CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 126 - 150 of 1649
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C12870 Echocardiogram pulmonic stenosis degree status

Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20146 Mitochondrial disease swallow pain disrupt activity wake type

The type of activity or sleep disrupted by the participant/subject's swallowing pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20275 Insulin injection daily count

The daily count (averaged if not constant) of insulin injections used by the participant/subject

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20008 Bone spine abnormal diagnosis indicator

The indicator related to having condition or abnormality of the spine or skeleton.

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C11548 Cambridge Behavioural Inventory Revised (CBI-R) - sad depressed frequency score

Score for frequency over past month of appearing sad or depressed as part of the Cambridge Behavioural Inventory Revised (CBI-R).

Supplemental Cambridge Behavioral Inventory - Revised Mitochondrial Disease Mitochondrial Disease
C56381 Conners Continuous Performance Test 3rd Edition (CPT3) ? Inattentiveness commission count

The number of incorrect responses to non-targets, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Supplemental Conners Continuous Performance Test 3rd Edition (Conners CPT 3) Mitochondrial Disease Mitochondrial Disease
C20106 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator

Indicator of whether past GERD, heartburn, mid-line chest pain, esophageal burning disrupted activity

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C53006 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution delay percent correct standard score

Score related to the percent correct standard score of the code substitution – delayed composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

Supplemental Automated Neuropsychological Assessment Metrics (ANAM) Mitochondrial Disease Mitochondrial Disease
C00311 Birth weight report value

Birth weight according to the participant's/subject's medical report or reported by the parent or legal guardian

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20231 Mitochondrial disease GI symptom result diagnosis text

The free text field to provide the GI symptoms that lead to a Mitochondrial disease diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09955 World Health Organization Quality of Life (WHOQOL-BREF) - negative feeling scale

Scale used to assess how often the participant experiences negative feelings, such as blue mood, despair, anxiety, depression, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) Mitochondrial Disease Mitochondrial Disease
C21959 Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale

Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL).

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Mitochondrial Disease Mitochondrial Disease
C19569 Biomarker genetic assessment type

The types of genetic biomarker from the speciment that were evaluated.

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20066 Mitochondrial disease vomit prior abdominal pain indicator

Indicator of whether participant/subject experiences abdominal pain before vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C54580 Children?s Depression Inventory-2 (CDI-2) ? Self-report box D count

Count of the numbers for Box D items 5, 11, 19, 21, and 25 as part of the Children's Depression Inventory – 2 (CDI-2).

Supplemental Children's Depression Inventory - 2 (CDI-2) Mitochondrial Disease Mitochondrial Disease
C52952 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score code substitution percent correct standard score

Score related to percent correct standard score of the code substitution composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

Supplemental Automated Neuropsychological Assessment Metrics (ANAM) Mitochondrial Disease Mitochondrial Disease
C10742 Echocardiogram degree of mitral regurgitation status

Assessment with echocardiography of whether there is a disorder of the heart in which the mitral valve does not close properly when the heart pumps out blood

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C13061 American National Adult Reading Test (AmNART) - pronounce chord indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "chord".

Supplemental American National Adult Reading Test (AmNART) Mitochondrial Disease Mitochondrial Disease
C21826 Beck Anxiety Inventory (BAI) - Feel faint lightheaded bother scale

Scale that represents how much the participant has been bothered by feeling faint/ lightheaded as part of the Beck Anxiety Inventory (BAI)

Supplemental Beck Anxiety Inventory (BAI) Mitochondrial Disease Mitochondrial Disease
C17768 Apathy Scale (AS) - Form complete date

Date the rater/interviewer completed the apathy scale questionnaire from Apathy Scale (AS).

Supplemental Apathy Scale (AS) Mitochondrial Disease Mitochondrial Disease
C10877 Holter exam heart block episode type

Type of episode(s) of heart block assessed during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C12889 Echocardiogram right ventricle fraction shorten measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12494 Imaging pons abnormal indicator

Indicator of whether the pons appears normal or abnormal in the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20016 Hormone-related syndrome type

The type related to known hormone-related/endocrine syndromes or disorders

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C11556 Cambridge Behavioural Inventory Revised (CBI-R) - increased appetite frequency score

Score for frequency over past month of her/him having greater appetite and eating more than before as part of the Cambridge Behavioural Inventory Revised (CBI-R).

Supplemental Cambridge Behavioral Inventory - Revised Mitochondrial Disease Mitochondrial Disease
Displaying 126 - 150 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.