CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3128-C59992	C59992	Breathlessness submaximal absolute trial complete oxygen uptake peak Borg scale ratio value	Value, as a percentage, of the ratio of the scale value of breathlessness using the Borg Scale at the conclusion of the Submaximal Absolute Trial, to the scale value measured at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59989	C59989	Breathlessness submaximal absolute trial Borg scale	Scale value of breathlessness during the Submaximal Absolute Trial using the Borg Scale	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59988	C59988	Breathlessness rest Borg scale	Scale value of breathlessness at rest using the Borg Scale	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59991	C59991	Breathlessness oxygen uptake peak measure Borg scale	Scale value of breathlessness measured with the Borg Scale at the attainment of peak oxygen uptake (VO2)	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59740	C59740	Bone fracture mechanism type	The type of mechanism that caused the participant's fracture(s)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C20006	C20006	Bone fracture indicator	The indicator related to having a bone fracture	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59737	C59737	Bone fracture count	Count of fractures experienced by the participant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59742	C59742	Bone fracture confirmed medical record indicator	Indicator of whether the participant had their fracture confirmed in medical record	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59739	C59739	Bone fracture anatomic site other text	Free-text field to specify other anatomic site of bone fractures	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59738	C59738	Bone fracture anatomic site	The anatomic location of fractures experienced by the participant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59741	C59741	Bone fracture age value	Value for participant's age at the time of fracture	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C11131	C11131	Body mass index value	Value of the participant's body mass index, calculated from height and weight	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19634	C19634	Body mass index pediatric value	Value of the participant's body mass index, calculated from height and weight, age	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19571	C19571	Body mass index category	Categorization of the participant's body mass index	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19621	C19621	BMI Z score	The number of standard deviations the calculated BMI of the participant is above the mean	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19622	C19622	BMI standard infant use type	Indicator of whether WHO or CDC growth charts were used in BMI Z-score calculation	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3095-C19581	C19581	BMI Percentile Value	Value of the participant's BMI percentile for children over 2 years	Supplemental	Physical Exam	False	Mitochondrial Disease	Mitochondrial Disease
F3085-C59745	C59745	BMI diabetes diagnosis category	Category of the participant's BMI (body mass index) at the time of diabetes diagnosis	Exploratory	Diabetes-Related Medical History	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19516	C19516	Blood sample repository name	Name of repository to which the participant gave a blood sample	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59178	C59178	Blood sample repository indicator	Indicator whether the participant provided a blood sample to a repository	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C60257	C60257	Blood sample identifier number	Identification (ID) number assigned to the blood sample in repository	Supplemental	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59974	C59974	Blood pressure systolic ventilatory anaerobic threshold measurement	Measurement, in millimeters of mercury (mmHg), of systolic blood pressure (BP) when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60008	C60008	Blood pressure systolic trial start measurement	Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60049	C60049	Blood pressure systolic trial recovery start measurement	Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60022	C60022	Blood pressure systolic trial other timepoint measurement	Measurement, in millimeters of mercury (mmHg), of the systolic blood pressure at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.