CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C07127 Craig Handicap and Assessment Reporting Technique (CHART-SF) - Living with relatives value

Number of relatives the subject lives with, as part of the Craig Handicap and Assessment Reporting Technique (CHART-SF)

 Supplemental Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version True Mitochondrial Disease Mitochondrial Disease
C20015 Growth hormone treatment indicator

The indicator related to receiving growth hormone.

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C20113 Mitochondrial disease oral regurgitation frequency other text

The free text field to specify frequency of participant's/subject's other oral regurgitation

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C09361 Hamilton Depression Rating Scale (HDRS) - somatic symptoms indicator

Score for the intensity of the participant/subject's somatic gastrointestinal symptoms, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C53014 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score Go-NoGo standard deviation reaction time standard score

Score related to the standard deviation reaction time standard score of the Go-NoGo composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C18241 Diagnosis age type

Type of age of the participant/subject when initially diagnosed with disease/disorder

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20238 Mitochondrial disease Munchausen by proxy syndrome health care professional setting other text

The free text field to provide the other setting when participant/subject confronted by a health care professional about Munchausen by proxy syndrome

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C00008 Age value

Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject.

 Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) True Mitochondrial Disease Mitochondrial Disease
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Mitochondrial Disease Mitochondrial Disease
C20073 Mitochondrial disease prior vomit frequency

The frequency of the participant/subject's prior episodes of vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C21117 Subject name

Name of subject/participant.

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C52970 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score procedural reaction time mean reaction time standard score

Score related to the mean reaction time standard score of the procedural reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C19589 Genetic test whole genome sequence analysis tissue type

Type of tissue tested in the whole genome sequence analysis test.

 Supplemental Genetics Testing Clinical Diagnostics False Mitochondrial Disease Mitochondrial Disease
C13068 American National Adult Reading Test (AmNART) - pronounce depot indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "depot"

 Supplemental American National Adult Reading Test (AmNART) True Mitochondrial Disease Mitochondrial Disease
C21848 Beck Anxiety Inventory (BAI) - Hot cold sweat bother scale

Scale that represents how much the participant has been bothered by hot/cold sweats as part of the Beck Anxiety Inventory (BAI)

 Supplemental Beck Anxiety Inventory (BAI) True Mitochondrial Disease Mitochondrial Disease
C19613 Length Z score

The number of standard deviations the measured length of the subject/participant is above the mean.

 Supplemental Vital Signs False Mitochondrial Disease Mitochondrial Disease
C12479 Imaging cortex-pachygyria site type

The anatomical site(s) of the cortex-pachygyria

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C21117 Subject name

Name of subject/participant.

 Supplemental Children's Depression Inventory - 2 (CDI-2) True Mitochondrial Disease Mitochondrial Disease
C12896 Echocardiogram left ventricle end diastolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole.

 Supplemental Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C09605 Brief Psychiatric Rating Scale (BPRS) - blunted affect score

The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Mitochondrial Disease Mitochondrial Disease
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C07135 Craig Handicap and Assessment Reporting Technique (CHART-SF) - Mobility Score

Total mobility score (0-100)

 Supplemental Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version True Mitochondrial Disease Mitochondrial Disease
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath.

 Supplemental Pulmonary Function False Mitochondrial Disease Mitochondrial Disease
C20121 Mitochondrial disease prior oral regurgitation frequency other text

The free text field to specify past frequency of participant's/subject's other oral regurgitation

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C09369 Hamilton Depression Rating Scale (HDRS) - suicide indicator

Score for the presence, qualities, and strength of the participant/subject's suicide-relevant thoughts and actions , if any, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
Displaying 201 - 225 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.