CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 301 - 325 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3127-C59848	C59848	Positional test head right status	Status of the participant's eye movement in a head right facing position	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20269	C20269	Insulin delivery method last use type	The insulin delivery method used most recently by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20275	C20275	Insulin injection daily count	The daily count of insulin injections used by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59745	C59745	BMI diabetes diagnosis category	Category of the participant's BMI (body mass index) at the time of diabetes diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20283	C20283	911 call diabetes past year indicator	The indicator of whether the participant has called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59753	C59753	Insulin neutral protamine hagedorn dose	Dose of neutral protamine hagedorn (NPH) insulin taken by the participant	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3090-C20020	C20020	Imaging 31 phosphorus magnetic resonance spectroscopy leg laterality type	Type as related to leg laterality in phosphorus magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20291	C20291	Urgent care clinic use hypoglycemia past year count	The count of the times the participant used an after-hours or urgent care clinic for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59761	C59761	Medication diabetes thiazolidinedione status	Status related to the use of thiazolidinedione medications for diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54247	C54247	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3090-C60186	C60186	Imaging 31 phosphorus magnetic resonance spectroscopy exercise protocol type	Type of exercise protocol used for phosphorous magnetic resonance spectroscopy (31P-MRS) imaging	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31P-MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20299	C20299	Hospital admission other diabetes related past year count	The count of the times the participant was admitted to hospital for diabetes-related reasons other than hypoglycemia or hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3135-C20314	C20314	Imaging two dimensional speckle tracking echocardiography global strain chamber view type	Type of chamber view for global strain as related to the two dimensional speckle tracking echocardiography (2D STE)	Exploratory	Two Dimensional Speckle Tracking (Strain) Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20307	C20307	Medical office visit not diabetes related past year count	The count of times that the participant was seen by a health care provider at a medical office for reasons not related to diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20266	C20266	Hypoglycemia severe loss consciousness seizure post diabetes diagnosis count	The count of episodes of severe hypoglycemia resulting in loss of consciousness or seizure experienced by the participant in the time since they were diagnosed with diabetes	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52347	C52347	12-item Short Form Health Survey Version 2 (SF-12v2) -Role Emotional Raw Score	Raw score of role emotional (RE) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2731-C20533	C20533	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category	Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54262	C54262	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value	Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59857	C59857	Caloric irrigation preponderance percent value	Value of the percent of preponderance associated with caloric irrigation	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C52355	C52355	12-item Short Form Health Survey Version 2 (SF-12v2) - General Health Raw Score	Raw score of general health (GH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2383-C54270	C54270	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Statistical significance value	Statistical significance, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59865	C59865	Ocular vestibular-evoked myogenic potential P1-N1 amplitude measurement	Measurement of the first positive to negative peak (P1-N1) amplitude obtained by ocular vestibular-evoked myogenic potential (VEMP) testing	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F2383-C54278	C54278	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Exploratory	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Mitochondrial Disease	Mitochondrial Disease
F3127-C59873	C59873	Step acceleration test 60 degree per second condition type	Type of 60 degree per second step acceleration condition tested	Exploratory	Vestibular Function in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59834	C59834	Electrocochleography perform status	Status of whether electrocochleography was performed	Exploratory	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 301 - 325 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.