CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1649
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C21940 Pediatric Quality of Life Inventory (PedsQL) - Problem memory difficulty scale

Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21939 Pediatric Quality of Life Inventory (PedsQL) - Problem low energy difficulty scale

Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21930 Pediatric Quality of Life Inventory (PedsQL) - Problem hurt ache scale

Scale of problems with having hurts or aches, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21938 Pediatric Quality of Life Inventory (PedsQL) - Problem house chore difficulty scale

Scale of problems with doing chores around the house, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21948 Pediatric Quality of Life Inventory (PedsQL) - Problem heavy lift difficulty scale

Scale of problems with lifting something heavy, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21943 Pediatric Quality of Life Inventory (PedsQL) - Problem harmony peer difficulty scale

Scale of problems with getting along with other kids, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21942 Pediatric Quality of Life Inventory (PedsQL) - Problem gain friend difficulty scale

Scale of problems with other kids not wanting to be their friend, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21933 Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale

Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21949 Pediatric Quality of Life Inventory (PedsQL) - Problem doctor hospital appointment school absent difficulty scale

Scale of problems with missing school to go to the doctor or hospital, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21936 Pediatric Quality of Life Inventory (PedsQL) - Problem bath shower alone scale

Scale of problems with taking a bath or shower by themselves, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C21934 Pediatric Quality of Life Inventory (PedsQL) - Problem angry scale

Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL)

 Supplemental Pediatric Quality of Life Inventory (PEDSQL) True Mitochondrial Disease Mitochondrial Disease
C10599 Parameter map calculation type

Type(s) of parameter maps calculated for the perfusion MRI scan being reported

 Supplemental Brain Perfusion Magnetic Resonance Imaging False Mitochondrial Disease Mitochondrial Disease
C20288 Non-diabetes related 911 call past year count

The count of the times that the participant/subject called 911 (or their local equivalent) for reasons unrelated to their diabetes in the past 12 months

 Supplemental Diabetes-Related Medical History False Mitochondrial Disease Mitochondrial Disease
C20074 Mitochondrial disease vomit time period frequency other text

The free text field to specify how often the participant/subject vomited in the past

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20056 Mitochondrial disease vomit time of day category

The time-of-day category of when the participant/subject usually vomits

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20072 Mitochondrial disease vomit symptom consistent indicator

Indicator of whether past symptoms were consistent day to day

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20059 Mitochondrial disease vomit prior problem type

The types of problems that frequently occur prior to participant's/subject's vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20075 Mitochondrial disease vomit prior episode intensity type

The type of intensity of the participant/subject's prior episodes of vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20066 Mitochondrial disease vomit prior abdominal pain indicator

Indicator of whether participant/subject experiences abdominal pain before vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20067 Mitochondrial disease vomit most severe episode type

The type of symptom that is most severe during the participant/subject's vomiting episodes

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20054 Mitochondrial disease vomit frequency other text

The free text field to specify how often the participant/subject vomits

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20053 Mitochondrial disease vomit frequency

The frequency with which the participant/subject vomits

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20058 Mitochondrial disease vomit episode trigger text

The free text field to specify the participant's/subject's vomiting episode triggers

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20057 Mitochondrial disease vomit episode trigger indicator

Indicator of whether there are particular triggers that induce vomiting episodes in participant/subject

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
C20055 Mitochondrial disease vomit episode intensity type

The type of intensity of the participant/subject's episodes of vomiting

 Supplemental Mitochondrial and Gastrointestinal Diseases Assessment False Mitochondrial Disease Mitochondrial Disease
Displaying 176 - 200 of 1649

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.