CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20312 Imaging two dimensional speckle tracking echocardiography ventricle circumferential strain assessment result

The result of circumferential strain as related to ventricle in the two dimensional speckle tracking echocardiography

 Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition.

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Mitochondrial Disease Mitochondrial Disease
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition.

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Mitochondrial Disease Mitochondrial Disease
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition.

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Mitochondrial Disease Mitochondrial Disease
C20319 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain assessment result

The result in two chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

 Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C20025 Imaging phosphorus magnetic resonance spectroscopy relax spectrum assessment status

The status as related to full relaxed sprectrum being completed for phosphorus magnetic resonance spectroscopy (31PMRS).

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) False Mitochondrial Disease Mitochondrial Disease
C20313 Imaging two dimensional speckle tracking echocardiography ventricle radial strain assessment result

The result of radial strain as related to ventricle in the two dimensional speckle tracking echocardiography

 Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Mitochondrial Disease Mitochondrial Disease
C20320 Imaging two dimensional speckle tracking echocardiography long axis segmental strain assessment anatomic site

The anatomic site in long axis view segmental strain as related to the two dimensional speckle tracking echocardiography

 Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C08523 36-item Short Form Health Survey (SF-36) - Times pep score

Score of times feeling full of pep during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Mitochondrial Disease Mitochondrial Disease
C54558 Children?s Depression Inventory-2 (CDI-2) ? Self-report item 10 score

Score for the self-report item 10 as part of the Children's Depression Inventory – 2 (CDI-2).

 Supplemental Children's Depression Inventory - 2 (CDI-2) True Mitochondrial Disease Mitochondrial Disease
C52989 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score match sample lapse count

Count related to the number of lapses of the matching to sample composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C20012 World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - fracture probability percentage value

The score as the 10 year probability of fracture related to the World Health Organization (WHO) Fracture Risk Assessment tool (FRAX) - score for adults between the ages of 40-90.

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C12866 Echocardiogram left atrial area measurement

Area of the left atrium measured from apical 4-chamber view using echocardiography

 Supplemental Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C51693 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 3:0 copy circle observation text

Text describing the observations made on the subject's copied circle sketch for the age norm of 3 years, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C50426 Child and Adolescent Scale of Environment (CASE) - Home design layout problem indicator

The indicator relating to the child having a problem with the design or layout of his/her home, as part of the Child Adolescent Scale of Environment (CASE)

 Supplemental Child and Adolescent Scale of Environment (CASE) True Mitochondrial Disease Mitochondrial Disease
C13212 Generalized Anxiety Disorder (GAD-7) - total score

Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7).

 Supplemental Generalized Anxiety Disorder (GAD-7) True Mitochondrial Disease Mitochondrial Disease
C07133 Craig Handicap and Assessment Reporting Technique (CHART-SF) - Physical Independence Score

Total physical independence score (0-100)

 Supplemental Craig Handicap and Assessment Reporting Technique (CHART-SF) - Paper version True Mitochondrial Disease Mitochondrial Disease
C08532 36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score

Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Mitochondrial Disease Mitochondrial Disease
C52885 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score simple reaction time lapses count

Count related to the number of lapses simple reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C20235 Mitochondrial disease concern accused Munchausen by proxy syndrome indicator

Indicator of whether participant/subject is concerned about being accused of having Munchausen by proxy?

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C09592 Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score

The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Mitochondrial Disease Mitochondrial Disease
C20047 Mitochondrial disease dietary other restriction text

The free text field to specify whether participant/subject have other dietary retrictions

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C00008 Age value

Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject.

 Supplemental Behavior Rating Inventory of Executive Function (BRIEF) ? Second Edition (BRIEF-2) True Mitochondrial Disease Mitochondrial Disease
Displaying 51 - 75 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.