CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3090-C20025	C20025	Imaging 31 phosphorus magnetic resonance spectroscopy spectrum assessment status	Status as related to spectrum being completed for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59878	C59878	Maximum sway excursion forward right position percent value	Value of the percent of maximum sway excursion in a forward right position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59762	C59762	Medication diabetes GLP-1 agonist status	Status related to the use of GLP-1 (glucagon-like-peptide 1) agonist medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F3085-C20300	C20300	Hospital admission not diabetes related past year count	The count of the times the participant was admitted to hospital for reasons unrelated to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59765	C59765	Medication diabetes other not insulin status	Status related to the use of other medications for diabetes other than insulin	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59886	C59886	Vestibular head impulse test covert saccades count	Count of covert saccades encountered during vestibular head impulse testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59846	C59846	Positional test type	Type of positional testing performed	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20308	C20308	Dietician consult past year indicator	The indicator of whether the participant consulted a dietician in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20267	C20267	Blood glucose test daily frequency	The daily frequency with which the participant checks their blood glucose	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59773	C59773	Hypoglycemia feed change type	Type of change in feeding due to hypoglycemia	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59854	C59854	Caloric irrigation type	Type of caloric irrigation	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C58756	C58756	Lab test result standard unit of measure	Unit of measure for the laboratory test result from a standardized list	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20276	C20276	Insulin pen use indicator	The indicator of whether the participant uses an insulin pen	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59862	C59862	Sternocleidomastoid muscle activity monitor indicator	Indicator of whether sternocleidomastoid muscle (SCM) activity was monitored during the testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59746	C59746	Glycosylated hemoglobin diabetes diagnosis value	Value of glycosylated hemoglobin (A1C) at diabetes diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20284	C20284	911 call diabetes past year count	The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3127-C59870	C59870	Vestibulo-ocular reflex gain measurement	Measurement of the vestibulo-ocular reflex (VOR) gain (the ratio of eye velocity to chair (head) velocity) captured during testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59754	C59754	Insulin premix dose	Dose of premix insulin taken by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20292	C20292	Urgent care clinic use hyperglycemia past year count	The count of the times the participant used an after-hours or urgent care clinic for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54251	C54251	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Semantic fluency total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Semantic Fluency Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3090-C60184	C60184	Muscle group type	Type of muscle group	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20259	C20259	Diabetic ketoacidosis emergency post diagnosis diabetes indicator	The indicator of whether the participant has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment, in the time since their diagnosis of diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C19247	C19247	Subject ID	Subject identification ID	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F3135-C20312	C20312	Imaging two dimensional speckle tracking echocardiography left ventricle circumferential strain value	Value of circumferential strain in the left ventricle measured by two dimensional speckle tracking echocardiography (2D STE)	Exploratory	Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.