CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 903
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19694 Imaging development malformation corpus callosum type

The type of malformations in development in the corpus callosum (thick band of nerve fibers that divides the cerebrum into
left and right hemisphere)

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20165 Mitochondrial disease abdominal pain disrupt activity indicator

Indicator of whether participant's/subject's abdominal pain disrupts activity

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12888 Echocardiogram right ventricle ejection fraction measurement

Fraction of blood pumped out of the right ventricles with each heart beat measured with echocardiography

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20294 Urgent care clinic use not diabetes related past year count

The count of the times the participant/subject used an after-hours or urgent care clinic for reasons unrelated to diabetes in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C11101 Pulmonary function test mouth apparatus type

Type of mouthpiece used for the pulmonary function test

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C19567 Biomarker muscle histology assessment type

Type of biomarker(s) assessed from muscle histology

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12848 Cardiac MRI left ventricle non-compaction result

Result of the evaluation of the left ventricle for non-compaction as observed by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C17959 Cardiovascular Holter exam longest run tachycardia episode value

Longest run of tachycardia episodes during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C09594 Brief Psychiatric Rating Scale (BPRS) - guilt feeling score

The score of the participant's/subject's feelings of guilt, as part of the Brief Psychiatric Rating Scale (BPRS) form.

Supplemental Brief Psychiatric Rating Scale (BPRS) Mitochondrial Disease Mitochondrial Disease
C19997 Imaging deep grey nuclei finding type

The finding related to imaging of the deep grey nuclei

Supplemental Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C20173 Mitochondrial disease prior abdominal pain reason

The reason the participant/subject thinks they or their child experienced prior abdominal pain

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C12896 Echocardiogram left ventricle end diastolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C20302 Hospital admission hypoglycemia past year total day count

The total duration, in days, of all of the participant's/subject's admissions to hospital for hypoglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C11112 Pulmonary function maximal voluntary ventilation (MVV) result value

Value representing the Maximal Voluntary Ventilation, in Liters per Minute, as the greatest volume of gas that can be breathed per minute by voluntary effort

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Mitochondrial Disease Mitochondrial Disease
C20133 Mitochondrial disease prior burp stopped specific text

The free text field to specify when participant's/subject's past burping stopped

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C16177 Post-menopausal indicator

Indicates whether participant/subject is post-menopausal

Supplemental Reproductive and Hormonal History Mitochondrial Disease Mitochondrial Disease
C20095 Mitochondrial disease current GERD heartburn mid-line chest pain esophageal burning age category

The category of the participant/subject's age at GERD, heartburn, mid-line chest, pain esophageal burning onset

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18168 Total cholesterol value

Total cholesterol level measured

Supplemental Laboratory Tests and Non-Imaging Diagnostics (Diabetes) Mitochondrial Disease Mitochondrial Disease
C20220 Mitochondrial disease alternative medicine type

Select the alternative medical treatments tried by the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C18857 Imaging brainstem abnormality other text

The free-text field related to 'Imaging brainstem abnormality type' specifying other text. The type of abnormality in the brainstem on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C21896 Brief Test of Adult Cognition by Telephone (BTACT) - Time duration

Time duration in seconds, as part of Brief Test of Adult Cognition by Telephone (BTACT)

Supplemental Brief Test of Adult Cognition by Telephone (BTACT) Mitochondrial Disease Mitochondrial Disease
C20055 Mitochondrial disease vomit episode intensity type

The type of intensity of the participant/subject's episodes of vomiting

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C19601 Genetic test tissue type

Type of tissue tested

Supplemental Genetics Testing Short Form Mitochondrial Disease Mitochondrial Disease
C12486 Imaging other cortical abnormality type

The type of other cortical abnormality

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 301 - 325 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.