CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 876 - 900 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20179 Mitochondrial disease prior abdominal pain duration detail text

The free-text field to specify additional details about participant's past abdominal pain duration

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59164 Genotype platform vendor text

The free-text field to specify the genotype platform vendor

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Supplemental Family History Mitochondrial Disease Mitochondrial Disease
C20228 Mitochondrial disease gastrointestinal clinical trial participate indicator

Indicator of whether the participant would participate in a clinical trial regarding gastrointestinal issues

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20056 Mitochondrial disease current vomit time of day category

Category for the time-of-day of when the participant usually vomits

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19622 BMI standard infant use type

Indicator of whether WHO or CDC growth charts were used in BMI Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C20014 Growth hormone deficiency diagnosis indicator

The indicator related to being diagnosed for deficiency in growth hormone

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20187 Mitochondrial disease abdominal early fullness indicator

Indicator of whether the participant experiences early fullness

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18169 Laboratory procedure triglycerides measurement

Measurement of the amount of triglycerides in the participant's blood

Supplemental Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C52564 Data source family relation specify text

Free-text field specifying the relationship of the family member from which data on the participant was obtained

Supplemental Family History Mitochondrial Disease Mitochondrial Disease
C20236 Mitochondrial disease Munchausen by proxy syndrome health care professional setting indicator

Indicator of whether a health care professional has had a concern about Munchausen by proxy

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20064 Mitochondrial disease current vomit blood clot indicator

Indicator of whether the participant's vomit has blood clots in current episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Supplemental General Core Mitochondrial Disease Mitochondrial Disease
C59703 Sex steroid deficiency cause type

Type of cause of the participant's sex steroid deficiency

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20195 Mitochondrial disease prior bloat abdominal distension stop age category

Category of the participant's age at the end of prior abdominal bloating/distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C17955 Cardiovascular ventricular dysrhythmia episode total count

Count of the total number of episodes of a specific ventricular dysrhythmia event recorded during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C19715 Dietary supplement generic name

Generic name for the supplement taken

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C60355 Lab urine specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of urine lab specimen

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C60271 Mitochondrial disease DNA deletion text

The free-text field to specify the mitochondrial disease mitochondrial DNA deletion

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20072 Mitochondrial disease prior vomit symptom consistent indicator

Indicator of whether past vomiting symptoms were consistent day to day

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59720 Medication oral contraceptive current indicator

Indicator of whether the participant is currently taking oral contraceptives

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C56412 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning T score

The T score converted from the raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Mitochondrial Disease Mitochondrial Disease
C09594 Brief Psychiatric Rating Scale (BPRS) - guilt feeling score

The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C60117 Dual X-ray absorptiometry total hip areal bone mineral density value

Absolute value of the areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the total hip

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
Displaying 876 - 900 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.