CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 501 - 525 of 1834
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20022 Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason

Reason as related to not scanning either leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C20240 Imaging two dimensional speckle tracking echocardiography date

Date of the two dimensional speckle tracking echocardiography

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C59764 Medication diabetes SGLT2 inhibitor status

Status related to the use of SGLT2 (sodium-glucose cotransporter-2) inhibitor medications for diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54250 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Picture naming total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Picture Naming Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20302 Hospital admission hypoglycemia past year total day count

The total duration, in days, of all of the participant's admissions to hospital for hypoglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20261 Hypoglycemia severe loss of consciousness seizure post diabetes diagnosis indicator

The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the time since their diagnosis of diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C60188 Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine spectra collect indicator

Indicator of whether phosphocreatine spectra was collected in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C20316 Imaging two dimensional speckle tracking echocardiography four chamber view segmental strain anatomic site

Anatomic site identifying the myocardial segment in the four chamber view measured for segmental strain using two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C06358 Diabetes mellitus type

Type of diabetes mellitus

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20270 Insulin basal total daily unit count

The daily total of basal or long acting insulin used by the participant, in units

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20278 Emergency room use past year count

The count of the times the participant used the emergency room in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54273 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus language difference score

Difference score calculated as a subtraction of Language index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20244 Diabetes insulin receive diagnosis indicator

The indicator of whether the participant received insulin at the time the diabetes was diagnosed

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59867 Upward gaze perform indicator

Indicator of whether upward gaze was performed by the participant during testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C54281 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20254 Family history high cholesterol parent type

The type of the participant's parent with a history of high cholesterol

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59875 Step acceleration test 240 degree per second condition type

Type of 240 degree per second step acceleration condition tested

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C08507 36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score

Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59836 Electrocochleography abnormal result text

Free-text field describing the abnormal result of the electrocochleography test

 Exploratory Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59883 Maximum sway excursion left position percent value

Value of the percent of maximum sway excursion in a left position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C52342 12-item Short Form Health Survey Version 2 (SF-12v2)- Less accomplished emotional problems scale

Scale for surveyee-reported less accomplishment as a result of emotional problems, as part of version2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54257 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure recall total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Recall Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59770 Medication hypoglycemia indicator

Indicator of whether the participant has taken any medication for hypoglycemia

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C52350 12-item Short Form Health Survey Version 2 (SF-12v2) - Role Physical Raw Score

Raw score of role physical (RP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59851 Positional test lateral left status

Status of the participant's eye movement in a lateral left position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
Displaying 501 - 525 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.