CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 226 - 250 of 1649
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C19600 Genetic test diagnostic laboratory name

Name of diagnostic laboratory for genetic testing.

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C20001 ECG left bundle branch block status

Status of left bundle branch block on the electrocardiogram (EKG) being reported.

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21960 Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale

Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL).

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Mitochondrial Disease Mitochondrial Disease
C12837 Cardiac MRI ventricle systolic function result

Result of the cardiac MRI evaluation of the selected ventricle's systolic function

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21827 Beck Anxiety Inventory (BAI) - Fear die bother scale

Scale that represents how much the participant has been bothered by the fear of dying as part of the Beck Anxiety Inventory (BAI)

Supplemental Beck Anxiety Inventory (BAI) Mitochondrial Disease Mitochondrial Disease
C52978 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score mathematical processing lapses count

Count related to the number of lapses of the mathematical processing composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

Supplemental Automated Neuropsychological Assessment Metrics (ANAM) Mitochondrial Disease Mitochondrial Disease
C50827 Child and Adolescent Scale of Environment (CASE) - Composite score

The total of the current score based item-level scores for a subsection, as part of the Child Adolescent Scale of Environment (CASE).

Supplemental Child and Adolescent Scale of Environment (CASE) Mitochondrial Disease Mitochondrial Disease
C20109 Mitochondrial disease oral regurgitation current prior status

The status, present or prior, of the participant/subject's episodes of oral regurgitation

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C51725 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 10:2 observation text

Text describing the observations made on the subject's sketch for the age norm of 10 years and 2 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C11559 Cambridge Behavioural Inventory Revised (CBI-R) - more day sleep frequency score

Score for frequency over past month of sleeping more by day than before as part of the Cambridge Behavioural Inventory Revised (CBI-R).

Supplemental Cambridge Behavioral Inventory - Revised Mitochondrial Disease Mitochondrial Disease
C51999 Child and Adolescent Scale of Participation (CASP) - Social play with family scale

Scale to rate level of participation in social, play or leisure activities with family members at home, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP).

Supplemental Child and Adolescent Scale of Participation (CASP) Mitochondrial Disease Mitochondrial Disease
C53055 Axon Sports Computerized Cognitive Assessment Tool (CCAT) - Learn anticipation score

Score related to learning task anticipations, as part of the Axon Sports Computerized Cognitive Assessment Tool (CCAT).

Supplemental Axon Sports Computerized Cognitive Assessment Tool (CCAT) Mitochondrial Disease Mitochondrial Disease
C21862 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task other trial score

Total number of other experimental trials correct, as part of Brief Test of Adult Cognition by Telephone(BTACT).

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20069 Mitochondrial disease prior vomit onset age category

The age category of the participant/subject when prior vomiting began

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C11098 Pulmonary function test date and time

Date the pulmonary function test was performed

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C51685 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 2:6 imitate scribble observation text

Text describing the observations made on the subject's imitated sketch for the age norm of 2 years and 6 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) Mitochondrial Disease Mitochondrial Disease
C09370 Hamilton Depression Rating Scale (HDRS) - early night insomnia indicator

Score for the participant/subject's difficulty, if any, with early-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C11508 ALS Depression Inventory-12 (ADI-12) - lost abandoned scale

The participant/subject is rating to what extent they agree that they feel lost and abandoned and don't know how to carry on as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

Supplemental ALS Depression Inventory (ADI-12) Mitochondrial Disease Mitochondrial Disease
C19548 Biomarker Analysis Indicator

Indicator that a biomarker analysis was performed.

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C16163 Hormone therapy name

The name of the hormone therapy taken by the participant/subject

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C19610 Genetic test result date

The date of reporting of the genetic test results.

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C21514 Wechsler Memory Scale IV (WMS-IV) - Logical memory I subtest immediate recall total raw score

Total raw score (Story B + Story C) as part of Wechsler Memory Scale IV (WMS-IV) Logical Memory I Subtest, Immediate Recall

Supplemental Wechsler Memory Scale IV (WMS-IV) Mitochondrial Disease Mitochondrial Disease
C10932 Imaging lesion found indicator

Indicator of whether lesions are found within the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C00035 Gender type

Self-reported gender of the participant/subject.

Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) Mitochondrial Disease Mitochondrial Disease
Displaying 226 - 250 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.