CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 676 - 700 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56412 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning T score

The T score converted from the raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C59178 Blood sample repository indicator

Indicator whether the participant provided a blood sample to a repository

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C09345 Hamilton Anxiety Rating Scale (HAM-A) - fear score

The score of the participant's/subject's fears, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Mitochondrial Disease Mitochondrial Disease
C20235 Mitochondrial disease concern Munchausen by proxy syndrome indicator

Indicator of whether there is concern about the participant experiencing Munchausen by proxy

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60240 Biomarker urine assessment type other text

The free-text field related to 'Biomarker urine assessment type', specifying other text. Type of biomarker(s) assessed from urine samples

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C19634 Body mass index pediatric value

Value of the participant's body mass index, calculated from height and weight, age

Supplemental Physical Exam False Mitochondrial Disease Mitochondrial Disease
C54631 Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score

Score for the Inconsistency Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C20194 Mitochondrial disease prior bloat abdominal distension onset age category

Category of the participant's age at the onset of prior abdominal bloating/distension

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C12918 Cardiovascular Holter exam maximum heart rate duration

Duration of maximum heart rate recorded during the Holter examination

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C56420 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid glasses used indicator

The indicator relating to whether the examine used his/her glasses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C60257 Blood sample identifier number

Identification (ID) number assigned to the blood sample in repository

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C09353 Hamilton Anxiety Rating Scale (HAM-A) - respiratory symptom score

The score of the participant's/subject's respiratory symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Mitochondrial Disease Mitochondrial Disease
C59693 Lab bone marker turnover test name other text

The free-text field related to 'Lab bone marker turnover test name', specifying other text. Name representing the bone turnover marker test that was performed

 Supplemental Labs of Bone Mineral Metabolism False Mitochondrial Disease Mitochondrial Disease
C20331 Mitochondrial disease prior vomit severe symptom type

Type of symptom that was most severe with the participant's prior vomiting episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59719 Medication seizure current indicator

Indicator of whether the participant is taking any seizure medications

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C20202 Mitochondrial disease bowel movement consistency result type

Type of the resulting consistency of the participant's bowel movements

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C12935 Cardiovascular Holter exam ventricular contraction morphology type

Type of morphology of the ventricular contraction

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C56428 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension confidence interval upper bound value

The upper bound of the subject's Verbal Comprehension confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C12839 Cardiac MRI ventricle end diastolic dimension measurement

Measurement of the diameter across the selected ventricle at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C59078 DNA known variant status

Status of known variant(s) in participant's DNA

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C20059 Mitochondrial disease current vomit before problem type

Types of problems that frequently occur before the participant's current episodes of vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20119 Mitochondrial disease prior oral regurgitation consistent symptom indicator

Indicator of whether past symptoms of oral regurgitation were consistent day to day

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20017 Hormone-related syndrome other text

The free-text field related to "Hormone-related syndrome type", specifying other text. The type related to known hormone-related/endocrine syndromes or disorders

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C17956 Cardiovascular ventricular dysrhythmia episode duration

Duration, in seconds, of a specific ventricular dysrhythmia episode recorded during the Holter examination

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C60124 Dual X-ray absorptiometry distal one-third radius bone mineral content z score

Z-score of the bone mineral content (BMC) for dual X-ray absorptiometry (DXA) in the distal one-third (1/3) radius

 Supplemental DXA False Mitochondrial Disease Mitochondrial Disease
Displaying 676 - 700 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.