CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Mitochondrial Disease Mitochondrial Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Mitochondrial Disease Mitochondrial Disease
C52022 Child and Adolescent Scale of Participation (CASP) - Child name

Name of subject/participant, as part of the Child and Adolescent Scale of Participation (CASP)

Core Child and Adolescent Scale of Participation (CASP) Mitochondrial Disease Mitochondrial Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Mitochondrial Disease Mitochondrial Disease
C52023 Child and Adolescent Scale of Participation (CASP) - Relative name

Name of participant/subject's relative, or the person filling out the scale, as part of the Child and Adolescent Scale of Participation (CASP)

Core Child and Adolescent Scale of Participation (CASP) Mitochondrial Disease Mitochondrial Disease
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Mitochondrial Disease Mitochondrial Disease
C52024 Child and Adolescent Scale of Participation (CASP) - Relationship text

Text describing your relationship to the participant/subject, as part of the Child and Adolescent Scale of Participation (CASP)

Core Child and Adolescent Scale of Participation (CASP) Mitochondrial Disease Mitochondrial Disease
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Mitochondrial Disease Mitochondrial Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Mitochondrial Disease Mitochondrial Disease
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Mitochondrial Disease Mitochondrial Disease
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Core Child and Adolescent Scale of Participation (CASP) Mitochondrial Disease Mitochondrial Disease
C20023 Imaging phosphorus magnetic resonance spectroscopy not leg assessment other text

The free-text field for other reason as related to not having scan of leg for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20317 Imaging two dimensional speckle tracking echocardiography four chamber segmental strain assessment result

The result in four chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20311 Imaging two dimensional speckle tracking echocardiography ventricle anatomic site

The anatomic site as related to ventricle in the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C10594 Imaging parallel acquisition used indicator

Indicator of whether a parallel acquisition method is used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20024 Imaging phosphorus magnetic resonance spectroscopy thigh assessment status

The status as related to thigh scan of leg for phosphorus magnetic resonance spectroscopy (31PMRS)

Exploratory Phosphorus Magnetic Resonance Spectroscopy (31PMRS) Mitochondrial Disease Mitochondrial Disease
C20318 Imaging two dimensional speckle tracking echocardiography two chamber segmental strain assessment anatomic site

The anatomic site in two chamber view segmental strain as related to the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C10586 Imaging bandwidth value

Value, in Hertz per pixel, of bandwidth used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C20312 Imaging two dimensional speckle tracking echocardiography ventricle circumferential strain assessment result

The result of circumferential strain as related to ventricle in the two dimensional speckle tracking echocardiography

Exploratory Two Dimensional Speckle Tracking Echocardiography Imaging Mitochondrial Disease Mitochondrial Disease
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Mitochondrial Disease Mitochondrial Disease
C10595 Imaging parallel acquisition used type

Type of the parallel acquisition method used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition

Exploratory Brain Perfusion Magnetic Resonance Imaging Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.