CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09368 Hamilton Depression Rating Scale (HDRS) - guilty mind indicator

Score for the presence, qualities, and strength of the participant/subject's guilty feelings, if any, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C20246 Birth premature week early count

The count of weeks early that the participant/subject was born prematurely

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C10981 Birth control method type

The female participant's/subject's method of birth control

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C51985 Child and Adolescent Scale of Participation (CASP) - Neighborhood activity scale

Scale to rate level of participation in structured events and activities in the neighborhood and community, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP)

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C20080 Mitochondrial disease prior vomit bright green yellow indicator

Indicator of whether participant's/subject's past vomit was bright green or yellow

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C51675 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - Child mark type

The type of marks made by the subject, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C52978 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score mathematical processing lapses count

Count related to the number of lapses of the mathematical processing composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C19596 Genetic test methylation analysis tissue type

Type of tissue tested in the methylated analysis test for genetics

 Supplemental Genetics Testing Clinical Diagnostics False Mitochondrial Disease Mitochondrial Disease
C13075 American National Adult Reading Test (AmNART) - pronounce placebo indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "placebo"

 Supplemental American National Adult Reading Test (AmNART) True Mitochondrial Disease Mitochondrial Disease
C21859 Beck Anxiety Inventory (BAI) - Total score

Total score as part of the Beck Anxiety Inventory (BAI)

 Supplemental Beck Anxiety Inventory (BAI) True Mitochondrial Disease Mitochondrial Disease
C19622 BMI standard infant use type

Indicate whether WHO or CDC growth charts were used in BMI Z-score calculation

 Supplemental Vital Signs False Mitochondrial Disease Mitochondrial Disease
C20207 Mitochondrial disease stool blood color category

The category of color of blood in participant's/subject's stool

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20041 Mitochondrial disease liquid diet text

The free text field to specify the type of liquid diet used by participant/subject

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C19696 Imaging development malformation polymicrogyria anatomic site

The type of malformations in developmen in the polymicrogyria (an excessive number of small convolutions (gyri) on the surface of the brain)

 Supplemental Imaging - Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20167 Mitochondrial disease abdominal pain improve text

The free text field to specify about what specifically makes the participant's/subject's abdominal pain better

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C07136 Craig Handicap and Assessment Reporting Technique (CHART-SF) -Occupation Score

Total occupation score (0-100)

 Supplemental Craig Handicap and Assessment Reporting Technique (CHART-SF) - Paper version True Mitochondrial Disease Mitochondrial Disease
C20296 Hospital admission past year count

The count of times the participant/subject was admitted to hospital in the past 12 months

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C50432 Child and Adolescent Scale of Environment (CASE) - School work attitude towards child problem indicator

The indicator relating to there being a problem with other people's attitudes towards the child at school or work, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE)

 Supplemental Child and Adolescent Scale of Environment (CASE) True Mitochondrial Disease Mitochondrial Disease
C04509 ECG PR interval

Interval in milliseconds (msec) from the start of the P wave to the start of the QRS complex (PR interval) for the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False Mitochondrial Disease Mitochondrial Disease
C10741 Echocardiogram degree of aortic regurgitation status

Assessment with echocardiography of whether there is leaking of the aortic valve of the heart that causes blood to flow in the reverse direction during ventricular diastole, from the aorta into the left ventricle

 Supplemental Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C51722 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 9:6 score

The score the subject received on the sketch for the age norm of 9 years and 6 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C53090 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score simple reaction time repeat incorrect count

Count related to the repeat incorrect simple reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM)

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C13219 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - moved item scale

Compared with 10 years ago how is this person at remembering where to find things which have been put in a different place from usual

 Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) True Mitochondrial Disease Mitochondrial Disease
C54607 Brief Test of Executive Function Second Edition (BRIEF 2) - Self monitor total raw scale score

Total score of the raw scale for the self monitor function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

 Supplemental Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2) True Mitochondrial Disease Mitochondrial Disease
C11560 Cambridge Behavioural Inventory Revised (CBI-R) - rigid fixed idea opinion frequency score

Score for frequency over past month of being rigid and fixed in her/his ideas and opinions as part of the Cambridge Behavioural Inventory Revised (CBI-R)

 Supplemental Cambridge Behavioral Inventory - Revised True Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.