CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10729 Echocardiogram left atrial antero - posterior dimension measurement

Measurements of the dimensions of the left atrial antero - posterior measured by the echocardiogram

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20264 Diabetic ketoacidosis emergency past year count

The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant/subject in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19617 Height Z score

The number of standard deviations the measured height of the subject/participant is above the mean

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C09605 Brief Psychiatric Rating Scale (BPRS) - blunted affect score

The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20184 Mitochondrial disease prior abdominal pain improve text

The free text field to specify about what specifically made the participant's/subject's prior abdominal pain better

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C04510 ECG QRS duration

Duration in milliseconds (msec) of the QRS complex for the electrocardiogram (EKG) being recorded

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C20144 Mitochondrial disease details swallow problem text

The free text field to specify additional details about participant's/subject's swallowing problems

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C10743 Echocardiogram degree of tricuspid regurgitation status

Assessment with echocardiography of whether there is the failure of the heart's tricuspid valve to close properly during systole

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20273 Insulin premix current use indicator

The indicator of whether the participant/subject currently uses premix insulin

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19625 Head circumference standard infant use type

Indicate whether WHO or CDC growth charts were used in head circumference Z-score calculation

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C12916 Cardiovascular Holter exam stop date time

Date (and time, if applicable and known) the Holter examination of the participant/subject stopped

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C07095 Center for Epidemiologic Studies-Depression Scale (CES-D) - trouble keeping mind indicator

Indicates how often the subject had trouble keeping mind on what the he/she was doing in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C20192 Mitochondrial disease swallow air indicator

Indicator of whether participant/subject are air swallowers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18777 ECG heart rhythm result other text

The free-text field related to 'ECG heart rhythm result type' specifying other text. Type of heart rhythm apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C20152 Mitochondrial disease esophagus diagnosis ever type

The type of esophageal disorder with which the participant/subject has ever been diagnosed

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12864 Echocardiogram left atrial dimension measurement

Dimension of the left atrium measured with echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20281 Emergency room use other diabetes related past year count

The count of the times the participant/subject used the emergency room for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19552 Blood specimen lactate measurement status

The status related to lactate level measured from the specimen's blood serum/plasma sample

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12931 Cardiovascular Holter exam premature ventricular contractions percentage value

Percent of premature ventricular contractions the participant/subject experienced during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C07103 Center for Epidemiologic Studies-Depression Scale (CES-D) - talk less indicator

Indicates how often the subject talked less than usual in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C09359 Hamilton Depression Rating Scale (HDRS) - anxiety psychic difficulty indicator

Score for the participant/subject's degree of psychic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C20200 Mitochondrial disease bowel movement frequency type

Select the participant's/subject's bowel movement frequency

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20034 Mitochondrial disease person relationship category

The type of relationship of participant/subject to family member with mitochondrial disease

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 176 - 200 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.