CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 351 - 375 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20276 Insulin pen use indicator

The indicator of whether the participant uses an insulin pen

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59746 Glycosylated hemoglobin diabetes diagnosis value

Value of glycosylated hemoglobin (A1C) at diabetes diagnosis

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20284 911 call diabetes past year count

The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59754 Insulin premix dose

Dose of premix insulin taken by the participant

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20021 Imaging 31 phosphorus magnetic resonance spectroscopy right leg not scan reason

Free-text field for reason as related to not scanning right leg in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C20292 Urgent care clinic use hyperglycemia past year count

The count of the times the participant used an after-hours or urgent care clinic for hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59762 Medication diabetes GLP-1 agonist status

Status related to the use of GLP-1 (glucagon-like-peptide 1) agonist medications for diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54248 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure copy total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Copy Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60187 Imaging 31 phosphorus magnetic resonance spectroscopy phosphocreatine depletion level measurement

Measurement, as a percentage of rest, of the approximate level of phosphocreatine (PCr) depletion in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C20300 Hospital admission not diabetes related past year count

The count of the times the participant was admitted to hospital for reasons unrelated to diabetes in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20315 Imaging two dimensional speckle tracking echocardiography global strain value

Value of global strain measured by two dimensional speckle tracking echocardiography (2D STE)

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C59850 Positional test lateral right status

Status of the participant's eye movement in a lateral right position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C52348 12-item Short Form Health Survey Version 2 (SF-12v2) - Vitality Raw Score

Raw score of vitality (VT) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C19729 Laboratory procedure vitamin D twenty five hydroxy measurement

Measurement of the amount of vitamin D twenty five hydroxy in the participant's blood

Exploratory Diabetes Labs Mitochondrial Disease Mitochondrial Disease
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C54263 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval lower bound value

Confidence interval lower bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59858 Cervical vestibular-evoked myogenic potential P1 latency measurement

Measurement of the first positive peak (P1) latency obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C52356 12-item Short Form Health Survey Version 2 (SF-12v2) -Scaled score

Scaled score, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54271 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Standardization sample difference frequency

Frequency of difference in standardization sample, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form B

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59866 Ocular vestibular-evoked myogenic potential P1-N1 amplitude ratio value

Value of the first positive to negative peak (P1-N1) amplitude ratio obtained by ocular vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20242 Diabetes clinical symptom presentation diagnosis type

Clinical symptoms participant showed at presentation when diagnosed with diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54279 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59874 Step acceleration test 60 degree per second time constant value

Value of the time constant for the 60 degree per second step acceleration tested

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59835 Electrocochleography result status

Status of the result of the electrocochleography test performed

Exploratory Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20252 Family history heart problem parent type

The type of the participant's parent with a history of heart attacks, heart failure or other heart problems

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 351 - 375 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.