CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 401 - 425 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20247 Imaging scanner model name text

The free-text field related to name of model of imaging scanner

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20266 Hypoglycemia severe loss consciousness seizure post diabetes diagnosis count

The count of episodes of severe hypoglycemia resulting in loss of consciousness or seizure experienced by the participant in the time since they were diagnosed with diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59869 Sinusoidal harmonic acceleration velocity measurement

Measurement of the velocity used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20269 Insulin delivery method last use type

The insulin delivery method used most recently by the participant

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20317 Imaging two dimensional speckle tracking echocardiography four chamber segmental strain value

Value of segmental strain in the four chamber view measured by two dimensional speckle tracking echocardiography (2D STE)

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20275 Insulin injection daily count

The daily count of insulin injections used by the participant

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59770 Medication hypoglycemia indicator

Indicator of whether the participant has taken any medication for hypoglycemia

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59877 Maximum sway excursion forward position percent value

Value of the percent of maximum sway excursion in a forward position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59745 BMI diabetes diagnosis category

Category of the participant's BMI (body mass index) at the time of diabetes diagnosis

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20283 911 call diabetes past year indicator

The indicator of whether the participant has called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59885 Vestibular head impulse test type

Type of vestibular head impulse testing performed

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59753 Insulin neutral protamine hagedorn dose

Dose of neutral protamine hagedorn (NPH) insulin taken by the participant

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20291 Urgent care clinic use hypoglycemia past year count

The count of the times the participant used an after-hours or urgent care clinic for hypoglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54253 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Coding total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Coding Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C20260 Diabetic ketoacidosis emergency past year indicator

The indicator of whether the participant has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20023 Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason other text

The free text field related to 'Imaging 31 phosphorus magnetic resonance spectroscopy leg not scan reason', specifying other text. The reason as related to not scanning leg for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C52339 Subject initial text

The free-text field related to the initials of the subject

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54254 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recall total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recall Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60189 Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine recovery duration

Duration, in seconds, of phosphocreatine recovery in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C52347 12-item Short Form Health Survey Version 2 (SF-12v2) -Role Emotional Raw Score

Raw score of role emotional (RE) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54262 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value

Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C52355 12-item Short Form Health Survey Version 2 (SF-12v2) - General Health Raw Score

Raw score of general health (GH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54270 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Statistical significance value

Statistical significance, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C54278 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C21109 Visit assessment complete type

Type of assessment completed during visit

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
Displaying 401 - 425 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.