CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 851 - 875 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20065 Mitochondrial disease current black stool indicator

Indicator of whether the participant's current stools have been black

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60342 Triceps skinfold thickness value

Value of the triceps skinfold (back side middle upper arm) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C59708 Hormone therapy replace indicator

Indicator of whether the participant has taken hormonal replacement therapy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20196 Mitochondrial disease prior bloat abdominal distension stop text

The free-text field to specify what stopped participant's past abdominal bloating/distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19730 Laboratory procedure microalbumin urine measurement

Measurement of the amount of microalbumin in the participant's urine

Supplemental Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C19716 Dietary supplement compounded formulation ingredient text

Free-text field to specify list of ingredients used to make a specially compounded formulation

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C09358 Hamilton Depression Rating Scale (HDRS) - depressed mood indicator

Score for whether, how, and in what circumstances the participant/subject expresses feelings of depression (sadness, hopeless, helpless, worthless), as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C18880 Cardiovascular Holter exam atrial dysrhythmia type other text

The free-text field related to 'Cardiovascular Holter exam atrial dysrhythmia type', specifying other text. Type of atrial dysrhythmia detected during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C60356 Lab specimen urine collection type

Type of collection for the participant's urine specimen

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C60272 Informant questionnaire text

The free-text field specifying the informant for the questionnaire

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20073 Mitochondrial disease prior vomit frequency type

Type of frequency with which the participant had prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59721 Medication estrogen current indicator

Indicator of whether the participant is currently taking any estrogen forms (pill, patch, cream, other)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20204 Mitochondrial disease bowel movement problem onset age category

Category of the participant's age at the onset of bowel movement problems

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20031 Mitochondrial disease DNA variant type

Type of DNA variant (nuclear or mitochondrial) present in the participant's genetic diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59697 Dietary supplement individual name

Name of the individual dietary supplement taken

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C09366 Hamilton Depression Rating Scale (HDRS) - weight loss measurement indicator

Score for the amount of the participant/subject's weight loss according to weekly measurements, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C21856 Brief Test of Adult Cognition by Telephone (BTACT) - Series complete total number score

Score of total number of items/series completed correctly in the Number Series Task, as a part of the Brief Test Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C59080 Biological sample in repository specimen type other text

The free-text field related to 'Biological sample in repository specimen type', specifying other text. Type of biological sample or specimen collected and stored in a repository

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C04508 ECG previous myocardial infarction status

Status of patterns of previous myocardial infarction apparent on the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C60280 Mitochondrial disease prior vomit fail stop text

The free-text field related to the participant's previous efforts that failed to stop vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20081 Mitochondrial disease prior vomit green yellow frequency type

Type of frequency with which the participant's vomit was green or yellow in prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59729 Medication denosumab indicator

Indicator of whether the participant is or has ever taken denosumab (Prolia)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C20213 Mitochondrial disease bowel movement problem detail text

The free-text field to specify additional details about the participant's bowel movement problems

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20039 Mitochondrial disease infant formula text

The free-text field to specify the kind of infant formula used by participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C16165 Hormonal therapy stop date/time

The date and time (if applicable and known) the participant stopped hormonal therapy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
Displaying 851 - 875 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.