CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 651 - 675 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20205 Mitochondrial disease bowel movement strain pass indicator

Indicator of whether the participant has to strain to pass a bowel movement

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20032 Mitochondrial disease nuclear variant text

The free-text field to specify the mitochondrial disease nuclear DNA variant

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59698 Dietary supplement dose unit of measure

Unit of measure for the dose of the dietary supplement the participant is taking

 Supplemental Dietary Supplements False Mitochondrial Disease Mitochondrial Disease
C09367 Hamilton Depression Rating Scale (HDRS) - insight indicator

Score for the participant/subject's acknowledgement of depression and illness, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C21858 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental score

Total number correct in experimental condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C59081 Biological sample allow share consent form indicator

Indicates whether the participant's provided signed informed consent form for the biological sample collection and storage in a repository allows for sharing of the sample

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C15520 Genetic testing performed indicator

Indicator of whether the participant had genetic testing performed

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C60281 Mitochondrial disease abdominal migraine diagnosis indicator

Indicator of whether the participant has an abdominal migraine diagnosis

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20082 Mitochondrial disease prior vomit blood indicator

Indicator of whether the participant had ever vomited blood

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59730 Medication romusuzumab indicator

Indicator of whether the participant is or has ever taken romusuzumab (Evenity)

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C20214 Mitochondrial disease poor appetite growth affect text

The free-text field to specify affects of poor appetite on participant's growth

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20041 Mitochondrial disease liquid diet text

The free-text field to specify the type of liquid diet used by the participant

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C16168 Pregnancy self or contribute sperm number

Number of each pregnancy for the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C09375 Hamilton Depression Rating Scale (HDRS) - agitation indicator

Score for the extent of agitated behaviors the participant/subject displays, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C21891 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental task type

Type of test, as part of Brief Test of Adult Cognition by Telephone(BTACT)

 Supplemental Brief Test of Adult Cognition by Telephone (BTACT) False Mitochondrial Disease Mitochondrial Disease
C59116 Genetic study data array data category type

Type of array data category data expected for the genetics study

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C59738 Bone fracture anatomic site

The anatomic location of fractures experienced by the participant

 Supplemental Bone Health History False Mitochondrial Disease Mitochondrial Disease
C20222 Mitochondrial disease alternative medicine treatment gastrointestinal problem improve text

The free-text field to specify about which alternative medicine treatments made the participant's GI problems better

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20050 Mitochondrial disease current vomit episode trigger symptom onset type

Type of triggers the participant may have had when symptoms began for the current vomiting episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C19616 Length standard infant use type

Indicator of whether WHO or CDC growth charts were used in length Z-score calculation

 Supplemental Physical Exam False Mitochondrial Disease Mitochondrial Disease
C16177 Post-menopausal indicator

Indicates whether participant is post-menopausal

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C20181 Mitochondrial disease prior abdominal pain trigger detail text

The free-text field to specify additional details about participant's past abdominal pain triggers

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C60246 Biomarker muscle histology assessment type other text

The free-text field related to 'Biomarker muscle histology assessment type', specifying other text. Type of biomarker(s) assessed from muscle histology

 Supplemental Biomarkers in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59166 Genotype platform URL text

The free-text field specifying the genotype platform URL (uniform resource locator)

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C19584 Genetic test performed year value

Value of the year the genetic test was performed

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
Displaying 651 - 675 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.