CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 1834
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59885 Vestibular head impulse test type

Type of vestibular head impulse testing performed

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C52343 12-item Short Form Health Survey Version 2 (SF-12v2) - Work not carefully emotional problem scale

Scale for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C59772 Hypoglycemia feed change indicator

Indicator of whether any changes in feeding due to hypoglycemia have been made

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C54258 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval percentage value

Confidence interval percentage value, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59853 Positional test left status

Status of the participant's eye movement in a static left position

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C52351 12-item Short Form Health Survey Version 2 (SF-12v2) -Social Functioning Raw Score

Raw score of soocial functioning (SF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Mitochondrial Disease Mitochondrial Disease
C54266 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Scaled score

Scaled score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59861 Cervical vestibular-evoked myogenic potential P1-N1 amplitude ratio value

Value of the first positive to negative peak (P1-N1) amplitude ratio obtained by cervical vestibular-evoked myogenic potential (VEMP) testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C10539 Diabetes first diagnosis age value

Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C54274 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C59869 Sinusoidal harmonic acceleration velocity measurement

Measurement of the velocity used in sinusoidal harmonic acceleration (SHA) rotational vestibular testing

Exploratory Vestibular Function in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C59758 Medication diabetes not insulin current former indicator

Indicator of whether the participant is currently taking or has previously taken any diabetes medication other than insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20025 Imaging 31 phosphorus magnetic resonance spectroscopy spectrum assessment status

Status as related to spectrum being completed for phosphorus magnetic resonance spectroscopy (31P-MRS) imaging

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31P-MRS) Mitochondrial Disease Mitochondrial Disease
C20296 Hospital admission past year count

The count of times the participant was admitted to hospital in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20311 Imaging two dimensional speckle tracking echocardiography left ventricle anatomic site

Anatomic site in the left ventricle measured for strain using two dimensional speckle tracking echocardiography (2D STE)

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C54252 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Digit span total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Digit Span Subtest

Exploratory Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Mitochondrial Disease Mitochondrial Disease
C20304 Hospital admission other diabetes related past year total day count

The total duration, in days, of all of the participant's admissions to hospital for reasons related to diabetes other than hypoglycemia or hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20263 Diabetic ketoacidosis emergency post diagnosis diabetes count

The count of diabetic ketoacidosis (DKA) episodes requiring emergency or urgent treatment experienced by the participant in the time since their diagnosis of diabetes

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20319 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain value

Value of segmental strain in the two-chamber view measured by two dimensional speckle tracking echocardiography (2D STE)

Exploratory Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20003 Hypoglycemia diagnosis indicator

The indicator related to having hypoglycemia or low blood sugar

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20272 Insulin neutral protamine hagedorn current use status

Status indicating whether the participant currently uses neutral protamine hagedorn (NPH) insulin

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59713 Hospitalization diabetes diagnosis indicator

Indicator of whether the participant was hospitalized at the time the diabetes was diagnosed

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C20280 Emergency room use hyperglycemia past year count

The count of the times the participant used the emergency room for hyperglycemia in the past 12 months

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C59750 Blood glucose test method type

Type of method used to test blood glucose

Exploratory Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
Displaying 301 - 325 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.