CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1649
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09356 Hamilton Anxiety Rating Scale (HAM-A) - autonomic symptom score

The score of the participant's/subject's autonomic symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09348 Hamilton Anxiety Rating Scale (HAM-A) - depressed mood score

The score of the participant's/subject's depressed mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09357 Hamilton Anxiety Rating Scale (HAM-A) - behavior interview score

The score of the participant's/subject's behavior at interview, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09349 Hamilton Anxiety Rating Scale (HAM-A) - somatic muscular score

The score of the participant's/subject's somatic (muscular) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09350 Hamilton Anxiety Rating Scale (HAM-A) - tension score

The score of the participant's/subject's tension, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09351 Hamilton Anxiety Rating Scale (HAM-A) - somatic sensory score

The score of the participant's/subject's somatic (sensory) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Mitochondrial Disease Mitochondrial Disease
C09352 Hamilton Anxiety Rating Scale (HAM-A) - cardiovascular symptom score

The score of the participant's/subject's cardiovascular symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09344 Hamilton Anxiety Rating Scale (HAM-A) - anxious mood score

The score of the participant's/subject's anxious mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09353 Hamilton Anxiety Rating Scale (HAM-A) - respiratory symptom score

The score of the participant's/subject's respiratory symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09345 Hamilton Anxiety Rating Scale (HAM-A) - fear score

The score of the participant's/subject's fears, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09354 Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score

The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09346 Hamilton Anxiety Rating Scale (HAM-A) - insomnia score

The score of the participant's/subject's insomnia, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09355 Hamilton Anxiety Rating Scale (HAM-A) - genitourinary symptom score

The score of the participant's/subject's genitourinary symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09347 Hamilton Anxiety Rating Scale (HAM-A) - intellectual score

The score of the participant's/subject's intellectual trouble, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C07094 Center for Epidemiologic Studies-Depression Scale (CES-D) - good other people indicator

Indicates how often the subject felt like good as other people in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C11106 Pulmonary function maximal expiratory pressure (MEP) result value

Value, representing the percentage of the predicted normal value of Maximal Expiratory Pressure (MEP) a measure of the strength of respiratory muscles

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C20128 Mitochondrial disease burp occur specific drink food indicator

Indicator of whether participant's/subject's burping occurs with specific drinks or food

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09376 Hamilton Depression Rating Scale (HDRS) - total score

Value of the sum of all scores recorded, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C20256 Physical activity 20 minute day during week count

The count of days in a typical week on which the participant/subject spends at least 20 minutes doing physical activities or exercise

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C16170 Menstrual period occurrence indicator

Indicates whether participant/subject has ever had a menstrual period

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C51999 Child and Adolescent Scale of Participation (CASP) - Social play with family scale

Scale to rate level of participation in social, play or leisure activities with family members at home, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

Supplemental Child and Adolescent Scale of Participation (CASP) Mitochondrial Disease Mitochondrial Disease
C20088 Mitochondrial disease prior vomit trigger other text

The free text field to specify additional details about what triggered the participant's/subject's past vomiting symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C52987 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score match sample correct count

Count related to correct matching to sample composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)

Supplemental Automated Neuropsychological Assessment Metrics (ANAM) Mitochondrial Disease Mitochondrial Disease
C19717 Dietary supplement brand formulation name

Name of the brand or formulation subject took

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.