CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 903
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C07107 Center for Epidemiologic Studies-Depression Scale (CES-D) - crying spell indicator

Indicates how often the subject had crying spells in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C09363 Hamilton Depression Rating Scale (HDRS) - genital symptoms indicator

Score for the intensity of the participant/subject's genital symptoms such as loss of libido or menstrual disturbances, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C20204 Mitochondrial disease bowel movement problem onset age category

The category of the participant/subject's age at onset of bowel movement problems

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20038 Mitochondrial disease eat type

Select the type of ways that participant/subject eats

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C10570 Imaging contrast agent used indicator

Indicator as to whether or not an imaging contrast agent was used for the scan

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C19693 Imaging brainstem finding type

The finding related to imaging of the brainstem

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20164 Mitochondrial disease abdominal pain trigger detail text

The free text field to specify additional details about participant's/subject's abdominal pain triggers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12887 Echocardiogram left ventricular concentric remodel status

Status of concentric remodeling in the left ventricle

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20293 Urgent care clinic use other diabetes related past year count

The count of the times the participant/subject used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19564 Biomarker muscle biochemistry assessment type

Type of biomarker(s) assessed from muscle biochemistry

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12847 Cardiac MRI left ventricle mass index value

Value of the left ventricle mass as obtained by cardiac MRI divided by the participant/subject's body surface area in square meters

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C17958 Cardiovascular Holter exam fastest run tachycardia episode value

Fastest run of tachycardia episodes during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C09593 Brief Psychiatric Rating Scale (BPRS) - conceptual disorganization score

The score of the participant's/subject's conceptual disorganization, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C12477 Imaging other incidental finding type

The type of other incidental findings found within the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C16176 Hormone therapy indicator

Indicates whether participant/subject has taken hormonal therapy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20094 Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn current prior status

The status present or prior GERD, heartburn, mid-line chest pain, esophageal burning symptoms experienced by the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18147 LDL cholesterol value

LDL cholesterol measured

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20219 Mitochondrial disease alternative medicine treat GI problem indicator

Indicator of whether the participant/subject has tried to treat GI problems with alternative medicine

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18856 Imaging ventricle abnormality other text

The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21895 Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) total score

Total number of digits produced score, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20054 Mitochondrial disease vomit frequency other text

The free text field to specify how often the participant/subject vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19600 Genetic test diagnostic laboratory name

Name of diagnostic laboratory for genetic testing

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12485 Imaging other cortical abnormality indicator

Indicator of whether other cortical abnormalities of the brain are present

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12902 Echocardiogram left ventricle end systolic volume index value

Calculated from end systolic volume over body surface area - left ventricle

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20004 Hypoglycemia diagnosis type

The type related to having concern or diagnosis of hypoglycemia or low blood sugar

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
Displaying 201 - 225 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.