CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20254 Family history high cholesterol parent type

The type of the participant's/subject's parent with a history of high cholesterol

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C16168 Pregnancy self or spouse number

Number of each pregnancy of participant/subject or participant/subject's partner

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C19575 Length measurement infant measurement

Length measurement taken for infants less than 24 months

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20086 Mitochondrial disease prior pain abdominal before vomit indicator

Indicator of whether participant/subject experienced abdominal pain before vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09370 Hamilton Depression Rating Scale (HDRS) - early night insomnia indicator

Score for the participant/subject's difficulty, if any, with early-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C19715 Dietary supplement generic name

Generic name for the supplement taken

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C20211 Mitochondrial disease prior bowel movement other treatment text

Indicate whether participant/subject used other treatments for bowel movements in the past

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18715 Imaging radio frequency coil other text

The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21863 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task question type

Type of questions asked in the Stop And Go Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C12477 Imaging other incidental finding type

The type of other incidental findings found within the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Mitochondrial Disease Mitochondrial Disease
C20133 Mitochondrial disease prior burp stopped specific text

The free text field to specify when participant's/subject's past burping stopped

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10726 Echocardiogram left ventricle IVSTd measurement

Left ventricular end - diastolic septal thickness (IVSTd) measured with echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20261 Hypoglycemia severe loss of consciousness seizure post diabetes diagnosis indicator

The indicator of whether the participant/subject has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C09602 Brief Psychiatric Rating Scale (BPRS) - motor retardation score

The score of the participant's/subject's motor retardation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C10842 Imaging analysis software name

Name of the software used for data processing or analysis of the imaging study

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20181 Mitochondrial disease prior abdominal pain trigger text

The free text field to specify additional details about participant's/subject's past abdominal pain triggers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C04506 ECG right ventricular hypertrophy status

Status of right ventricular hypertrophy on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C20141 Mitochondrial disease swallow problem occur liquid solid type

The type of consistency with which the participant/subject has problems swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C10740 Echocardiogram left ventricle ejection fraction measurement

Fraction of blood pumped out of the left ventricles with each heart beat measured with echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20270 Insulin basal total daily unit count

The daily total of basal or long acting insulin used by the participant/subject, in units

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19622 BMI standard infant use type

Indicate whether WHO or CDC growth charts were used in BMI Z-score calculation

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C10875 Holter exam minimum heart rate

Minimum heart rate measured during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C07092 Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator

Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.