CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 476 - 500 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59774 Hypoglycemia cause indicator

Indicator of whether the participant with a diagnosis of hypoglycemia has been told the cause

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C52347 12-item Short Form Health Survey Version 2 (SF-12v2) -Role Emotional Raw Score

Raw score of role emotional (RE) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54262 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value

Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59855 Peak slow-phase eye velocity measurement

Measurement of the peak slow-phase eye velocity (PSEV)

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C58756 Lab test result standard unit of measure

Unit of measure for the laboratory test result from a standardized list

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20276 Insulin pen use indicator

The indicator of whether the participant uses an insulin pen

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59746 Glycosylated hemoglobin diabetes diagnosis value

Value of glycosylated hemoglobin (A1C) at diabetes diagnosis

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20284 911 call diabetes past year count

The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59754 Insulin premix dose

Dose of premix insulin taken by the participant

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20292 Urgent care clinic use hyperglycemia past year count

The count of the times the participant used an after-hours or urgent care clinic for hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C60185 Muscle group type other text

The free text field related to 'Muscle group type', specifying other text. Type of muscle group

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C59762 Medication diabetes GLP-1 agonist status

Status related to the use of GLP-1 (glucagon-like-peptide 1) agonist medications for diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54248 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure copy total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Copy Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20313 Imaging two dimensional speckle tracking echocardiography left ventricle radial strain value

Value, as a percentage, of radial strain in the left ventricle measured by two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C20300 Hospital admission not diabetes related past year count

The count of the times the participant was admitted to hospital for reasons unrelated to diabetes in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20321 Imaging two dimensional speckle tracking echocardiography long axis segmental strain value

Value of segmental strain in the long axis (three-chamber) view measured by two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C20308 Dietician consult past year indicator

The indicator of whether the participant consulted a dietician in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20267 Blood glucose test daily frequency

The daily frequency with which the participant checks their blood glucose

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54263 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval lower bound value

Confidence interval lower bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59856 Caloric irrigation asymmetry percent value

Value of the percent of asymmetry associated with caloric irrigation

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C52356 12-item Short Form Health Survey Version 2 (SF-12v2) -Scaled score

Scaled score, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54271 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Standardization sample difference frequency

Frequency of difference in standardization sample, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form B

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59864 Ocular vestibular-evoked myogenic potential N1 latency measurement

Measurement of the first negative peak (N1) latency obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20242 Diabetes clinical symptom presentation diagnosis type

Clinical symptoms participant showed at presentation when diagnosed with diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54279 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
Displaying 476 - 500 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.