CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C19598 Genetic test tissue other text

The free-text field to specify the type of tisue tested for genetic test.

 Supplemental Genetics Testing Clinical Diagnostics False Mitochondrial Disease Mitochondrial Disease
C09931 World Health Organization Quality of Life (WHOQOL-BREF) - health satisfaction scale

Scale used to assess health satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Mitochondrial Disease Mitochondrial Disease
C13077 American National Adult Reading Test (AmNART) - pronounce smile indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "smile".

 Supplemental American National Adult Reading Test (AmNART) True Mitochondrial Disease Mitochondrial Disease
C21864 Beck Anxiety Inventory (BAI) - Unable relax bother scale

Scale that represents how much the participant has been bothered by unable to relax as part of the Beck Anxiety Inventory (BAI)

 Supplemental Beck Anxiety Inventory (BAI) True Mitochondrial Disease Mitochondrial Disease
C19624 Head circumference Z score

The number of standard deviations the measured head circimference of the subject/participant is above the mean.

 Supplemental Vital Signs False Mitochondrial Disease Mitochondrial Disease
C54556 Children?s Depression Inventory-2 (CDI-2) ? Self-report item 8 score

Score for the self-report item 8 as part of the Children's Depression Inventory – 2 (CDI-2).

 Supplemental Children's Depression Inventory - 2 (CDI-2) True Mitochondrial Disease Mitochondrial Disease
C53082 Axon Sports Computerized Cognitive Assessment Tool (CCAT) - Work memory speed speed measurement

Measurement related to working memory speed task speed, as part of the Axon Sports Computerized Cognitive Assessment Tool (CCAT).

 Supplemental Axon Sports Computerized Cognitive Assessment Tool (CCAT) True Mitochondrial Disease Mitochondrial Disease
C12939 Cardiovascular Holter exam abnormality significance type

An indication if the abnormality observed during the Holter examination is clinically significant

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C12905 Echocardiogram left ventricular mass index measurement

The left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume, corrected for body surface area

 Supplemental Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C51780 Adaptive Behavior Assessment System III (ABAS III) - Rely on self for community travel scale

Scale related to the adult relying on himself or herself for travel in the community, as part of the Adaptive Behavior Assessment System III (ABAS III)

 Supplemental Adaptive Behavior Assessment Scale (ABAS-II) True Mitochondrial Disease Mitochondrial Disease
C08530 36-item Short Form Health Survey (SF-36) - Times happy score

Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Mitochondrial Disease Mitochondrial Disease
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C11109 Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator

Whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis

 Supplemental Pulmonary Function False Mitochondrial Disease Mitochondrial Disease
C20130 Mitochondrial disease burp detail text

The free text field to specify additional details about participant's/subject's burping symptoms

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20258 Medication reduce blood sugar prior diagnosis name

The name of the medication to reduce blood sugar levels taken by the particpant/subject prior to diagnosis of the condition/disorder

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C16172 Pregnant current indicator

Whether the female participant/subject is currently pregnant

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C11532 Cambridge Behavioural Inventory Revised (CBI-R) - difficulty using electrical appliance frequency score

Score for frequency over past month of difficulty using electrical appliances as part of the Cambridge Behavioural Inventory Revised (CBI-R).

 Supplemental Cambridge Behavioral Inventory - Revised True Mitochondrial Disease Mitochondrial Disease
C52001 Child and Adolescent Scale of Participation (CASP) - Communication children adults at school scale

Scale to rate level of participation in communicating with other children and adults at school, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP).

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C20090 Mitochondrial disease vomit diagnosis cyclic indicator

Indicator of whether the participant/subject has a cyclic vomiting diagnosis.

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C52989 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score match sample lapse count

Count related to the number of lapses of the matching to sample composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C19719 Dietary supplement dose value

Strength of the dietary supplement the participant/subject is taking.

 Supplemental Dietary Supplements False Mitochondrial Disease Mitochondrial Disease
C09939 World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale

Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Mitochondrial Disease Mitochondrial Disease
C21938 Pediatric Quality of Life Inventory (PedsQL) - Problem house chore difficulty scale

Scale of problems with doing chores around the house, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C19551 Biomarker blood plasma specimen assessment type

Type of biomarker(s) assessed from blood serum/plasma samples.

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C54564 Children?s Depression Inventory-2 (CDI-2) ? Self-report item 16 score

Score for the self-report item 16 as part of the Children's Depression Inventory – 2 (CDI-2).

 Supplemental Children's Depression Inventory - 2 (CDI-2) True Mitochondrial Disease Mitochondrial Disease
Displaying 76 - 100 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.