CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1649
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09346 Hamilton Anxiety Rating Scale (HAM-A) - insomnia score

The score of the participant's/subject's insomnia, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09354 Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score

The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09347 Hamilton Anxiety Rating Scale (HAM-A) - intellectual score

The score of the participant's/subject's intellectual trouble, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Mitochondrial Disease Mitochondrial Disease
C09355 Hamilton Anxiety Rating Scale (HAM-A) - genitourinary symptom score

The score of the participant's/subject's genitourinary symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09348 Hamilton Anxiety Rating Scale (HAM-A) - depressed mood score

The score of the participant's/subject's depressed mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09356 Hamilton Anxiety Rating Scale (HAM-A) - autonomic symptom score

The score of the participant's/subject's autonomic symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09349 Hamilton Anxiety Rating Scale (HAM-A) - somatic muscular score

The score of the participant's/subject's somatic (muscular) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09357 Hamilton Anxiety Rating Scale (HAM-A) - behavior interview score

The score of the participant's/subject's behavior at interview, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09350 Hamilton Anxiety Rating Scale (HAM-A) - tension score

The score of the participant's/subject's tension, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09351 Hamilton Anxiety Rating Scale (HAM-A) - somatic sensory score

The score of the participant's/subject's somatic (sensory) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09344 Hamilton Anxiety Rating Scale (HAM-A) - anxious mood score

The score of the participant's/subject's anxious mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09352 Hamilton Anxiety Rating Scale (HAM-A) - cardiovascular symptom score

The score of the participant's/subject's cardiovascular symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09345 Hamilton Anxiety Rating Scale (HAM-A) - fear score

The score of the participant's/subject's fears, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C09353 Hamilton Anxiety Rating Scale (HAM-A) - respiratory symptom score

The score of the participant's/subject's respiratory symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C10682 Imaging anatomic site

Type of body part or anatomy scanned in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C09308 Apathy Scale (AS) - Goal scale

The scale related to whether or not the subject has goals and plans for the future, as part of the Apathy Scale (AS) form.

Supplemental Apathy Scale (AS) Mitochondrial Disease Mitochondrial Disease
C12870 Echocardiogram pulmonic stenosis degree status

Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12841 Cardiac MRI ventricle end diastolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20146 Mitochondrial disease swallow pain disrupt activity wake type

The type of activity or sleep disrupted by the participant/subject's swallowing pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20275 Insulin injection daily count

The daily count (averaged if not constant) of insulin injections used by the participant/subject

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20008 Bone spine abnormal diagnosis indicator

The indicator related to having condition or abnormality of the spine or skeleton.

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C56381 Conners Continuous Performance Test 3rd Edition (CPT3) ? Inattentiveness commission count

The number of incorrect responses to non-targets, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Supplemental Conners Continuous Performance Test 3rd Edition (Conners CPT 3) Mitochondrial Disease Mitochondrial Disease
C20106 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator

Indicator of whether past GERD, heartburn, mid-line chest pain, esophageal burning disrupted activity

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C53006 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution delay percent correct standard score

Score related to the percent correct standard score of the code substitution – delayed composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

Supplemental Automated Neuropsychological Assessment Metrics (ANAM) Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.