CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 501 - 525 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54279 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20319 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain value

Value of segmental strain in the two-chamber view measured by two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C20252 Family history heart problem parent type

The type of the participant's parent with a history of heart attacks, heart failure or other heart problems

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C08500 36-item Short Form Health Survey (SF-36) - General health score

Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C52340 12-item Short Form Health Survey Version 2 (SF-12v2) - Less accomplished physical health scale

Scale for surveyee-reported less accomplishment as a result of physical health, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59769 Dietician consult count unknown status

Status related to the count of times the participant consulted a dietician is unknown

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54255 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recognition total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recognition Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C52348 12-item Short Form Health Survey Version 2 (SF-12v2) - Vitality Raw Score

Raw score of vitality (VT) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C19729 Laboratory procedure vitamin D twenty five hydroxy measurement

Measurement of the amount of vitamin D twenty five hydroxy in the participant's blood

 Exploratory Diabetes Labs False Mitochondrial Disease Mitochondrial Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C54263 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval lower bound value

Confidence interval lower bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C52356 12-item Short Form Health Survey Version 2 (SF-12v2) -Scaled score

Scaled score, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59747 Glycosylated hemoglobin measure method type

Type of method used to measure glycosylated hemoglobin (HbA1C)

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59878 Maximum sway excursion forward right position percent value

Value of the percent of maximum sway excursion in a forward right position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20285 911 call hypoglycemia past year count

The count of the times that the participant called 911 (or their local equivalent) for hypoglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59755 Insulin inject difficult status

Status related to difficulty injecting insulin

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20022 Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason

Reason as related to not scanning either leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C59886 Vestibular head impulse test covert saccades count

Count of covert saccades encountered during vestibular head impulse testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20293 Urgent care clinic use other diabetes related past year count

The count of the times the participant used an after-hours or urgent care clinic for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59846 Positional test type

Type of positional testing performed

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59763 Medication diabetes DPP-4 inhibitor status

Status related to the use of DPP-4 (dipeptidyl peptidase 4) inhibitor medications for diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54249 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Line orientation total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Line Orientation Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60188 Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine spectra collect indicator

Indicator of whether phosphocreatine spectra was collected in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C20301 Medical office visit past year indicator

The indicator of whether the participant was seen by a health care provider at a medical office in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59854 Caloric irrigation type

Type of caloric irrigation

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
Displaying 501 - 525 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.