondrial disease abdominal pain age start type

Select the pre-specified age of participant/subject when abdominal pain began

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 251 - 275 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.