CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3128-C60037	C60037	Blood pressure diastolic submaximal absolute trial end measurement	Measurement, in millimeters of mercury (mmHg), of the diastolic blood pressure at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19604	C19604	Genetic test nuclear DNA experimental validation type	Type of experimental validation used for the basis of the evaluation of nuclear DNA genetic testing clinical category	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56189	C56189	Rest respiratory rate	Rate of respiration (RR), in breaths per minute, at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59997	C59997	Leg fatigue submaximal absolute trial complete oxygen uptake peak Borg scale ratio value	Value, as a percentage, of the ratio of the scale value of leg fatigue using the Borg Scale at the conclusion of the Submaximal Absolute Trial, to the scale value measured at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C60249	C60249	Laboratory procedure anti-pancreatic autoantibody name	Name of the anti-pancreatic autoantibody measured in the participant's blood	Supplemental-Highly Recommended	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10745	C10745	Echocardiogram early mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (E) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60045	C60045	Gas exhale volume trial recovery start measurement	Measurement of the volume of gas exhaled (VE) at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56237	C56237	Rest carbon dioxide ventilatory equivalent value	Value of the ventilatory equivalent for carbon dioxide at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C17962	C17962	Cardiovascular tricuspid valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the tricuspid valve	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59825	C59825	Auditory brainstem response stimulus type	Type of stimulus used for auditory brainstem response (ABR) testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60269	C60269	Genetic test mitochondrial DNA clinical evaluation type	Type of basis used for the evaluation of the clinical category of mitochondrial DNA (mtDNA) genetic test	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59927	C59927	Oxygen uptake peak measurement	Measurement, in milliliters per minute (mL/min), of peak oxygen uptake (VO2) during the trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60052	C60052	Exercise test date	Date on which the exercise test was performed	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C57113	C57113	Start recovery time	Time of the start of recovery	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11909	C11909	Modified Fatigue Impact Scale (MFIS) - less alert score	Scale for being less alert as part of Modified Fatigue Impact Scale form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59935	C59935	Carbon dioxide output submaximal absolute trial complete oxygen uptake peak ratio value	Value, as a percentage, of the ratio of carbon dioxide output (VCO2) during the Submaximal Absolute Trial to VCO2 at the attainment of peak oxygen uptake	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59895	C59895	Work submaximal absolute trial measurement	Measurement of work, in watts, being expended instantaneously during the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11917	C11917	Modified Fatigue Impact Scale (MFIS) - limit ability activity away from home score	Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59943	C59943	Heart rate oxygen uptake peak measurement	Measurement, in beats per minute (BPM), of the heart rate when peak oxygen uptake (VO2) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59801	C59801	Acoustic reflex decay status	Status of the reflex decay in acoustic reflex testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59903	C59903	Speed oxygen uptake peak measurement	Measurement of instantaneous speed, in revolutions per minute (RPM), when peak oxygen uptake (VO2) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3124-C60347	C60347	Step average daily count	Count of the average number of steps taken by the participant daily	Supplemental-Highly Recommended	Exercise Wearables	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60093	C60093	Imaging arterial spin labeling acquisition type	Type of arterial spin labeling used in imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12788	C12788	Gene exon copy number tested indicator	Indicator of whether the copy number was directly tested for all exons	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11925	C11925	Modified Fatigue Impact Scale (MFIS) - unable complete task physical effort score	Scale for having been less able to complete tasks that require physical effort as part of Modified Fatigue Impact Scale form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.