CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20189	C20189	Mitochondrial disease current bloat abdominal distension onset age category	Category of the participant's age at the onset of current abdominal bloating/distension	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12919	C12919	Cardiovascular Holter exam atrial dysrhythmia type	Type of atrial dysrhythmia detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F0806-C09354	C09354	Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score	The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
F3122-C01705	C01705	Lab test name	Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental	Labs of Bone Mineral Metabolism	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20238	C20238	Mitochondrial disease Munchausen by proxy syndrome health care professional setting other text	The free-text field related to 'Mitochondrial disease Munchausen by proxy syndrome health care professional setting type', specifying other text. Type of setting the participant was in when a health care professional raised a concern about Munchausen by proxy syndrome	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20066	C20066	Mitochondrial disease current vomit abdominal pain before indicator	Indicator of whether the participant experiences abdominal pain before current episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C60343	C60343	Subscapular skinfold thickness value	Value of the subscapular skinfold (under the lowest point of the shoulder blade) thickness measurement	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3087-C59712	C59712	Post-menopausal cause type other text	The free-text field related to "Post-menopausal cause type", specifying other text. Type of cause or reason for the post-menopausal period in the participant	Supplemental	Reproductive and Hormonal History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20197	C20197	Mitochondrial disease prior bloat abdominal distension worse time type	Type, as time of day, at which prior abdominal bloating/distension was worse for the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12936	C12936	Cardiovascular Holter exam symptomatic arrhythmia indicator	Indicator of whether the participant was symptomatic during the arrhythmias detected during the Holter examination	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C19717	C19717	Dietary supplement brand formulation name	Name of the dietary supplement brand or formulation taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12840	C12840	Cardiac MRI ventricle end systolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04500	C04500	ECG atrial arrhythmia type	Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60273	C60273	Mitochondrial disease infant formula choose reason text	The free-text field to specify the reason an infant formula was chosen	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20074	C20074	Mitochondrial disease prior vomit frequency type other text	The free-text field related to 'Mitochondrial disease prior vomit frequency type', specifying other text. Type of frequency of with which the participant had prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59722	C59722	Medication depo-provera current indicator	Indicator of whether the participant is currently taking Depo-Provera (injectable medroxyprogesterone)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20205	C20205	Mitochondrial disease bowel movement strain pass indicator	Indicator of whether the participant has to strain to pass a bowel movement	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20032	C20032	Mitochondrial disease nuclear variant text	The free-text field to specify the mitochondrial disease nuclear DNA variant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59698	C59698	Dietary supplement dose unit of measure	Unit of measure for the dose of the dietary supplement the participant is taking	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F1056-C12848	C12848	Cardiac MRI left ventricle non-compaction result status	Status of the result of the evaluation of the left ventricle for non-compaction as observed by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59081	C59081	Biological sample allow share consent form indicator	Indicates whether the participant's provided signed informed consent form for the biological sample collection and storage in a repository allows for sharing of the sample	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F0803-C09594	C09594	Brief Psychiatric Rating Scale (BPRS) - guilt feeling score	The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Supplemental	Brief Psychiatric Rating Scale (BPRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C15520	C15520	Genetic testing performed indicator	Indicator of whether the participant had genetic testing performed	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60281	C60281	Mitochondrial disease abdominal migraine diagnosis indicator	Indicator of whether the participant has an abdominal migraine diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20082	C20082	Mitochondrial disease prior vomit blood indicator	Indicator of whether the participant had ever vomited blood	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.