CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1801 - 1825 of 1834

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3136-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3121-C10813	C10813	Adopted indicator	Indicator of whether the participant was adopted	Core	Family History	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59800	C59800	Acoustic reflex threshold measurement	Measurement of the acoustic reflex threshold	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59797	C59797	Acoustic reflex test perform status	Status of whether acoustic reflex testing was performed	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59799	C59799	Acoustic reflex test condition type	Type of test condition for the acoustic reflex testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59798	C59798	Acoustic reflex stimulus tone frequency type	Type of frequency of the stimulus tone used in acoustic reflex testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59801	C59801	Acoustic reflex decay status	Status of the reflex decay in acoustic reflex testing	Supplemental-Highly Recommended	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20288	C20288	911 call non-diabetes related past year count	The count of the times that the participant called 911 (or their local equivalent) for reasons unrelated to their diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20285	C20285	911 call hypoglycemia past year count	The count of the times that the participant called 911 (or their local equivalent) for hypoglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20286	C20286	911 call hyperglycemia year count	The count of the times that the participant called 911 (or their local equivalent) for hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20287	C20287	911 call diabetes related other past year count	The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes other than hypoglycemia or hyperglycemia in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20283	C20283	911 call diabetes past year indicator	The indicator of whether the participant has called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C20284	C20284	911 call diabetes past year count	The count of the times that the participant called 911 (or their local equivalent) for reasons related to their diabetes in the past 12 months	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F2485-C08522	C08522	36-item Short Form Health Survey (SF-36) - Pain interfere work score	Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C08504	C08504	36-item Short Form Health Survey (SF-36) - Health limited moderate activities score	Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C08507	C08507	36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score	Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C08500	C08500	36-item Short Form Health Survey (SF-36) - General health score	Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52341	C52341	12-item Short Form Health Survey Version 2 (SF-12v2)- Limited work activities physical health scale	Scale for surveyee-reported limited work or activities as a result of physical health, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52342	C52342	12-item Short Form Health Survey Version 2 (SF-12v2)- Less accomplished emotional problems scale	Scale for surveyee-reported less accomplishment as a result of emotional problems, as part of version2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52351	C52351	12-item Short Form Health Survey Version 2 (SF-12v2) -Social Functioning Raw Score	Raw score of soocial functioning (SF) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52356	C52356	12-item Short Form Health Survey Version 2 (SF-12v2) -Scaled score	Scaled score, as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52347	C52347	12-item Short Form Health Survey Version 2 (SF-12v2) -Role Emotional Raw Score	Raw score of role emotional (RE) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52352	C52352	12-item Short Form Health Survey Version 2 (SF-12v2) -Mental Health Raw Score	Raw score of mental health (MH) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52343	C52343	12-item Short Form Health Survey Version 2 (SF-12v2) - Work not carefully emotional problem scale	Scale for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease
F2485-C52348	C52348	12-item Short Form Health Survey Version 2 (SF-12v2) - Vitality Raw Score	Raw score of vitality (VT) as part of version 2.0 of 12-item Short Form Health Survey (SF-12)	Exploratory	12-Item Short Form Health Survey (SF-12)	True	Mitochondrial Disease	Mitochondrial Disease

Displaying 1801 - 1825 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.