CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C09346	Hamilton Anxiety Rating Scale (HAM-A) - insomnia score	The score of the participant's/subject's insomnia, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09354	Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score	The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09347	Hamilton Anxiety Rating Scale (HAM-A) - intellectual score	The score of the participant's/subject's intellectual trouble, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Mitochondrial Disease	Mitochondrial Disease
C09355	Hamilton Anxiety Rating Scale (HAM-A) - genitourinary symptom score	The score of the participant's/subject's genitourinary symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09348	Hamilton Anxiety Rating Scale (HAM-A) - depressed mood score	The score of the participant's/subject's depressed mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09356	Hamilton Anxiety Rating Scale (HAM-A) - autonomic symptom score	The score of the participant's/subject's autonomic symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09349	Hamilton Anxiety Rating Scale (HAM-A) - somatic muscular score	The score of the participant's/subject's somatic (muscular) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09357	Hamilton Anxiety Rating Scale (HAM-A) - behavior interview score	The score of the participant's/subject's behavior at interview, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09350	Hamilton Anxiety Rating Scale (HAM-A) - tension score	The score of the participant's/subject's tension, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09351	Hamilton Anxiety Rating Scale (HAM-A) - somatic sensory score	The score of the participant's/subject's somatic (sensory) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09344	Hamilton Anxiety Rating Scale (HAM-A) - anxious mood score	The score of the participant's/subject's anxious mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09352	Hamilton Anxiety Rating Scale (HAM-A) - cardiovascular symptom score	The score of the participant's/subject's cardiovascular symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09345	Hamilton Anxiety Rating Scale (HAM-A) - fear score	The score of the participant's/subject's fears, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C09353	Hamilton Anxiety Rating Scale (HAM-A) - respiratory symptom score	The score of the participant's/subject's respiratory symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental-Highly Recommended	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
C10682	Imaging anatomic site	Type of body part or anatomy scanned in the imaging study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C09308	Apathy Scale (AS) - Goal scale	The scale related to whether or not the subject has goals and plans for the future, as part of the Apathy Scale (AS) form.	Supplemental	Apathy Scale (AS)	True	Mitochondrial Disease	Mitochondrial Disease
C12870	Echocardiogram pulmonic stenosis degree status	Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart	Supplemental	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
C12841	Cardiac MRI ventricle end diastolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac MRI	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
C20146	Mitochondrial disease swallow pain disrupt activity wake type	The type of activity or sleep disrupted by the participant/subject's swallowing pain	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C20275	Insulin injection daily count	The daily count (averaged if not constant) of insulin injections used by the participant/subject	Supplemental	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
C20008	Bone spine abnormal diagnosis indicator	The indicator related to having condition or abnormality of the spine or skeleton.	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
C56381	Conners Continuous Performance Test 3rd Edition (CPT3) ? Inattentiveness commission count	The number of incorrect responses to non-targets, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).	Supplemental	Conners Continuous Performance Test 3rd Edition (Conners CPT 3)	True	Mitochondrial Disease	Mitochondrial Disease
C20106	Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator	Indicator of whether past GERD, heartburn, mid-line chest pain, esophageal burning disrupted activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
C53006	Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution delay percent correct standard score	Score related to the percent correct standard score of the code substitution – delayed composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).	Supplemental	Automated Neuropsychological Assessment Metrics (ANAM)	True	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.