CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 376 - 400 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20290 Urgent care clinic use past year count

The count of the times the participant used an after-hours or urgent care clinic other than the emergency room in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59760 Medication diabetes sulfonylurea status

Status related to the use of sulfonylurea medications for diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54246 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List learning total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Learning Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60185 Muscle group type other text

The free text field related to 'Muscle group type', specifying other text. Type of muscle group

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C59880 Maximum sway excursion backward right percent value

Value of the percent of maximum sway excursion in a backward right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20259 Diabetic ketoacidosis emergency post diagnosis diabetes indicator

The indicator of whether the participant has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment, in the time since their diagnosis of diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19247 Subject ID

Subject identification ID

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C59767 Medical office visit diabetes past year count unknown status

Status related to count of times that the participant was seen by a health care provider at a medical office for reasons related to diabetes in the past 12 months is unknown

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59888 Vestibular head impulse test vertical canal plane type

Type of planes for the vertical canals in vestibular head impulse testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59848 Positional test head right status

Status of the participant's eye movement in a head right facing position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C52346 12-item Short Form Health Survey Version 2 (SF-12v2) - Times downhearted depressed scale

Scale of times feeling downhearted and depressed during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C59775 Hypoglycemia diagnosis reason

Reason for hypoglycemia diagnosis

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C54261 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall index score

Index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59856 Caloric irrigation asymmetry percent value

Value of the percent of asymmetry associated with caloric irrigation

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C52354 12-item Short Form Health Survey Version 2 (SF-12v2) - Physical Functioning Raw Score

Raw score of physical functioning (PF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54269 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus visuospatial constructional difference score

Difference score calculated as a subtraction of Visuospatial/Constructional index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59864 Ocular vestibular-evoked myogenic potential N1 latency measurement

Measurement of the first negative peak (N1) latency obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19670 Family history diagnosis age unknown status

Status related to whether the participant knows the age of the relative when diagnosed

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54277 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus language difference score

Difference score calculated as a subtraction of Language index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59872 Vestibulo-ocular reflex symmetry measurement

Measurement of the vestibulo-ocular reflex (VOR) symmetry captured during testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59833 Electrocochleography type

Type of electrocochleography test

Exploratory Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20250 Family history diabetes medical condition indicator

Indicator of whether a close family member (mother, father, sibling, or grandparent only) of the participant has had a history of diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54285 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Delayed memory versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Delayed Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C54247 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
Displaying 376 - 400 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.