CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1501 - 1525 of 1834

« first
‹ previous
…
57
58
59
60
61
62
63
64
65
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3137-C12888	C12888	Echocardiogram right ventricle ejection fraction measurement	Measurement of the fraction of blood pumped out of the right ventricles with each heart beat obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C15559	C15559	Imaging metabolite type	Type of imaging metabolite measured	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60024	C60024	Perceived exertion trial other timepoint Borg scale	Scale value of perceived exertion (PE) using the Borg Scale at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C18874	C18874	Gene variant mutation category other text	The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59984	C59984	Rate pressure product oxygen uptake peak measure value	Measured value of the Rate Pressure Product at the attainment of peak oxygen uptake (VO2), calculated as the product of the systolic blood pressure (in millimeters of mercury, mmHg) multiplied by the heart rate (in beats per minute, BPM), which quantity is then divided by 100	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59841	C59841	Ocular motor assessment horizontal status	Status of the participant's horizontal eye movement during ocular motor assessment	Supplemental-Highly Recommended	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59946	C59946	Heart rate oxygen uptake peak measure predict ratio value	Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of the measured heart rate, in beats per minute (BPM), to the predicted heart rate	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59906	C59906	Tidal volume body temperature pressure saturate ventilatory anaerobic threshold measurement	Measurement of body temperature, pressure, saturated tidal volume, in liters (Vt BTPS (L)), when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C60096	C60096	Imaging arterial spin labeling multiphase type phase count	Count of the number of arterial spin labeling phases in multiphase imaging acquisition	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12791	C12791	Gene exon last deleted duplicated name	Name of the exon last deleted or duplicated	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C11928	C11928	Modified Fatigue Impact Scale (MFIS) - limit physical activity score	Scale for having limited physical activities as part of Modified Fatigue Impact Scale form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F1191-C07109	C07109	Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator	Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59954	C59954	Carbon dioxide ventilatory equivalent ventilatory anaerobic threshold value	Value of the ratio of the volume of gas exhaled (VE) to the carbon dioxide output (VCO2) when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12903	C12903	Echocardiogram right ventricle end systolic volume index measurement	Measurement calculated from end systolic volume over body surface area for the right ventricle obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59914	C59914	Gas exhale volume ventilatory anaerobic threshold measurement	Measurement, in liters per minute (L/min), of the volume of gas exhaled (VE) when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3138-C17826	C17826	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale	Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental-Highly Recommended	Modified Fatigue Impact Scale (MFIS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59962	C59962	Oxygen ventilatory equivalent oxygen uptake peak predict value	Value of the predicted ratio of the volume of gas exhaled (VE) to oxygen uptake (VO2) when peak VO2 was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12911	C12911	Echocardiogram right ventricle systolic pressure estimation type	Type of technique used to estimate the right ventricular systolic pressure	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60264	C60264	Genetic test mitochondrial DNA variant mutation quantitative analysis heteroplasmy level type other text	The free-text field related to 'Genetic test mitochondrial DNA variant or mutation quantitative analysis heteroplasmy level type', specifying other text. Type of heteroplasmy level for quantitative analyses	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59922	C59922	Oxygen uptake peak predict unit mass value	Value predicted, in milliliters per kilogram per minute (mL/kg/min), of peak oxygen uptake (VO2) during the trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60181	C60181	Imaging metabolite absolute quantification procedure indicator	Indicator of whether absolute metabolite quantification imaging procedure was performed	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60047	C60047	Respiration rate trial recovery start measurement	Measurement, in breaths per minute (br/min), of the respiratory rate at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C17965	C17965	Echocardiogram abnormal result comment text	Free text about echocardiogram results that are not normal	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C10172	C10172	Forced vital capacity result value	Value of the Forced Vital Capacity (FVC), in liters, as the maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation	Supplemental-Highly Recommended	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59930	C59930	Oxygen uptake peak measure predict ratio value	Value, as a percentage, of the ratio at peak oxygen uptake (VO2) of measured peak VO2 to predicted peak VO2	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 1501 - 1525 of 1834

« first
‹ previous
…
57
58
59
60
61
62
63
64
65
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.