CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 426 - 450 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20270 Insulin basal total daily unit count

The daily total of basal or long acting insulin used by the participant, in units

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C60352 Sleep efficiency score

Score for the participant's sleep efficiency calculated by wearable technology software algorithm

Exploratory Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C20278 Emergency room use past year count

The count of the times the participant used the emergency room in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54273 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus language difference score

Difference score calculated as a subtraction of Language index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59860 Cervical vestibular-evoked myogenic potential P1-N1 amplitude measurement

Measurement of the first positive to negative peak (P1-N1) amplitude obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20244 Diabetes insulin receive diagnosis indicator

The indicator of whether the participant received insulin at the time the diabetes was diagnosed

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54281 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59868 Angular rotation frequency

Frequency of angular rotation used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing (RVT)

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59829 Auditory steady state response threshold measurement

Measurement of the hearing threshold obtained by auditory steady state response (ASSR)

Exploratory Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20254 Family history high cholesterol parent type

The type of the participant's parent with a history of high cholesterol

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C08507 36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score

Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C59876 Step acceleration test 240 degree per second asymmetry value

Value of the asymmetry for the 240 degree per second step acceleration tested

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C54249 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Line orientation total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Line Orientation Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C52342 12-item Short Form Health Survey Version 2 (SF-12v2)- Less accomplished emotional problems scale

Scale for surveyee-reported less accomplishment as a result of emotional problems, as part of version2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C59884 Maximum sway excursion forward left position percent value

Value of the percent of maximum sway excursion in a forward left position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59771 Medication hypoglycemia type

Type of medication taken for hypoglycemia

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54257 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure recall total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Recall Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C52350 12-item Short Form Health Survey Version 2 (SF-12v2) - Role Physical Raw Score

Raw score of role physical (RP) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54265 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Subtest type

Subtest type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59852 Positional test right status

Status of the participant's eye movement in a static right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59749 Family history insulin current use indicator

Indicator of whether the close family member (mother, father, sibling, or grandparent only) of the participant with diabetes is currently on insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20287 911 call diabetes related other past year count

The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes other than hypoglycemia or hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 426 - 450 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.