CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60266 Genetic test methodology text

The free-text field to specify the test methodology for genetic testing

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C59782 Otoscopy pinna abnormal type

Type of abnormal otoscopy finding for the pinna

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19703 Imaging cerebellum component type

Type of cerebellum component

Core Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C10931 Imaging quality technically satisfactory status

Status related to whether the quality of the images was technically satisfactory

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60217 Imaging normal lumbosacral spine indicator

Indicator whether the lumbosacral spine Magnetic Resonance Imaging (MRI) is normal

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10837 Imaging gap between slices measurement

Measurement of the gap between slices used in imaging acquisition

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59790 Audiometry test laterality type

Type of laterality for the audiometry testing

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C60073 Imaging diffusion-weighted imaging white matter normality status

Status related to whether the white matter appears normal or abnormal on diffusion-weighted imaging DWI

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60081 Imaging subependymal cyst anatomic site

Anatomic site of the subependymal cysts found in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60083 Imaging brain abnormal enhancement anatomic site

Anatomic site of abnormal enhancement found in brain imaging study

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C10813 Adopted indicator

Indicator of whether the participant was adopted

Core Family History Mitochondrial Disease Mitochondrial Disease
C60252 Diagnosis primary clinical mitochondrial disease status

Status of the primary clinical mitochondrial disease diagnosis

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C19602 Genetic test mutation clinical category

The category for the type of mutation in clinical setting

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60150 Imaging scanner parameter mA value

Number value of the mA image acquisition parameters used for computed tomography imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C19614 DNA change text

The free-text field listing DNA change

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60158 Imaging hemorrhage lobe anatomic site specify text

Free-text field to specify name of the lobe where the hemorrhage is located

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C18860 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site other text

The free-text field related to 'Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site', specifying other text. Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12491 Imaging ventricle abnormality type

The type of abnormality in the ventricles on the image

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60166 Imaging brain atrophy status

Status of brain atrophy found in imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60065 Imaging quality technically satisfactory partial specify text

Free-text field specifying a description of why the quality of images from the study are partially technically satisfactory

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C13786 Imaging chronic infarct present indicator

Indicates presence of chronic infarct(s)

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C10927 Imaging inversion time duration

Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59791 Tympanometry stimulus tone frequency type

Type of frequency of the stimulus tone used in tympanometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12491 Imaging ventricle abnormality type

The type of abnormality in the ventricles on the image

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 51 - 75 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.