CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1649
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20114 Mitochondrial disease oral regurgitation occurrence timing type

The type of timing of the participant/subject's episodes of oral regurgitation with respect to meals

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C09362 Hamilton Depression Rating Scale (HDRS) - general somatic symptoms indicator

Score for the intensity of the participant/subject's general somatic symptoms, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C53015 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score Go-NoGo hits score

Score related to the hits score of the Go-NoGo composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C19670 Family history diagnosis age indicator

Indicator for whether the participant/subject knows the age of the relative when diagnosed

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20239 Mitochondrial disease other comment text

The free text field to provide additional information

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C11505 ALS Depression Inventory-12 (ADI-12) - lost interest family friends scale

The participant/subject is rating to what extent they agree that they have lost all interest in their family and friends as part of the ALS Depression Inventory-12 (ADI-12) questionnaire

 Supplemental ALS Depression Inventory (ADI-12) True Mitochondrial Disease Mitochondrial Disease
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

 Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) True Mitochondrial Disease Mitochondrial Disease
C20074 Mitochondrial disease vomit time period frequency other text

The free text field to specify how often the participant/subject vomited in the past

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C50680 Examiner name

The name of the person performing the exam.

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C52971 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score procedural reaction time percent correct score

Score related to the percent correct score of the procedural reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C19590 Genetic test mitochondrial DNA panel tissue type

Type of tissue tested in the mtDNA panel test.

 Supplemental Genetics Testing Clinical Diagnostics False Mitochondrial Disease Mitochondrial Disease
C13069 American National Adult Reading Test (AmNART) - pronounce nausea indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "nausea".

 Supplemental American National Adult Reading Test (AmNART) True Mitochondrial Disease Mitochondrial Disease
C21850 Beck Anxiety Inventory (BAI) - Indigestion bother scale

Scale that represents how much the participant has been bothered by indigestion as part of the Beck Anxiety Inventory (BAI)

 Supplemental Beck Anxiety Inventory (BAI) True Mitochondrial Disease Mitochondrial Disease
C20201 Mitochondrial disease bowel movement other frequency text

The free text field to specify the participant's/subject's other stool frequency

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20035 Height maternal measurement

Measurement of participant's/subject's Mother's height

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C10567 Imaging radio frequency coil type

Type of radio frequency (RF) coil(s) used for the body part scanned

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Mitochondrial Disease Mitochondrial Disease
C19690 Imaging white matter anatomic site

The anatomic site in the white matter cerebrum imaging.

 Supplemental Imaging - Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20161 Mitochondrial disease abdominal pain interval type

Select the length of time participant/subject has abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C07099 Center for Epidemiologic Studies-Depression Scale (CES-D) - life failure indicator

Indicates how often the subject felt that life had been a failure in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D).

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Mitochondrial Disease Mitochondrial Disease
C21924 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest total raw score

Total raw score, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

 Supplemental Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) True Mitochondrial Disease Mitochondrial Disease
C07128 Craig Handicap and Assessment Reporting Technique (CHART-SF) - Business associate visit month value

Number of business or organizational associates the subject visits per month, as part of the Craig Handicap and Assessment Reporting Technique (CHART-SF)

 Supplemental Craig Handicap and Assessment Reporting Technique (CHART-SF) - Paper version True Mitochondrial Disease Mitochondrial Disease
C20290 Urgent care clinic use past year count

The count of the times the participant/subject used an after-hours or urgent care clinic other than the emergency room in the past 12 months.

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C08524 36-item Short Form Health Survey (SF-36) - Times nervous score

Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Mitochondrial Disease Mitochondrial Disease
C50426 Child and Adolescent Scale of Environment (CASE) - Home design layout problem indicator

The indicator relating to the child having a problem with the design or layout of his/her home, as part of the Child Adolescent Scale of Environment (CASE)

 Supplemental Child and Adolescent Scale of Environment (CASE) True Mitochondrial Disease Mitochondrial Disease
C04502 ECG global result type

Result in qualitative terms of the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False Mitochondrial Disease Mitochondrial Disease
Displaying 151 - 175 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.