CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 903

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1931-C20100	C20100	Mitochondrial disease GI detail text	The free text field to specify additional details about participant's/subject's GERD, heartburn, mid-line chest pain, esophageal burning symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20228	C20228	Mitochondrial disease GI clinical trial participate indicator	Indicator of whether participant/subject would participate in a clinical trial	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20099	C20099	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn wake indicator	Indicator of whether GERD, heartburn, mid-line chest pain, esophageal burning wakes participant/subject from sleep	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20097	C20097	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn frequency	The frequency with which the participant/subject has GERD, heartburn, mid-line chest pain, esophageal burning	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20098	C20098	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn disrupt activity indicator	Indicator of whether GERD, heartburn, mid-line chest pain, esophageal burning disrupts activity	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20094	C20094	Mitochondrial disease GERD heartburn mid-line chest pain esophageal burn current prior status	The status present or prior GERD, heartburn, mid-line chest pain, esophageal burning symptoms experienced by the participant/subject	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20148	C20148	Mitochondrial disease food stuck esophagus indicator	Indicator of whether participant's/subject's gets food stuck in their esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20149	C20149	Mitochondrial disease food stuck esophagus anatomic site	The anatomic site of food getting stuck in the participant/subject's esophagus	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20153	C20153	Mitochondrial disease feed difficult text	The free text field to give detailed comments about participant's/subject's feeding difficulties	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20163	C20163	Mitochondrial disease event frequent before abdominal pain type	The type of event frequently experienced by the particpant/subject before abdominal pain begins	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20152	C20152	Mitochondrial disease esophagus diagnosis ever type	The type of esophageal disorder with which the participant/subject has ever been diagnosed	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20038	C20038	Mitochondrial disease eat type	Select the type of ways that participant/subject eats	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20040	C20040	Mitochondrial disease eat reason text	The free text field to specify why participant/subject eats that way	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20031	C20031	Mitochondrial disease DNA mutation type	The type of DNA mutation (nuclear or mitochondrial) present in the participant/subject's genetic diagnosis	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20033	C20033	Mitochondrial disease DNA mutation text	The free text field to specify the mitochondrial disease mitochondrial DNA mutation	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20143	C20143	Mitochondrial disease difficulty swallow change over time indicator	Indicator of whether participant's/subject's difficulty swallowing changes over time	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20047	C20047	Mitochondrial disease dietary other restriction text	The free text field to specify whether participant/subject have other dietary retrictions	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20029	C20029	Mitochondrial disease diagnosis text	The free-text field specifying the mitochondrial disease diagnosis that is present	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20144	C20144	Mitochondrial disease details swallow problem text	The free text field to specify additional details about participant's/subject's swallowing problems	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20115	C20115	Mitochondrial disease details oral regurgitation text	The free text field to specify additional details about participant's/subject's oral regurgitation symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20233	C20233	Mitochondrial disease delay treatment GI problem indicator	Indicator of whether participant/subject delayed treatment of GI problem	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20210	C20210	Mitochondrial disease defecation other treatment text	The free text field to specify about the participant's/subject's use of other treatment to defecate	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20050	C20050	Mitochondrial disease current vomit episode trigger present symptom onset type	The type triggers participant/subject may have had when symptoms began	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20068	C20068	Mitochondrial disease current vomit detail text	The free text field to specify additional details about participant's/subject's current vomiting symptoms	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease
F1931-C20110	C20110	Mitochondrial disease current oral regurgitation onset age category	The category of participant/subject's age at onset of current oral regurgitation episodes	Supplemental	Mitochondrial and Gastrointestinal Diseases Assessment	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.