CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 1649
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20236 Mitochondrial disease Munchausen by proxy syndrome health care professional setting indicator

Indicator of whether participant/subject has been confronted by a health care professional about Munchausen by proxy syndrome

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C21965 Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale

Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL).

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle.

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Mitochondrial Disease Mitochondrial Disease
C20071 Mitochondrial disease prior vomit stop reason

The reason why the participant's/subject's prior vomiting stopped

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C00035 Gender type

Self-reported gender of the participant/subject.

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C52968 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score procedural reaction time mean reaction time score

Count related to the mean reaction time score of the procedural reaction time composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C19587 Genetic test single gene deletion analysis tissue type

Type of tissue tested in the single gene(s) deletion analysis.

 Supplemental Genetics Testing Clinical Diagnostics False Mitochondrial Disease Mitochondrial Disease
C09950 World Health Organization Quality of Life (WHOQOL-BREF) - sex life scale

Scale used to assess sex life satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 Supplemental World Health Organization Quality of Life Assessment (WHOQOL-BREF) True Mitochondrial Disease Mitochondrial Disease
C17195 Problem Behaviours Assessment - Short Form (PBA-S) - suicidal ideation worst score

The worst score for suicidal ideation since patient was last seen as part of the Problem Behaviours Assessment - Short Form (PBA-S).

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Mitochondrial Disease Mitochondrial Disease
C20198 Mitochondrial disease prior abdominal distension cause air stool reason

The reason the participant/subject thought the belly was distended in prior episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20032 Mitochondrial disease nuclear mutation text

The free text field to specify the mitochondrial disease nuclear DNA mutation.

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Mitochondrial Disease Mitochondrial Disease
C53039 Axon Sports Computerized Cognitive Assessment Tool (CCAT) - Attention miss score

Score related to attention task misses, as part of the Axon Sports Computerized Cognitive Assessment Tool (CCAT).

 Supplemental Axon Sports Computerized Cognitive Assessment Tool (CCAT) True Mitochondrial Disease Mitochondrial Disease
C19687 Imaging cerebrum component type

Type of cerebrum component

 Supplemental Imaging - Mitochondrial Disease False Mitochondrial Disease Mitochondrial Disease
C20158 Mitochondrial disease abdominal pain anatomic site

Select where participant's/subject's abdominal pain is located

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C21920 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

 Supplemental Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) True Mitochondrial Disease Mitochondrial Disease
C07125 Craig Handicap and Assessment Reporting Technique (CHART-SF) - People living with subject value

Number of people the subject lives with, as part of the Craig Handicap and Assessment Reporting Technique (CHART-SF)

 Supplemental Craig Handicap and Assessment Reporting Technique (CHART-SF) - Paper version True Mitochondrial Disease Mitochondrial Disease
C20287 Diabetes related other 911 call past year count

The count of the times that the participant/subject called 911 (or their local equivalent) for reasons related to their diabetes other than hypoglycemia or hyperglycemia in the past 12 months

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C08521 36-item Short Form Health Survey (SF-36) - Bodily pain score

Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Mitochondrial Disease Mitochondrial Disease
C50423 Child and Adolescent Scale of Environment (CASE) - Child name

Name of participant/subject, as part of the Child and Adolescent Scale of Environment (CASE).

 Supplemental Child and Adolescent Scale of Environment (CASE) True Mitochondrial Disease Mitochondrial Disease
C56397 Conners Continuous Performance Test 3rd Edition (CPT3) - Vigilance commission inter-stimulus interval change value

The number of incorrect responses to non-targets by inter-stimulus interval (ISI), as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

 Supplemental Conners Continuous Performance Test 3rd Edition (Conners CPT 3) True Mitochondrial Disease Mitochondrial Disease
C10726 Echocardiogram left ventricle IVSTd measurement

Left ventricular end - diastolic septal thickness (IVSTd) measured with echocardiography

 Supplemental Echocardiogram False Mitochondrial Disease Mitochondrial Disease
C51713 Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) - 6:8 observation text

Text describing the observations made on the subject's sketch for the age norm of 6 years and 8 months, as part of The Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI)

 Supplemental Beery-Buktenica Developmental Test of Visual-Motor Integration (Beery VMI) True Mitochondrial Disease Mitochondrial Disease
C53019 Automated Neuropsychological Assessment Metrics (ANAM) - Composite score Go-NoGo omissions percentage value

Value related to the omissions percentile of the Go-NoGo composite score, as a part of the Automated Neuropsychological Assessment Metrics (ANAM).

 Supplemental Automated Neuropsychological Assessment Metrics (ANAM) True Mitochondrial Disease Mitochondrial Disease
C13210 Generalized Anxiety Disorder (GAD-7) - easily annoyed scale

Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7).

 Supplemental Generalized Anxiety Disorder (GAD-7) True Mitochondrial Disease Mitochondrial Disease
Displaying 251 - 275 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.