CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1501 - 1525 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19605 Genetic test mitochondrial DNA variant mutation quantitative analysis evaluation method type

Type of evaluation method in quantitative analysis for mitochondrial DNA variant or mutation

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C07100 Center for Epidemiologic Studies-Depression Scale (CES-D) - fearful indicator

Indicates how often the subject felt fearful in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C56195 Rest ventilation body temperature and pressure saturated measurement

Measurement in liters per minute (L/min) of the volume of at BTPS (body temperature, pressure, saturated) gas exhaled at rest

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59998 Work trial start measurement

Measurement of work, in watts, generated at the beginning of the exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10746 Echocardiogram late mitral inflow velocity measurement

Measurement of the diastolic pressure difference between the left ventricle and left atrium (A) obtained by echocardiography

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C17963 Cardiovascular mitral valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve

Supplemental-Highly Recommended Echocardiogram Mitochondrial Disease Mitochondrial Disease
C59826 Auditory brainstem response stimulus level measurement

Measurement of the stimulus used for auditory brainstem response (ABR) testing

Supplemental-Highly Recommended Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60270 Genetic test mitochondrial DNA experimental validation type

Type of experimental validation used for the basis of the evaluation of mitochondrial DNA (mtDNA) genetic testing clinical category

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59928 Oxygen uptake peak predict value

Value predicted, in milliliters per minute (mL/min), of peak oxygen uptake (VO2) during the trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60053 Participant subjective status trial 1 end text

The free-text field capturing the participant's description of how they felt at the conclusion of the first exercise trial

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C57114 Rest time count

Count of the time (in minutes) taken at rest

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C04511 ECG QT interval

Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded

Supplemental-Highly Recommended Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C11910 Modified Fatigue Impact Scale (MFIS) - difficulty pay attention long period score

Scale for having difficulty paying attention for long periods of time as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C59936 Carbon dioxide output oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake of measured carbon dioxide output (VCO2) to the predicted VCO2

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59896 Work ventilatory anaerobic threshold measurement

Measurement of work, in watts, being expended instantaneously when the ventilatory anaerobic threshold (VAT) was attained

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C11918 Modified Fatigue Impact Scale (MFIS) - trouble maintain physical effort long time score

Scale for having had trouble maintaining physical effort for long periods as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C59944 Heart rate oxygen uptake peak predict value

Value predicted, in beats per minute (BPM), of the heart rate for peak oxygen uptake (VO2) attainment

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C59904 Speed submaximal absolute trial complete oxygen uptake peak ratio value

Value, as a percentage, of the ratio of the speed (in revolutions per minute, RPM) during the Submaximal Absolute Trial to the instantaneous speed (in RPM) at the time oxygen uptake (VO2) peaked

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
C60348 Vigorous activity average duration

Duration of average time the participant spent in vigorous activity

Supplemental-Highly Recommended Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60094 Imaging arterial spin labeling phase type

Type of arterial spin labeling phase used in imaging

Supplemental-Highly Recommended Brain Perfusion Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12789 Gene deletions duplications limits clearly defined indicator

Indicator of whether the limits of deletions and duplications are defined

Supplemental-Highly Recommended Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C11926 Modified Fatigue Impact Scale (MFIS) - think slow down score

Scale for slowed down thinking as part of Modified Fatigue Impact Scale form

Supplemental-Highly Recommended Modified Fatigue Impact Scale (MFIS) Mitochondrial Disease Mitochondrial Disease
C07107 Center for Epidemiologic Studies-Depression Scale (CES-D) - crying spell indicator

Indicates how often the subject had crying spells in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
C59952 Oxygen uptake heart rate oxygen uptake peak measure predict ratio value

Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of (1) the measured ratio of VO2, in milliliters (mL), to the heart rate, in beats per minute (BPM), to (2) the predicted ratio of VO2 to the heart rate

Supplemental-Highly Recommended Staged Exercise Tolerance Test Mitochondrial Disease Mitochondrial Disease
Displaying 1501 - 1525 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.