CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1026 - 1050 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20086 Mitochondrial disease prior vomit abdominal pain before indicator

Indicator of whether the participant experienced abdominal pain before prior vomiting episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59734 Lactose intolerant indicator

Indicator of whether that the participant is lactose intolerant

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20218 Mitochondrial disease medication gastrointestinal problem prior worsen text

The free-text field to specify about which medications made the participant's past GI problems worse

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20046 Mitochondrial disease current special diet affect symptom text

The free-text field to specify whether the current specialized diet affected participant's symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19582 Tanner stage pubic hair scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the development of pubic hair to characterize stages of physical development in children, adolescents and adults

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C16172 Pregnant current indicator

Indicator of whether the participant is currently pregnant

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20177 Mitochondrial disease prior abdominal pain frequency type other text

The free-text field related to 'Mitochondrial disease prior abdominal pain frequency type', specifying other text. Type of frequency with which the participant had prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59161 Genotype platform name

Name of the genotype platform

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C09363 Hamilton Depression Rating Scale (HDRS) - genital symptoms indicator

Score for the intensity of the participant/subject's genital symptoms such as loss of libido or menstrual disturbances, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C21846 Brief Test of Adult Cognition by Telephone (BTACT) - Mean latency time lapse millisecond measurement

Mean latency measurement of time lapsed in milliseconds, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59742 Bone fracture confirmed medical record indicator

Indicator of whether the participant had their fracture confirmed in medical record

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20226 Mitochondrial disease surgery type detail text

The free-text field to provide additional details about the type of surgery participant had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20054 Mitochondrial disease current vomit frequency type other text

The free-text field related to 'Mitochondrial disease current vomit frequency type', specifying other text. Type of frequency with which the participant currently has episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19620 Weight length standard infant use type

Indicator of whether WHO or CDC growth charts were used in weight/length Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C16193 Pregnancy outcome date/time

The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20185 Mitochondrial disease prior abdominal pain worsen text

The free-text field to specify what made the participant's prior abdominal pain worse

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18147 Laboratory procedure LDL cholesterol measurement

Measurement of the amount of low density lipoprotein (LDL) cholesterol in the participant's blood

Supplemental Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C59174 Genetic test result participant inform indicator

Indicator of whether the participant was informed of the genetic test results

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C09371 Hamilton Depression Rating Scale (HDRS) - middle night insomnia indicator

Score for the participant/subject's difficulty, if any, with middle-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C21865 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task response type

Type of responses in the Stop And Go Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Mitochondrial Disease Mitochondrial Disease
C20234 Mitochondrial disease gastrointestinal symptom refer psychiatric professional indicator

Indicator of whether the participant has ever been referred to a psychiatric professional regarding GI symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20062 Mitochondrial disease current vomit blood indicator

Indicator of whether the participant has ever vomited blood in current episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19633 Height pediatric unit of measure

Unit of measure for the height numerical value for participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
Displaying 1026 - 1050 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.