CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 551 - 575 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09596 Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score

The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Mitochondrial Disease Mitochondrial Disease
C20219 Mitochondrial disease alternative medicine treat GI problem indicator

Indicator of whether the participant has tried to treat GI problems with alternative medicine

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20047 Mitochondrial disease prior special diet type other text

The free-text field related to 'Mitochondrial disease prior special diet type', specifying other text. Type of specialized diet the participant has been on in the past

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C19583 Tanner stage genitalia scale

The scale defining physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts and genitalia to characterize stages of physical development in children, adolescents and adults

 Supplemental Physical Exam False Mitochondrial Disease Mitochondrial Disease
C16173 Pregnancy estimate delivery date and time

The date and time (if applicable) the participant is estimated to deliver the pregnancy

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C20178 Mitochondrial disease prior abdominal pain duration type

Type of duration of the participant's prior abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C59163 Genotype platform version text

The free-text field to specify the genotype platform version

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C17769 Rater name

Name of rater

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C12860 Cardiac MRI intracardiac finding type

Types of intracardial findings observed by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C56407 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary raw score

The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

 Supplemental Family History False Mitochondrial Disease Mitochondrial Disease
C09604 Brief Psychiatric Rating Scale (BPRS) - unusual thought content score

The score of the participant's/subject's unusual thought content, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Mitochondrial Disease Mitochondrial Disease
C20227 Mitochondrial disease life effect grade

Graded scale representing the effect of the symptoms on the participant's life

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20055 Mitochondrial disease current vomit episode intensity type

Type of intensity of the participant's current episodes of vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C19621 BMI Z score

The number of standard deviations the calculated BMI of the participant is above the mean

 Supplemental Physical Exam False Mitochondrial Disease Mitochondrial Disease
C20013 Short stature diagnosis indicator

The indicator related to being diagnosed for short stature or height

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C20186 Mitochondrial disease prior abdominal pain detail text

The free-text field to specify additional details about the participant's past abdominal pain

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C18168 Laboratory procedure total cholesterol measurement

Measurement of the total amount of cholesterol in the participant's blood

 Supplemental Diabetes Labs False Mitochondrial Disease Mitochondrial Disease
C59178 Blood sample repository indicator

Indicator whether the participant provided a blood sample to a repository

 Supplemental Primary Mitochondrial Disease (PMD) Genetics False Mitochondrial Disease Mitochondrial Disease
C54623 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index 90 percent confidence interval up bound value

Value of the upper bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

 Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) True Mitochondrial Disease Mitochondrial Disease
C10875 Holter exam minimum heart rate

Minimum heart rate measured during the Holter examination

 Supplemental Holter Examination False Mitochondrial Disease Mitochondrial Disease
C56415 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning T score sum value

The sum of the T scores the subject received on the Perceptual reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

 Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Mitochondrial Disease Mitochondrial Disease
C09348 Hamilton Anxiety Rating Scale (HAM-A) - depressed mood score

The score of the participant's/subject's depressed mood, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 Supplemental Hamilton Anxiety Rating Scale (HAM-A) False Mitochondrial Disease Mitochondrial Disease
C20235 Mitochondrial disease concern Munchausen by proxy syndrome indicator

Indicator of whether there is concern about the participant experiencing Munchausen by proxy

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20063 Mitochondrial disease current vomit color blood category

Category of color of the blood present in participant's vomit in current episodes of vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
Displaying 551 - 575 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.