CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1726 - 1750 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59900 Work oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured work (in watts) being generated to the predicted work (in watts)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12785 Gene variant mutation detected result type

Type of gene variant or mutation detected

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C11922 Modified Fatigue Impact Scale (MFIS) - physical uncomfort score

Scale for having been physically uncomfortable as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C59948 Oxygen uptake heart rate ventilatory anaerobic threshold ratio value

Value of the ratio of oxygen uptake (VO2), in milliliters (mL), to the heart rate, in beats per minute (BPM), when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59908 Tidal volume body temperature pressure saturate submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the body temperature, pressure, saturated tidal volume ((in liters) (Vt BTPS (L)) during the Submaximal Absolute Trial to the Vt BTPS (L) at the time oxygen uptake (VO2) peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60085 Imaging preload contrast agent previous injection dose value

Value of the dosage of the preload contrast agent previously injection

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12795 Gene coding region sequenced indicator

Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C11930 Modified Fatigue Impact Scale (MFIS) - physical sub score

Sum of MFIS Physical items (range: 0-36)

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C07098 Center for Epidemiologic Studies-Depression Scale (CES-D) - hopeful future indicator

Indicates how often the subject felt hopefully about the future in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C59956 Carbon dioxide ventilatory equivalent oxygen uptake peak predict value

Value of the predicted ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) for peak oxygen uptake (VO2) attainment

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12905 Echocardiogram left ventricular mass index measurement

Measurement of the left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume multiplied by an estimate of the myocardial density, corrected for body surface area obtained by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C59916 Gas exhale volume oxygen uptake peak predict value

Value predicted, in liters per minute (L/min), of the volume of gas exhaled (VE) at attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C17828 Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - trouble maintaining long physical effort scale

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C19724 Laboratory procedure fasting glucose measurement

Measurement of the amount of glucose in the participant's blood when fasting

Supplemental-Highly Recommended Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C59964 Oxygen ventilatory equivalent oxygen uptake peak measure predict ratio value

Value at peak oxygen uptake (VO2), as a percentage, of the ratio of (1) the measured ratio of the volume of gas exhaled (VE) to VO2, to (2) the predicted ratio of VE to VO2

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12913 Echocardiogram study quality type

Type of quality of the echocardiogram study

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C59924 Oxygen uptake unit mass peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of measured peak VO2 per kilogram to predicted peak VO2 per kilogram

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60183 Imaging metabolite level category

Category of the imaging metabolite levels

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C60049 Blood pressure systolic trial recovery start measurement

Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the beginning of the trial recovery period

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C12872 Echocardiogram mitral valve stenosis degree status

Status of the degree of mitral valve stenosis as assessed by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental-Highly Recommended Magnetic Resonance Spectroscopy (MRS) Mitochondrial Disease Mitochondrial Disease
C60019 Tidal volume body temperature pressure saturate trial other timepoint measurement

Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the specified timepoint during the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C17891 Gene additional variants unknown significance text

The free-text field about additional variants in other genes of unknown significance

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59979 Blood pressure diastolic oxygen uptake peak measurement

Measurement, in millimeters of mercury (mmHg), of diastolic blood pressure (BP) at the attainment of peak oxygen uptake (VO2)

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
Displaying 1726 - 1750 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.