CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C06000 Site identifier number

Unique identification number given to the study site to distinguish the location where data is recorded

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59881 Maximum sway excursion backward position percent value

Value of the percent of maximum sway excursion in a backward position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20260 Diabetic ketoacidosis emergency past year indicator

The indicator of whether the participant has experienced a diabetic ketoacidosis (DKA) episode requiring emergency or urgent treatment in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C52339 Subject initial text

The free-text field related to the initials of the subject

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C59768 Medical office visit not diabetes related past year count unknown status

Status related to count of times that the participant was seen by a health care provider at a medical office for reasons not related to diabetes in the past 12 months is unknown

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54254 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recall total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recall Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C20267 Blood glucose test daily frequency

The daily frequency with which the participant checks their blood glucose

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C58756 Lab test result standard unit of measure

Unit of measure for the laboratory test result from a standardized list

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20276 Insulin pen use indicator

The indicator of whether the participant uses an insulin pen

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59746 Glycosylated hemoglobin diabetes diagnosis value

Value of glycosylated hemoglobin (A1C) at diabetes diagnosis

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20284 911 call diabetes past year count

The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59754 Insulin premix dose

Dose of premix insulin taken by the participant

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20021 Imaging 31 phosphorus magnetic resonance spectroscopy right leg not scan reason

Free-text field for reason as related to not scanning right leg in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C20292 Urgent care clinic use hyperglycemia past year count

The count of the times the participant used an after-hours or urgent care clinic for hyperglycemia in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59762 Medication diabetes GLP-1 agonist status

Status related to the use of GLP-1 (glucagon-like-peptide 1) agonist medications for diabetes

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C54248 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure copy total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Copy Subtest

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
C60187 Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine depletion level measurement

Measurement, as a percentage of rest, of the approximate level of phosphocreatine (PCr) depletion in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

 Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) False Mitochondrial Disease Mitochondrial Disease
C20300 Hospital admission not diabetes related past year count

The count of the times the participant was admitted to hospital for reasons unrelated to diabetes in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20315 Imaging two dimensional speckle tracking echocardiography global strain value

Value of global strain measured by two dimensional speckle tracking echocardiography (2D STE)

 Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging False Mitochondrial Disease Mitochondrial Disease
C20308 Dietician consult past year indicator

The indicator of whether the participant consulted a dietician in the past 12 months

 Exploratory Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C59850 Positional test lateral right status

Status of the participant's eye movement in a lateral right position

 Exploratory Vestibular Function in Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C52348 12-item Short Form Health Survey Version 2 (SF-12v2) - Vitality Raw Score

Raw score of vitality (VT) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Mitochondrial Disease Mitochondrial Disease
C19729 Laboratory procedure vitamin D twenty five hydroxy measurement

Measurement of the amount of vitamin D twenty five hydroxy in the participant's blood

 Exploratory Diabetes Labs False Mitochondrial Disease Mitochondrial Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) True Mitochondrial Disease Mitochondrial Disease
C54263 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval lower bound value

Confidence interval lower bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Mitochondrial Disease Mitochondrial Disease
Displaying 376 - 400 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.