CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 776 - 800 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60256 Genetic test result participant inform source type other text

The free-text field related to ' Genetic test result participant inform source type', specifying other text. Type of source that informed the participant of the genetic test results

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C17769 Rater name

Name of rater

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C09606 Brief Psychiatric Rating Scale (BPRS) - excitement score

The score of the participant's/subject's excitement, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Mitochondrial Disease Mitochondrial Disease
C56407 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary raw score

The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C59692 Lab bone marker turnover test name

Name representing the bone turnover marker test that was performed

 Supplemental Labs of Bone Mineral Metabolism False Mitochondrial Disease Mitochondrial Disease
C20330 Mitochondrial disease special diet reason text

The free-text field to specify why the participant is on a specialized diet

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59718 Medication steroid IV current indicator

Indicator of whether the participant is taking any steroids by IV

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C20201 Mitochondrial disease bowel movement frequency type other text

The free-text field related to 'Mitochondrial disease bowel movement frequency type', specifying other text. Type of frequency with which the participant has bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60235 Hepatic panel type

Type of hepatic panel test performed

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C10877 Holter exam heart block episode type

Type of episode(s) of heart block assessed during the Holter examination

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C54623 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index 90 percent confidence interval up bound value

Value of the upper bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C09350 Hamilton Anxiety Rating Scale (HAM-A) - tension score

The score of the participant's/subject's tension, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Mitochondrial Disease Mitochondrial Disease
C59077 Genetic test result participant inform source type

Type of source that informed the participant of the genetic test results

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C56415 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning T score sum value

The sum of the T scores the subject received on the Perceptual reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C04504 ECG heart rhythm result type

Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported

 Supplemental Electrocardiogram (ECG) False Mitochondrial Disease Mitochondrial Disease
C60277 Mitochondrial disease stop diet reason text

The free-text field to specify why the participant stopped their dietary restriction

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59726 Medication bisphosphonate current indicator

Indicator of whether the participant is currently taking any bisphosphonates (e.g., alendronate, ibandronate, pamidronate, zoledronate, neridronate)

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C20209 Mitochondrial disease bowel movement treat medicine indicator

Indicator of whether the participant uses medicine to help with bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60243 Biomarker leukocyte assessment type other text

The free-text field related to 'Biomarker leukocyte assessment type', specifying other text. Type of biomarker(s) assessed from leukocytes samples

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C12931 Cardiovascular Holter exam premature ventricular contraction percentage value

Value of the percent of premature ventricular contractions the participant experienced during the Holter examination

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C10602 Cardiac MRI ejection fraction measurement

Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C59102 Data aggregate-level General Research Use appropriate indicator

Indicator of whether the aggregate-level data is appropriate for General Research Use

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C56423 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other used indicator

The indicator relating to whether the examinee used his/her other visual or hearing aid during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C20054 Mitochondrial disease current vomit frequency type other text

The free-text field related to 'Mitochondrial disease current vomit frequency type', specifying other text. Type of frequency with which the participant currently has episodes of vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C16193 Pregnancy outcome date/time

The date and time (if applicable and known) of the outcome (i.e., delivery of live birth, miscarriage, etc.) of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
Displaying 776 - 800 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.