CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 326 - 350 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C54259 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Alpha level value

Confidence interval alpha level, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59854 Caloric irrigation type

Type of caloric irrigation

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C52352 12-item Short Form Health Survey Version 2 (SF-12v2) -Mental Health Raw Score

Raw score of mental health (MH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54267 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Percentile group type

Percentile group type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59862 Sternocleidomastoid muscle activity monitor indicator

Indicator of whether sternocleidomastoid muscle (SCM) activity was monitored during the testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59751 Insulin basal current use status

Status indicating whether the participant currently uses basal or long acting insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20289 Urgent care clinic use past year indicator

The indicator of whether the participant has used after-hours or urgent care clinic other than the emergency room in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59759 Medication diabetes biguanide status

Status related to the use of biguanide medications for diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C21109 Visit assessment complete type

Type of assessment completed during visit

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C60184 Muscle group type

Type of muscle group

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C20297 Hospital admission hypoglycemia past year count

The count of the times the participant was admitted to hospital for hypoglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20312 Imaging two dimensional speckle tracking echocardiography left ventricle circumferential strain value

Value of circumferential strain in the left ventricle measured by two dimensional speckle tracking echocardiography (2D STE)

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C54253 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Coding total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Coding Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C20305 Hospital admission not diabetes related past year total day count

The total duration, in days, of all of the participant's admissions to hospital for reasons not related to diabetes in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20264 Diabetic ketoacidosis emergency past year count

The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20320 Imaging two dimensional speckle tracking echocardiography long axis segmental strain anatomic site

Anatomic site identifying the myocardial segment in the long axis (three chamber) view measured for segmental strain using two dimensional speckle tracking echocardiography (2D STE)

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20004 Hypoglycemia diagnosis type

The type related to having concern or diagnosis of hypoglycemia or low blood sugar

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20273 Insulin premix current use status

Status indicating whether the participant currently uses premix insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59743 Genetic test diabetes indicator

Indicator related to whether the participant had genetic testing related to diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20281 Emergency room use other diabetes related past year count

The count of the times the participant used the emergency room for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C18241 Diagnosis age value unit of measure

Unit of measure for age value of the participant when initially diagnosed with disease/disorder

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54276 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus attention difference score

Difference score calculated as a subtraction of Attention index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59871 Vestibulo-ocular reflex phase measurement

Measurement of the vestibulo-ocular reflex (VOR) phase captured during testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20249 Family history diabetes relative type

Relationship to the participant of the family member with diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 326 - 350 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.