CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 903
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20142 Mitochondrial disease swallow problem frequency

The frequency with which the participant/subject has problems swallowing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20262 Hypoglycemia severe loss consciousness seizure past year indicator

The indicator of whether the participant/subject has experienced severe hypoglycemia resulting in a loss of consciousness or seizure, in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C18718 Imaging scanner strength value other text

The free-text field related to 'Imaging scanner strength value', specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C19613 Length Z score

The number of standard deviations the measured length of the subject/participant is above the mean

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C12874 Echocardiogram pulmonic regurgitation degree status

Assessment with echocardiography of whether there is regurgitation of the pulmonary valve of the heart

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12479 Imaging cortex-pachygyria site type

The anatomical site(s) of the cortex-pachygyria

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C17956 Cardiovascular ventricular dysrhythmia episode duration

Duration, in seconds, of the ventricular dysrhythmia episode

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C20190 Mitochondrial disease bloat abdominal distension time type

The type, as time of day, at which the abdominal bloating/distension is worse for the participant/subject

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C02495 Imaging scanner strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C04508 ECG previous myocardial infarction status

Status of patterns of previous myocardial infarction apparent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C20150 Mitochondrial disease remove food pill esophagus indicator

Indicator of whether participant/subject has food or pill removed from esophagus

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20271 Insulin bolus total daily unit count

The daily total of bolus or short acting insulin used by the participant/subject, in units

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C18858 Imaging pons abnormality other text

The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C19623 Head circumference percentile value

The participant/subject's head circumference percentile for age calculated using a standardized growth chart

Supplemental Vital Signs Mitochondrial Disease Mitochondrial Disease
C12893 Echocardiogram right ventricle wall motion abnormality indicator

Presence or absence of wall motion abnormalities in right ventricle

Supplemental Echocardiogram Mitochondrial Disease Mitochondrial Disease
C12487 Imaging other cortical abnormality site type

The anatomical site(s) of the other cortical abnormality

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C18882 Cardiovascular Holter exam ventricular dysrhythmia other text

The free-text field related to 'Cardiovascular Holter exam ventricular dysrhythmia type' specifying other text. Type of ventricular dysrhythmia detected during the Holter examination

Supplemental Holter Examination Mitochondrial Disease Mitochondrial Disease
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C20198 Mitochondrial disease prior abdominal distension cause air stool reason

The reason the participant/subject thought the belly was distended in prior episodes

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C17967 ECG administer date time clock type

Type of clock system used to record time of electrocardiogram (ECG) administration

Supplemental Electrocardiogram (ECG) Mitochondrial Disease Mitochondrial Disease
C20158 Mitochondrial disease abdominal pain anatomic site

Select where participant's/subject's abdominal pain is located

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C20279 Emergency room use hypoglycemia past year count

The count of the times the participant/subject used the emergency room for hypoglycemia in the past 12 months

Supplemental Diabetes-Related Medical History Mitochondrial Disease Mitochondrial Disease
C19549 Biomarker Sample Assessment Type

Type of sample obtained from specimen to assess the biomarker

Supplemental Biomarkers in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 276 - 300 of 903

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.