CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 976 - 1000 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09359 Hamilton Depression Rating Scale (HDRS) - anxiety psychic difficulty indicator

Score for the participant/subject's degree of psychic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C18882 Cardiovascular Holter exam ventricular dysrhythmia type other text

The free-text field related to 'Cardiovascular Holter exam ventricular dysrhythmia type', specifying other text. Type of ventricular dysrhythmia detected during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C04500 ECG atrial arrhythmia type

Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C60273 Mitochondrial disease infant formula choose reason text

The free-text field to specify the reason an infant formula was chosen

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20074 Mitochondrial disease prior vomit frequency type other text

The free-text field related to 'Mitochondrial disease prior vomit frequency type', specifying other text. Type of frequency of with which the participant had prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59722 Medication depo-provera current indicator

Indicator of whether the participant is currently taking Depo-Provera (injectable medroxyprogesterone)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20205 Mitochondrial disease bowel movement strain pass indicator

Indicator of whether the participant has to strain to pass a bowel movement

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20032 Mitochondrial disease nuclear variant text

The free-text field to specify the mitochondrial disease nuclear DNA variant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59698 Dietary supplement dose unit of measure

Unit of measure for the dose of the dietary supplement the participant is taking

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C09367 Hamilton Depression Rating Scale (HDRS) - insight indicator

Score for the participant/subject's acknowledgement of depression and illness, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C59081 Biological sample allow share consent form indicator

Indicates whether the participant's provided signed informed consent form for the biological sample collection and storage in a repository allows for sharing of the sample

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C21858 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental score

Total number correct in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C15520 Genetic testing performed indicator

Indicator of whether the participant had genetic testing performed

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60281 Mitochondrial disease abdominal migraine diagnosis indicator

Indicator of whether the participant has an abdominal migraine diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20082 Mitochondrial disease prior vomit blood indicator

Indicator of whether the participant had ever vomited blood

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59730 Medication romusuzumab indicator

Indicator of whether the participant is or has ever taken romusuzumab (Evenity)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20214 Mitochondrial disease poor appetite growth affect text

The free-text field to specify affects of poor appetite on participant's growth

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20041 Mitochondrial disease liquid diet text

The free-text field to specify the type of liquid diet used by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C16168 Pregnancy self or contribute sperm number

Number of each pregnancy for the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C09375 Hamilton Depression Rating Scale (HDRS) - agitation indicator

Score for the extent of agitated behaviors the participant/subject displays, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C60240 Biomarker urine assessment type other text

The free-text field related to 'Biomarker urine assessment type', specifying other text. Type of biomarker(s) assessed from urine samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60328 Mitochondrial disease acute pancreatitis indicator

Indicator of whether the participant had acute pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20130 Mitochondrial disease current burp detail text

The free-text field to specify additional details about participant's current burping symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C17967 ECG administer date time clock type

Type of clock system used to record time of electrocardiogram (ECG/EKG) administration

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C54631 Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score

Score for the Inconsistency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Mitochondrial Disease Mitochondrial Disease
Displaying 976 - 1000 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.