CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3085-C20246	C20246	Birth premature week early count	The count of weeks early that the participant was born prematurely	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54283	C54283	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C20257	C20257	Medication reduce blood sugar prior diagnosis diabetes indicator	The indicator of whether the participant had been on medication to reduce blood sugar levels prior to diagnosis of the diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20021	C20021	Imaging 31 phosphorus magnetic resonance spectroscopy right leg not scan reason	Free-text field for reason as related to not scanning right leg in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C17397	C17397	Visit number	The numeric value associated with a particular assessment/examination of a participant/subject on a study	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54253	C54253	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Coding total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Coding Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3126-C59835	C59835	Electrocochleography result status	Status of the result of the electrocochleography test performed	Exploratory	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20305	C20305	Hospital admission not diabetes related past year total day count	The total duration, in days, of all of the participant's admissions to hospital for reasons not related to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20264	C20264	Diabetic ketoacidosis emergency past year count	The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59882	C59882	Maximum sway excursion backward left position percent value	Value of the percent of maximum sway excursion in a backward left position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20004	C20004	Hypoglycemia diagnosis type	The type related to having concern or diagnosis of hypoglycemia or low blood sugar	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20273	C20273	Insulin premix current use status	Status indicating whether the participant currently uses premix insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59769	C59769	Dietician consult count unknown status	Status related to the count of times the participant consulted a dietician is unknown	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59850	C59850	Positional test lateral right status	Status of the participant's eye movement in a lateral right position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59743	C59743	Genetic test diabetes indicator	Indicator related to whether the participant had genetic testing related to diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3092-C19729	C19729	Laboratory procedure vitamin D twenty five hydroxy measurement	Measurement of the amount of vitamin D twenty five hydroxy in the participant's blood	Exploratory	Diabetes Labs	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20281	C20281	Emergency room use other diabetes related past year count	The count of the times the participant used the emergency room for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59858	C59858	Cervical vestibular-evoked myogenic potential P1 latency measurement	Measurement of the first positive peak (P1) latency obtained by cervical vestibular-evoked myogenic potential (VEMP) testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59751	C59751	Insulin basal current use status	Status indicating whether the participant currently uses basal or long acting insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20289	C20289	Urgent care clinic use past year indicator	The indicator of whether the participant has used after-hours or urgent care clinic other than the emergency room in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59866	C59866	Ocular vestibular-evoked myogenic potential P1-N1 amplitude ratio value	Value of the first positive to negative peak (P1-N1) amplitude ratio obtained by ocular vestibular-evoked myogenic potential (VEMP) testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59759	C59759	Medication diabetes biguanide status	Status related to the use of biguanide medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C21109	C21109	Visit assessment complete type	Type of assessment completed during visit	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C20297	C20297	Hospital admission hypoglycemia past year count	The count of the times the participant was admitted to hospital for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59874	C59874	Step acceleration test 60 degree per second time constant value	Value of the time constant for the 60 degree per second step acceleration tested	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.