CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 951 - 975 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21896 Brief Test of Adult Cognition by Telephone (BTACT) - Time duration

Time duration in seconds, as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59161 Genotype platform name

Name of the genotype platform

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C20093 Mitochondrial disease vision change aura experience type

Type of vision change or aura experienced by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12930 Cardiovascular Holter exam ventricular dysrhythmia type

Type of ventricular dysrhythmia detected during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C56424 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension IQ composite score

The subject's Verbal Comprehension IQ composite score, converted from his/her Verbal Comprehension T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C09357 Hamilton Anxiety Rating Scale (HAM-A) - behavior interview score

The score of the participant's/subject's behavior at interview, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C60139 Dual X-ray absorptiometry R3 lateral distal femur bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the diaphysis (R3) of the lateral distal femur

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60099 Imaging pre-existing hardware text

Text description of the hardware implanted or attached prior to an imaging scan

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C60340 Mitochondrial disease pancreatic enzyme replacement therapy indicator

Indicator of whether the participant had pancreatic enzyme replacement therapy indicator

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20146 Mitochondrial disease swallow pain disrupt activity wake type

Type of activity or sleep disrupted by the participant's swallowing pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19555 Biomarker Urine Assessment Type

Type of biomarker(s) assessed from urine samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60300 Mitochondrial disease recent change appetite indicator

Indicator of whether the participant has had a recent change in appetite

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20102 Mitochondrial disease prior GERD heartburn mid-line chest pain esophageal burn stop age category

Category of the participant's age at the end of prior GERD, heartburn, mid-line chest pain, esophageal burning symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12939 Cardiovascular Holter exam abnormality significance type

Type of significance of abnormal results of the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C56433 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval upper bound value

The upper bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C12843 Cardiac MRI ventricle end systolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60107 Dual X-ray absorptiometry lumbar spine bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C20155 Mitochondrial disease abdominal pain current prior status

Status of whether the participant's abdominal pain is current or prior

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Supplemental Medical History Mitochondrial Disease Mitochondrial Disease
C02437 Imaging modality type

Type of radiologic study performed on the participant

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60308 Mitochondrial disease difficult breath eat indicator

Indicator of whether the participant has difficulty breathing while eating

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20110 Mitochondrial disease current oral regurgitation onset age category

Category of the participant's age at the onset of current oral regurgitation episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C56441 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval upper bound value

The upper bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
Displaying 951 - 975 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.