CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 751 - 775 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19618 Height standard infant use type

Indicator of whether WHO or CDC growth charts were used in height Z-score calculation

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C16179 Post-menopausal surgery date/time

The date and time (if applicable and known) of the surgery that induced the post-menopausal period

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20183 Mitochondrial disease prior abdominal pain wake indicator

Indicator of whether prior abdominal pain woke the participant from sleep

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60248 Biomarker specimen other source text

Free-text field specifying the other biomarker(s) assessed from specimen sources

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20232 Mitochondrial disease significant gastrointestinal symptom prior diagnosis text

The free-text field to provide significant GI symptoms before mitochondrial disease diagnosis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20060 Mitochondrial disease current vomit green yellow indicator

Indicator of whether the participant's vomit is green or yellow in current episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19631 Weight pediatric measurement

Measurement of weight for a pediatric participant

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C20018 Hormone-related syndrome diagnosis age value

The age value of participant related to known hormone-related/endocrine syndromes or disorders

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20191 Mitochondrial disease current abdominal distension cause reason type

Type of reason for current abdominal distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19725 Laboratory procedure two hour glucose measurement

Measurement of the amount of glucose in the participant's blood 2 hours after a 75-gram glucose drink has been ingested

Supplemental Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C17957 Cardiovascular Holter exam premature ventricular contraction count

Count of premature ventricular contractions per 24 hours

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C20328 Mitochondrial disease bowel movements current medication type

Type of medications that the participant is currently taking for help with bowel movements

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20068 Mitochondrial disease current vomit detail text

The free-text field to specify additional details about participant's current vomiting symptoms

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59716 Medication steroid mouth current indicator

Indicator of whether the participant is taking any oral steroids by mouth

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
C59715 Sex steroid receive indicator

Indicator of whether the participant received sex steroids

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20199 Mitochondrial disease prior bloat abdominal distension detail text

The free-text field to specify additional details about the participant's past abdominal bloating/distension

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19719 Dietary supplement dose

Dose of the dietary supplement the participant is taking

Supplemental Dietary Supplements Mitochondrial Disease Mitochondrial Disease
C09361 Hamilton Depression Rating Scale (HDRS) - somatic symptoms indicator

Score for the intensity of the participant/subject's somatic gastrointestinal symptoms, as part of the Hamilton Depression Rating Scale (HDRS)

Supplemental Hamilton Depression Rating Scale (HDRS) Mitochondrial Disease Mitochondrial Disease
C21840 Brief Test of Adult Cognition by Telephone (BTACT) - Category fluency test category

Category of responses in the Category Fluency Test, as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C04502 ECG global result type

Type of result in qualitative terms of the electrocardiogram (ECG/EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C59081 Biological sample allow share consent form indicator

Indicates whether the participant's provided signed informed consent form for the biological sample collection and storage in a repository allows for sharing of the sample

Supplemental Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60275 Mitochondrial disease infant formula recommendation type other text

The free-text field related to 'Mitochondrial disease infant formula recommendation type', specifying other text. Type of recommendation the participant received regarding the infant formula

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20076 Mitochondrial disease prior vomit time of day category

Category for the time-of-day of the participant's prior episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C59724 Medication testosterone HCG current indicator

Indicator of whether the participant is currently taking any testosterone (injection, patch, gel, other) or HCG (injection)

Supplemental Bone Health History Mitochondrial Disease Mitochondrial Disease
Displaying 751 - 775 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.