CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 451 - 475 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59773 Hypoglycemia feed change type

Type of change in feeding due to hypoglycemia

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59757 Insulin inject difficult type other text

The free-text field related to 'Insulin inject difficult type', specifying other text. Type of difficulty injecting insulin

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20295 Hospital admission past year indicator

The indicator of whether the participant was admitted to hospital in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59854 Caloric irrigation type

Type of caloric irrigation

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C54251 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Semantic fluency total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Semantic Fluency Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20303 Hospital admission hyperglycemia past year total day count

The total duration, in days, of all of the participant's admissions to hospital for hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20262 Hypoglycemia severe loss consciousness seizure past year indicator

The indicator of whether the participant has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59862 Sternocleidomastoid muscle activity monitor indicator

Indicator of whether sternocleidomastoid muscle (SCM) activity was monitored during the testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C19722 Laboratory procedure glycosylated hemoglobin measurement

Measurement of the amount of glycosylated hemoglobin (hemoglobin A1C) in the participant's blood

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20271 Insulin bolus total daily unit count

The daily total of bolus or short acting insulin used by the participant, in units

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59870 Vestibulo-ocular reflex gain measurement

Measurement of the vestibulo-ocular reflex (VOR) gain (the ratio of eye velocity to chair (head) velocity) captured during testing

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C52351 12-item Short Form Health Survey Version 2 (SF-12v2) -Social Functioning Raw Score

Raw score of soocial functioning (SF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54266 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Scaled score

Scaled score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60184 Muscle group type

Type of muscle group

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C10539 Diabetes first diagnosis age value

Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20312 Imaging two dimensional speckle tracking echocardiography left ventricle circumferential strain value

Value of circumferential strain in the left ventricle measured by two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C54274 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20245 Full term birth indicator

Indicator of whether the participant was born at full term

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20320 Imaging two dimensional speckle tracking echocardiography long axis segmental strain anatomic site

Anatomic site identifying the myocardial segment in the long axis (three chamber) view measured for segmental strain using two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C54282 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20255 Family history hypertension parent type

The type of the participant's parent with a history of hypertension

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C08522 36-item Short Form Health Survey (SF-36) - Pain interfere work score

Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C52343 12-item Short Form Health Survey Version 2 (SF-12v2) - Work not carefully emotional problem scale

Scale for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C54258 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval percentage value

Confidence interval percentage value, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
Displaying 451 - 475 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.