CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 826 - 850 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60107 Dual X-ray absorptiometry lumbar spine bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the lumbar spine (L1-L4 vertebrae)

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C20222 Mitochondrial disease alternative medicine treatment gastrointestinal problem improve text

The free-text field to specify about which alternative medicine treatments made the participant's GI problems better

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12917 Cardiovascular Holter predominant heart rhythm type

Type of heart rhythm the participant exhibited the majority of the time during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C20050 Mitochondrial disease current vomit episode trigger symptom onset type

Type of triggers the participant may have had when symptoms began for the current vomiting episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Supplemental Medical History Mitochondrial Disease Mitochondrial Disease
C19616 Length standard infant use type

Indicator of whether WHO or CDC growth charts were used in length Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C09365 Hamilton Depression Rating Scale (HDRS) - weight loss patient indicator

Score for the amount of weight loss reported by the participant/subject, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C20181 Mitochondrial disease prior abdominal pain trigger detail text

The free-text field to specify additional details about participant's past abdominal pain triggers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C09352 Hamilton Anxiety Rating Scale (HAM-A) - cardiovascular symptom score

The score of the participant's/subject's cardiovascular symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

Supplemental Hamilton Anxiety Rating Scale (HAM-A) Mitochondrial Disease Mitochondrial Disease
C60246 Biomarker muscle histology assessment type other text

The free-text field related to 'Biomarker muscle histology assessment type', specifying other text. Type of biomarker(s) assessed from muscle histology

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C21854 Brief Test of Adult Cognition by Telephone (BTACT) - Number series response type text

Text for type of responses in the Number Series Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C60115 Dual X-ray absorptiometry total hip bone mineral content value

Absolute value of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the total hip

Supplemental DXA Mitochondrial Disease Mitochondrial Disease
C20230 Mitochondrial disease gastrointestinal physician visit count

Count of GI doctors seen by the participant

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12934 Cardiovascular Holter exam ventricular contraction count

Number of occurrences of the specific type of ventricular contraction

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C20058 Mitochondrial disease current vomit episode trigger text

The free-text field to specify the participant's current vomiting episode triggers

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19624 Head circumference Z score

The number of standard deviations the measured head circumference of the participant is above the mean

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C09373 Hamilton Depression Rating Scale (HDRS) - work activities difficulty indicator

Score for the participant/subject's difficulty, if any, with work and activities, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C20189 Mitochondrial disease current bloat abdominal distension onset age category

Category of the participant's age at the onset of current abdominal bloating/distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12837 Cardiac MRI ventricle systolic function result status

Status of the result of the cardiac magnetic resonance imaging (MRI) evaluation of the selected ventricle's systolic function

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21878 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task switch trial score

Total number of trials correct after switch in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C59701 Pregnancy other outcome comment text

The free-text field describing the other comments and outcomes of a pregnancy

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20150 Mitochondrial disease remove food pill esophagus indicator

Indicator of whether the participant has had food or pill removed from esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19563 Biomarker lymphoblast assessment type

Type of biomarker(s) assessed from lymphoblasts samples

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60304 Mitochondrial disease swallow position change indicator

Indicator of whether the participant's swallowing changes with position change

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 826 - 850 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.