CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08519 36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator

Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Mitochondrial Disease Mitochondrial Disease
C21898 Brief Test of Adult Cognition by Telephone (BTACT) - Total repitition count

Total Number of repetitions, as a part of Brief Test of Adult Cognition by Telephone (BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C56395 Conners Continuous Performance Test 3rd Edition (CPT3) - Vigilance hit reaction time inter-stimulus interval change value

The change in response speed at various inter-stimulus intervals (ISIs), as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

 Supplemental Conners Continuous Performance Test 3rd Edition (Conners CPT 3) True Mitochondrial Disease Mitochondrial Disease
C07131 Craig Handicap and Assessment Reporting Technique (CHART-SF) - Combined family income category

Category of subject and the subject's family combined income in the last year, as part of the Craig Handicap and Assessment Reporting Technique (CHART-SF)

 Supplemental Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version True Mitochondrial Disease Mitochondrial Disease
C51711 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 6:5 observation text

Text describing the observations made on the subject's sketch for the age norm of 6 years and 5 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C53017 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score Go-NoGo hit standard score

Score related to the hits standard score of the Go-NoGo composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7).

 Supplemental Generalized Anxiety Disorder (GAD-7) True Mitochondrial Disease Mitochondrial Disease
C17201 Problem Behaviours Assessment - Short Form (PBA-S) - irritability worst score

The worst score for irritability over the last four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S).

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C20204 Mitochondrial disease bowel movement problem onset age category

The category of the participant/subject's age at onset of bowel movement problems

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C12483 Imaging cortex-polymicrogyria indicator

Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C20038 Mitochondrial disease eat type

Select the type of ways that participant/subject eats

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C10570 Imaging contrast agent used indicator

Indicator as to whether or not an imaging contrast agent was used for the scan.

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Mitochondrial Disease Mitochondrial Disease
C19693 Imaging brainstem finding type

The finding related to imaging of the brainstem.

 Supplemental Imaging - Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20164 Mitochondrial disease abdominal pain trigger detail text

The free text field to specify additional details about participant's/subject's abdominal pain triggers

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C07133 Craig Handicap and Assessment Reporting Technique (CHART-SF) - Physical Independence Score

Total physical independence score (0-100)

 Supplemental Craig Handicap and Assessment Reporting Technique (CHART-SF) - Paper version True Mitochondrial Disease Mitochondrial Disease
C17506 Cardiac MRI result comment text

Results comments on the cardiac Magnetic Resonance Imaging results

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C20293 Urgent care clinic use other diabetes related past year count

The count of the times the participant/subject used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C08527 36-item Short Form Health Survey (SF-36) - Times energy score

Score of times having a lot of energy during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Mitochondrial Disease Mitochondrial Disease
C50429 Child and Adolescent Scale of Environment (CASE) - School work question type

The type of setting relating to the school or work question being asked, as part of the as part of the Child Adolescent Scale of Enviroment (CASE)

 Supplemental Child and Adolescent Scale of Environment (CASE) True Mitochondrial Disease Mitochondrial Disease
C04505 ECG left ventricular hypertrophy status

Status of left ventricular hypertrophy on the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False Mitochondrial Disease Mitochondrial Disease
C07091 Center for Epidemiologic Studies-Depression Scale (CES-D) - bother indicator

Indicates how often the subject felt bothered by things that don't usually bother in in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D).

 Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) False Mitochondrial Disease Mitochondrial Disease
C51719 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 8:1 observation text

Text describing the observations made on the subject's sketch for the age norm of 8 years and 1 month, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C53025 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score Go-NoGo D prime percentage value

Value related to the D prime percentile of the Go-NoGo composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C13216 Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - telephone number recall scale

Compared with 10 years ago how is this person at remembering his/her address and telephone number

 Supplemental Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) True Mitochondrial Disease Mitochondrial Disease
C54604 Informant participant relationship duration

Duration for which the informant has known the subject/participant

 Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) True Mitochondrial Disease Mitochondrial Disease
Displaying 101 - 125 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.