CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1840
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Mitochondrial Disease Mitochondrial Disease
C60083 Imaging brain abnormal enhancement anatomic site

Anatomic site of abnormal enhancement found in brain imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60081 Imaging subependymal cyst anatomic site

Anatomic site of the subependymal cysts found in the imaging study

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60250 Diagnosis primary clinical mitochondrial disease type

Type of primary clinical mitochondrial disease diagnosis

Core Primary Mitochondrial Disease (PMD) Genetics Mitochondrial Disease Mitochondrial Disease
C60148 Imaging scanner pitch value

Number value of the pitch used for computed tomography imaging

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C18027 Comment text

Provide any additional information that pertains to the question

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60156 Imaging cavitation anatomic site other text

The free-text field related to 'Imaging cavitation anatomic site', specifying other text. Anatomic site of the cavitation found in the imaging study

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60059 Imaging brain magnetic resonance imaging perform greater than six count

Count specifying the number of brain magnetic resonance imaging (MRI) sessions performed on the participant when greater than six

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C10933 Imaging lesion found type

Type of lesions found in the imaging study

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60164 Imaging cortical malformation occipital anatomic site specify text

Free-text field to specify location of the anatomic site where cortical malformations appear in the occipital region of the brain

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60067 Imaging cortical migration anomaly anatomic site

Anatomic site of the cortical migration anomalies in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C13761 Imaging acute infarct count

The number of acute infarct(s)

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C60075 Imaging diffusion-weighted imaging white matter abnormality characteristic specify text

The free-text field to specify the characteristics of the white matter abnormality on diffusion-weighted imaging DWI

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C12502 Imaging anterior commissure change status

Status related to changes in the anterior limb internal capsule observed in the imaging study

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60192 Imaging spine multiple timepoint magnetic resonance imaging perform status

Status related to whether multiple timepoint spine magnetic resonance imaging (MRI) sessions have been performed on the participant

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59805 Audiometry transducer type

Type of transducer used for audiometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19690 Imaging white matter anatomic site

Anatomic site of the white matter cerebrum imaging

Core Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Core Head Computed Tomography (CT) Mitochondrial Disease Mitochondrial Disease
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60200 Imaging spinal cord expansion indicator

Indicator of whether the spinal cord swelling/expansion is found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C59813 Audiometry speech recognition threshold measurement

Measurement of the participant's speech recognition threshold obtained by speech audiometry

Core Hearing Loss in Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C19698 Imaging myelination type

Type of myelination in imaging

Core Imaging - Mitochondrial Disease Mitochondrial Disease Mitochondrial Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Core Brain Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1840

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.