CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3093-C20031	C20031	Mitochondrial disease DNA variant type	Type of DNA variant (nuclear or mitochondrial) present in the participant's genetic diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3086-C59697	C59697	Dietary supplement individual name	Name of the individual dietary supplement taken	Supplemental	Dietary Supplements	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C56033	C56033	Genetic test result source type	Type of source of the participant's genetic test results	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C04502	C04502	ECG global result type	Type of result in qualitative terms of the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60275	C60275	Mitochondrial disease infant formula recommendation type other text	The free-text field related to 'Mitochondrial disease infant formula recommendation type', specifying other text. Type of recommendation the participant received regarding the infant formula	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59724	C59724	Medication testosterone HCG current indicator	Indicator of whether the participant is currently taking any testosterone (injection, patch, gel, other) or HCG (injection)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20207	C20207	Mitochondrial disease stool blood color category	Category of color of blood in the participant's stool	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20081	C20081	Mitochondrial disease prior vomit green yellow frequency type	Type of frequency with which the participant's vomit was green or yellow in prior episodes of vomiting	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20039	C20039	Mitochondrial disease infant formula text	The free-text field to specify the kind of infant formula used by participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60322	C60322	Mitochondrial disease pancreatitis episode type	Type of pancreatitis episodes experienced by the participant	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12916	C12916	Cardiovascular Holter exam stop date time	Date (and time, if applicable and known) the Holter examination stopped	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20124	C20124	Mitochondrial disease burp current prior status	Status of whether the participant's episodes of burping are current or prior	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F0806-C09351	C09351	Hamilton Anxiety Rating Scale (HAM-A) - somatic sensory score	The score of the participant's/subject's somatic (sensory) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.	Supplemental	Hamilton Anxiety Rating Scale (HAM-A)	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60239	C60239	Vitamin level test type other text	The free-text field related to 'Vitamin level test type', specifying other text. Type of vitamin levels tested	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2235-C54630	C54630	Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Mitochondrial Disease	Mitochondrial Disease
F1968-C56419	C56419	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other text	Text describing another visual or hearing aid the subject needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Mitochondrial Disease	Mitochondrial Disease
F3129-C60129	C60129	Dual X-ray absorptiometry ultradistal radius areal bone mineral density value	Absolute value of the amount of areal bone mineral density (aBMD) for dual X-ray absorptiometry (DXA) in the ultradistal radius	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3134-C11106	C11106	Pulmonary function maximal expiratory pressure (MEP) result value	Value in centimeters of water (cm H2O) of Maximal Expiratory Pressure (MEP) a measure of the strength of respiratory muscles	Supplemental	Pulmonary Function	False	Mitochondrial Disease	Mitochondrial Disease
F3129-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	DXA	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60330	C60330	Mitochondrial disease chronic pancreatitis indicator	Indicator of whether the participant had chronic pancreatitis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C12933	C12933	Cardiovascular Holter exam ventricular contraction count type	Type of ventricular contraction for which the total number of occurrences is recorded	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C20132	C20132	Mitochondrial disease prior burp stop age category	Category of the participant's age at the end of prior burping episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1059-C17958	C17958	Cardiovascular Holter exam fastest run tachycardia episode value	Value of the heart rate during the fastest run of a tachycardia episode	Supplemental	Holter Examination	False	Mitochondrial Disease	Mitochondrial Disease
F3123-C18777	C18777	ECG heart rhythm result type other text	The free-text field related to 'ECG heart rhythm result type', specifying other text. Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Mitochondrial Disease	Mitochondrial Disease
F3093-C60290	C60290	Mitochondrial disease swallow difficult occur liquid solid type	Type of bolus consistency (solid and/or liquid) with which the participant has difficulty swallowing	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.