CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1649
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C12479 Imaging cortex-pachygyria site type

The anatomical site(s) of the cortex-pachygyria

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C21117 Subject name

Name of subject/participant.

 Supplemental Children's Depression Inventory - 2 (CDI-2) True Mitochondrial Disease Mitochondrial Disease
C12896 Echocardiogram left ventricle end diastolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole.

 Supplemental Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C09605 Brief Psychiatric Rating Scale (BPRS) - blunted affect score

The score of the participant's/subject's blunted affect, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Supplemental Brief Psychiatric Rating Scale (BPRS) False Mitochondrial Disease Mitochondrial Disease
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac MRI

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C07135 Craig Handicap and Assessment Reporting Technique (CHART-SF) - Mobility Score

Total mobility score (0-100)

 Supplemental Craig Handicap and Assessment Reporting Technique (CHART-SF) - Interview version True Mitochondrial Disease Mitochondrial Disease
C10177 Slow vital capacity percent of predicted normal value

Value representing the percentage of the predicted normal value of Slow Vital Capacity (sVC) to grade the severity of the abnormality, where sVC is the total amount of air that can be blown out leisurely after a maximal deep breath.

 Supplemental Pulmonary Function False Mitochondrial Disease Mitochondrial Disease
C20121 Mitochondrial disease prior oral regurgitation frequency other text

The free text field to specify past frequency of participant's/subject's other oral regurgitation

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C09369 Hamilton Depression Rating Scale (HDRS) - suicide indicator

Score for the presence, qualities, and strength of the participant/subject's suicide-relevant thoughts and actions , if any, as part of the Hamilton Depression Rating Scale (HDRS)

 Supplemental Hamilton Depression Rating Scale (HDRS) False Mitochondrial Disease Mitochondrial Disease
C20249 Family history diabetes relative type

Relationship to the participant/subject of the family member with diabetes

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C16008 Birth control indicator

Indicates if participant/subject uses birth control

 Supplemental Reproductive and Hormonal History False Mitochondrial Disease Mitochondrial Disease
C51987 Child and Adolescent Scale of Participation (CASP) - Work responsibility scale

Scale to rate level of participation in work activities and responsibilities, compared to other children their age, as part of the Child and Adolescent Scale of Participation (CASP).

 Supplemental Child and Adolescent Scale of Participation (CASP) True Mitochondrial Disease Mitochondrial Disease
C20081 Mitochondrial disease prior vomit green yellow color frequency

The frequency with which the participant's/subject's vomit was green or yellow in prior episodes of vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C51676 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 1:1 Imitate mark or scribble score

The score the subject received on the imitated mark or scribble sketch for the age norm of 1 year and 1 month, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C52979 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score mathematical processing mean reaction time score

Count related to the mean reaction time score of the mathematical processing composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C19597 Genetic test trinucleotide repeat analysis tissue type

Type of tissue tested in the trinucleotide analysis test for genetics.

 Supplemental Genetics Testing Clinical Diagnostics False Mitochondrial Disease Mitochondrial Disease
C13076 American National Adult Reading Test (AmNART) - pronounce hiatus indicator

American National Adult Reading Test (AmNART) determining ability to correctly pronounce the word "hiatus".

 Supplemental American National Adult Reading Test (AmNART) True Mitochondrial Disease Mitochondrial Disease
C21861 Beck Anxiety Inventory (BAI) - Total score interpretation type

Type of the total score (BAITotalScore) interpretation, as part of the Beck Anxiety Inventory (BAI)

 Supplemental Beck Anxiety Inventory (BAI) True Mitochondrial Disease Mitochondrial Disease
C19623 Head circumference percentile value

The participant/subject's head circumference percentile for age calculated using a standardized growth chart.

 Supplemental Vital Signs False Mitochondrial Disease Mitochondrial Disease
C12487 Imaging other cortical abnormality site type

The anatomical site(s) of the other cortical abnormality

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
C54555 Children?s Depression Inventory-2 (CDI-2) ? Self-report item 7 score

Score for the self-report item 7 as part of the Children's Depression Inventory – 2 (CDI-2).

 Supplemental Children's Depression Inventory - 2 (CDI-2) True Mitochondrial Disease Mitochondrial Disease
C53056 Axon Sports Computerized Cognitive Assessment Tool (CCAT) - Work memory speed score

Score related to working memory speed task, as part of the Axon Sports Computerized Cognitive Assessment Tool (CCAT).

 Supplemental Axon Sports Computerized Cognitive Assessment Tool (CCAT) True Mitochondrial Disease Mitochondrial Disease
C12904 Echocardiogram left ventricular mass measurement

The left ventricular volume calculated as the difference between the epicardium delimited volume and the left ventricular chamber volume.

 Supplemental Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C51779 Adaptive Behavior Assessment System III (ABAS III) - Carry personal ID when travel scale

Scale related to the adult carrying personal identification when traveling to nearby places in the community, as part of the Adaptive Behavior Assessment System III (ABAS III)

 Supplemental Adaptive Behavior Assessment Scale (ABAS-II) True Mitochondrial Disease Mitochondrial Disease
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Mitochondrial Disease Mitochondrial Disease
Displaying 276 - 300 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.