C08519
36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator
Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Mitochondrial Disease
Mitochondrial Disease
C21898
Brief Test of Adult Cognition by Telephone (BTACT) - Total repitition count
Total Number of repetitions, as a part of Brief Test of Adult Cognition by Telephone (BTACT)
Supplemental
Brief Test of Adult Cognition by Telephone (BTACT)
False
Mitochondrial Disease
Mitochondrial Disease
C56395
Conners Continuous Performance Test 3rd Edition (CPT3) - Vigilance hit reaction time inter-stimulus interval change value
The change in response speed at various inter-stimulus intervals (ISIs), as part of the Conners Continuous Performance Test 3rd Edition (CPT3).
Supplemental
Conners Continuous Performance Test 3rd Edition (Conners CPT 3)
True
Mitochondrial Disease
Mitochondrial Disease
C07131
Craig Handicap and Assessment Reporting Technique (CHART-SF) - Combined family income category
Category of subject and the subject's family combined income in the last year, as part of the Craig Handicap and Assessment Reporting Technique (CHART-SF)
Supplemental
Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version
True
Mitochondrial Disease
Mitochondrial Disease
C51711
Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 6:5 observation text
Text describing the observations made on the subject's sketch for the age norm of 6 years and 5 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)
Supplemental
Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)
True
Mitochondrial Disease
Mitochondrial Disease
C53017
Automated Neuropsychological Assessment Metrics (ANAM) - Composite score Go-NoGo hit standard score
Score related to the hits standard score of the Go-NoGo composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).
Supplemental
Automated Neuropsychological Assessment Metrics (ANAM)
True
Mitochondrial Disease
Mitochondrial Disease
C13208
Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale
Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7).
Supplemental
Generalized Anxiety Disorder (GAD-7)
True
Mitochondrial Disease
Mitochondrial Disease
C17201
Problem Behaviours Assessment - Short Form (PBA-S) - irritability worst score
The worst score for irritability over the last four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S).
Supplemental
Problem Behaviours Assessment HD - Short Version (PBA-s)
True
Mitochondrial Disease
Mitochondrial Disease
C20204
Mitochondrial disease bowel movement problem onset age category
The category of the participant/subject's age at onset of bowel movement problems
Supplemental
Mitochondrial and Gastrointestinal Diseases Assessment
False
Mitochondrial Disease
Mitochondrial Disease
C12483
Imaging cortex-polymicrogyria indicator
Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Mitochondrial Disease
Mitochondrial Disease
C20038
Mitochondrial disease eat type
Select the type of ways that participant/subject eats
Supplemental
Mitochondrial and Gastrointestinal Diseases Assessment
False
Mitochondrial Disease
Mitochondrial Disease
C10570
Imaging contrast agent used indicator
Indicator as to whether or not an imaging contrast agent was used for the scan.
Supplemental
Brain Perfusion Magnetic Resonance Imaging
False
Mitochondrial Disease
Mitochondrial Disease
C19693
Imaging brainstem finding type
The finding related to imaging of the brainstem.
Supplemental
Imaging - Mitochondrial Disease
False
Mitochondrial Disease
Mitochondrial Disease
C20164
Mitochondrial disease abdominal pain trigger detail text
The free text field to specify additional details about participant's/subject's abdominal pain triggers
Supplemental
Mitochondrial and Gastrointestinal Diseases Assessment
False
Mitochondrial Disease
Mitochondrial Disease
C07133
Craig Handicap and Assessment Reporting Technique (CHART-SF) - Physical Independence Score
Total physical independence score (0-100)
Supplemental
Craig Handicap and Assessment Reporting Technique (CHART-SF) - Paper version
True
Mitochondrial Disease
Mitochondrial Disease
C17506
Cardiac MRI result comment text
Results comments on the cardiac Magnetic Resonance Imaging results
Supplemental
Cardiac Magnetic Resonance Imaging (MRI)
False
Mitochondrial Disease
Mitochondrial Disease
C20293
Urgent care clinic use other diabetes related past year count
The count of the times the participant/subject used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months
Supplemental
Diabetes-Related Medical History
False
Mitochondrial Disease
Mitochondrial Disease
C08527
36-item Short Form Health Survey (SF-36) - Times energy score
Score of times having a lot of energy during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)
Supplemental
Short Form 36-Item Health Survey (SF-36)
True
Mitochondrial Disease
Mitochondrial Disease
C50429
Child and Adolescent Scale of Environment (CASE) - School work question type
The type of setting relating to the school or work question being asked, as part of the as part of the Child Adolescent Scale of Enviroment (CASE)
Supplemental
Child and Adolescent Scale of Environment (CASE)
True
Mitochondrial Disease
Mitochondrial Disease
C04505
ECG left ventricular hypertrophy status
Status of left ventricular hypertrophy on the electrocardiogram (EKG) being reported
Supplemental
Electrocardiogram (ECG)
False
Mitochondrial Disease
Mitochondrial Disease
C07091
Center for Epidemiologic Studies-Depression Scale (CES-D) - bother indicator
Indicates how often the subject felt bothered by things that don't usually bother in in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D).
Supplemental
Center for Epidemiologic Studies-Depression Scale (CES-D)
False
Mitochondrial Disease
Mitochondrial Disease
C51719
Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 8:1 observation text
Text describing the observations made on the subject's sketch for the age norm of 8 years and 1 month, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)
Supplemental
Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)
True
Mitochondrial Disease
Mitochondrial Disease
C53025
Automated Neuropsychological Assessment Metrics (ANAM) - Composite score Go-NoGo D prime percentage value
Value related to the D prime percentile of the Go-NoGo composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).
Supplemental
Automated Neuropsychological Assessment Metrics (ANAM)
True
Mitochondrial Disease
Mitochondrial Disease
C13216
Informant Questionnaire for Cognitive Decline in the Elderly (IQCODE) - telephone number recall scale
Compared with 10 years ago how is this person at remembering his/her address and telephone number
Supplemental
Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)
True
Mitochondrial Disease
Mitochondrial Disease
C54604
Informant participant relationship duration
Duration for which the informant has known the subject/participant
Supplemental
Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2)
True
Mitochondrial Disease
Mitochondrial Disease