CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C10587	C10587	Imaging echo spacing value	Measurement, in milliseconds, of the echo spacing used in diffusion acquisition	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C10595	C10595	Imaging parallel acquisition used type	Type of the parallel acquisition method used in imaging acquisition	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1935-C20311	C20311	Imaging two dimensional speckle tracking echocardiography ventricle anatomic site	The anatomic site as related to ventricle in the two dimensional speckle tracking echocardiography	Exploratory	Two Dimensional Speckle Tracking Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1937-C18703	C18703	Imaging parallel acquisition used other text	The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1928-C20025	C20025	Imaging phosphorus magnetic resonance spectroscopy relax spectrum assessment status	The status as related to full relaxed sprectrum being completed for phosphorus magnetic resonance spectroscopy (31PMRS)	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31PMRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1935-C20319	C20319	Imaging two dimensional speckle tracking echocardiography two chamber segmental strain assessment result	The result in two chamber view segmental strain as related to the two dimensional speckle tracking echocardiography	Exploratory	Two Dimensional Speckle Tracking Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20529	C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F1937-C10588	C10588	Imaging echo train length measurement	Measurement of the echo train length used in imaging acquisition	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1935-C20312	C20312	Imaging two dimensional speckle tracking echocardiography ventricle circumferential strain assessment result	The result of circumferential strain as related to ventricle in the two dimensional speckle tracking echocardiography	Exploratory	Two Dimensional Speckle Tracking Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1928-C20026	C20026	Imaging phosphorus magnetic resonance spectroscopy maximum ATP spectra assessment status	The status as related to ATP maximum spectra being completed for phosphorus magnetic resonance spectroscopy (31PMRS)	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31PMRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1935-C20320	C20320	Imaging two dimensional speckle tracking echocardiography long axis segmental strain assessment anatomic site	The anatomic site in long axis view segmental strain as related to the two dimensional speckle tracking echocardiography	Exploratory	Two Dimensional Speckle Tracking Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease
F1937-C10589	C10589	Imaging shot count	The number of shots used in the imaging echo-planner acquisition	Exploratory	Brain Perfusion Magnetic Resonance Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1928-C20019	C20019	Imaging phosphorus magnetic resonance spectroscopy reproducibility indicator	The indicator related to reproducibility scan of phosphorus magnetic resonance spectroscopy (31PMRS)	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31PMRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1935-C20313	C20313	Imaging two dimensional speckle tracking echocardiography ventricle radial strain assessment result	The result of radial strain as related to ventricle in the two dimensional speckle tracking echocardiography	Exploratory	Two Dimensional Speckle Tracking Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F1928-C20027	C20027	Imaging phosphorus magnetic resonance spectroscopy maximum ATP spectra second assessment status	The status as related to second ATP maximum spectra being completed for phosphorus magnetic resonance spectroscopy (31PMRS)	Exploratory	Phosphorus Magnetic Resonance Spectroscopy (31PMRS)	False	Mitochondrial Disease	Mitochondrial Disease
F1935-C20321	C20321	Imaging two dimensional speckle tracking echocardiography long axis segmental strain assessment result	The result in long axis view segmental strain as related to the two dimensional speckle tracking echocardiography	Exploratory	Two Dimensional Speckle Tracking Echocardiography Imaging	False	Mitochondrial Disease	Mitochondrial Disease
F2731-C20533	C20533	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category	Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Exploratory	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.