CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59873 Step acceleration test 60 degree per second condition type

Type of 60 degree per second step acceleration condition tested

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59834 Electrocochleography perform status

Status of whether electrocochleography was performed

 Exploratory Hearing Loss in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C18241 Diagnosis age value unit of measure

Unit of measure for age value of the participant when initially diagnosed with disease/disorder

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54276 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus attention difference score

Difference score calculated as a subtraction of Attention index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59881 Maximum sway excursion backward position percent value

Value of the percent of maximum sway excursion in a backward position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20249 Family history diabetes relative type

Relationship to the participant of the family member with diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54284 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C59849 Positional test head left status

Status of the participant's eye movement in a head left facing position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20258 Medication reduce blood sugar prior diagnosis type

The type of the medication to reduce blood sugar levels taken by the participant prior to diagnosis of the condition/disorder

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59857 Caloric irrigation preponderance percent value

Value of the percent of preponderance associated with caloric irrigation

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C59772 Hypoglycemia feed change indicator

Indicator of whether any changes in feeding due to hypoglycemia have been made

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C52345 12-item Short Form Health Survey Version 2 (SF-12v2) - Times energy scale

Scale of times having a lot of energy during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C54260 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Index type

Index type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20005 Hypoglycemia symptom diagnosis text

The free-text field related to 'Hypoglycemia diagnosis type', specifying the symptom related to having concern or diagnosis of hypoglycemia or low blood sugar

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20274 Insulin miss dose past two week count

The count of insulin doses missed by the participant in the past two weeks

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59744 Genetic test diabetes result text

Free-text field related to the results of diabetes genetic testing

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20282 Emergency room use not diabetes related past year count

The count of the times the participant used the emergency room for reasons unrelated to diabetes in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59752 Insulin bolus current use status

Status indicating whether the participant currently uses bolus or short acting insulin

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20290 Urgent care clinic use past year count

The count of the times the participant used an after-hours or urgent care clinic other than the emergency room in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20315 Imaging two dimensional speckle tracking echocardiography global strain value

Value of global strain measured by two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C20025 Imaging 31 phosphorus magnetic resonance spectroscopy spectrum assessment status

Status as related to spectrum being completed for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C59760 Medication diabetes sulfonylurea status

Status related to the use of sulfonylurea medications for diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54246 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List learning total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Learning Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20298 Hospital admission hyperglycemia past year count

The count of the times the participant was admitted to hospital for hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
Displaying 401 - 425 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.